Heavy Seizure Followed By Change of Personality Posted: 06-23-05 09:03am
I suffer from junior myclonic and am
normally subject only to myclonic jerks
(fortunately kept in check by lamotragene
most of the time). However, on saturday,
through a combination of hangover,
tiredness (i sleep about 5 hours a night
these days) and stress (was dealing with a
problem client on our emergency callout
line), I had a full blown screaming,
tongue biting, head banging episode. I
don't have the full details of it, as
obviously I was not conscious, but
paramedics were called. After all the
unpleasantness, and a wonderful job by the
paramedics in bringing me out of it, I was
left with a sore head, aching muscles and
the aura that usually comes with my
seizures.
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 06-23-05 15:46pm
So sorry you had a bigger seizure than
normal. Not really sure what you mean by
an aura after a seizure, they come
before....
It is not to uncommon to have lasting
affects for a few days post seizures. My
son can be moody, have trouble thinking
and have trouble with coordination and
thinking for up to a week after a big
seizure.
Sounds like some lifestyle changes would
bring you better quality of life.
Hangover? Lack of sleep? Stress? Hard
to make adjustments, but the meds cannot
counter act the negative when they all
pile up like you saw....
Hang in there. Hope you can get better
control. Tonic clonics can be part of
juvenile myoclonic epilepsy.....
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Lon Chaney Jr.
New User, Becoming EHEALTHy
Joined: 23 Jun 2005 Posts: 2
Posted: 06-23-05 17:28pm
I believe I sometimes get the auras
without having the fit, although, as I
discussed with my specialist, i've been
having the fits for so long, i'm not sure
if what I believe is an aura is actually
just a normal feeling of tiredness...
Anyway, I think the strange feeling i've
had since is a sense that part of me is
still there with the paramedics on my bed-
probably due to me subconsciously trying
to remember things that occurred when I
was unconscious... Trying to fill in
the gaps as it were. Hence the feeling
of being somewhere else but part of
something. It's weird, but I have a
sense of the paramedics being with me
still. I do think it's psychological
rather than neurlogical, although
obviously i'm not an expert. I'm
seeing a psychologist with regards to
other matters, so maybe i'll discuss it
with him.
Thanks for your help and good wishes.
If I find anything out, i'll stick it up
here in case anyone else ever gets the
same.
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Bobblehead
New User, Becoming EHEALTHy
Joined: 25 Jun 2005 Posts: 3
Posted: 06-25-05 21:47pm
I suffer from epilepsy and realized that
the lack of sleep was bringing on several
auras a day even with the med. If I were
to go several(>3) days with 5-6 hours
of sleep it would bring them on
consistently. I can still get away with 7
hours a day but noticed that my legs feel
weaker and the head feels like a generator
revving out of control. (nearest I can
describe it.)
have you noticed any patterns when you
have not slept?
It does take a while before my brain kicks
into gear after a gran mal. Nothing like
an aura though. That feeling is very
different. After an attack I am conscious
and aware of people but can't really talk.
That part is some what similar to the
aura but not really. I can try to talk
and slur non-complete words. With the
aura, I nod at people but "choose" not to
say anything as I am thinking to myself,
"here we go" over and over, trying to hold
onto reality and fearful the attack will
go full blown.
Drool and recovery of my breath (like
someone had knocked the wind out of me)
are the earliest physical things I
remember after a full blown seizure. I
have memory and awareness of those around
me. I can hear what they say and
recognize the words, I may try to respond
but can't get out the words when I try.
Auras I don't even try. I just sit there
and maybe give a nod like I am telling
them "just a second, I am busy" or I will
hold up one finger. (i had to train
myself to do that.) afterwards, I then ask
"what did you say?" as I have no real
comprehension of the words.
Auras are like the feeling of deja vu.
Very different at least for myself.
