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Cholinergic Urticaria (heat Hives)

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Medical Questions-> Health Forums -> Allergies -> Cholinergic Urticaria (heat Hives)
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m77

New User, Becoming EHEALTHy
Joined: 03 May 2006
Posts: 1
Does Anyone Have These Symptoms?
Posted: 05-03-06 23:04pm

I just found this forum and read all the messages and for the first time since I got hives 3 months ago I feel relief. I'm almost postive after reading everyone's post I have cu, and it started because of stress.

I don't know if anyone has this problem but I seem to react to almost everything now. For example, I put lip balm on i've been using for years and my lips swelled. My regular vitamins make me break out. Food makes me break out unless it's very bland. I broke out from tagamet the doctor subscribed for hives. I didn't even try the antihistamine he gave me. The least bit of anxiety and I get itchy. I don't sweat and haven't had a cold in years just like others said.

I tried lacitrex but it didn't help too much. I also take quercetin, b-complex, b12, pycnoginol, nettle, milk thistle, digestive aids without hydrochloric acid, go to acupuncture every week, am trying naet allergy testing, and biofeedback(just started).


Two things I have since getting hives that I didn't read anyone else having is I now can't tolerate anything acidic like tomato sauce, vinegar, etc. I have a major breakout, and got acid reflux when the hives started. I also breakout really badly every night about 15 minutes after I get into bed. I think it has something to do with getting warm with even a sheet on me and my head against the pillow or maybe just lying down, but it's only at night. It starts with my head getting hot and itching then it spreads downward and I get hives and itch for about 3 hours. Does anyone have any of those symptoms?
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josh6552

New User, Becoming EHEALTHy
Joined: 30 Jun 2005
Posts: 24
Location: Tampa, FL

Posted: 05-04-06 12:49pm

M77, damn that sucks you have way worse than I do. I have zero reactions to anything but only any rise in body temperature that causes me to break out, but the antihistamines block it 100%. I think I have candida that is all glogged up with parasites and fungi and bacteria which is a good candidate to cause the onset of my hives. I've been constipated for like forever, it's normal once you've had for many many years, but that can cause cancer. One of these days i'll have to eliminate all the junk that eat and do a candida cleanse. It's not like urgent, but I think i'll do it soon.
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alido2boord

New User, Becoming EHEALTHy
Joined: 30 Mar 2006
Posts: 4
Location: Southern California, USA

Posted: 05-04-06 18:09pm

M77 maybe you should try resting/sleeping a lot more. Even if you break out before you sleep, you should try to sweat it out by doing the steam/hot shower way or the exercise way. Maybe that will do better.

And speaking of sleep. How often/long do you guys sleep?
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josh6552

New User, Becoming EHEALTHy
Joined: 30 Jun 2005
Posts: 24
Location: Tampa, FL

Posted: 05-04-06 20:49pm

I love to stay up at night. It's peaceful. I'd have to say I sleep from 11-12am and wake up at 5. I sleep solid as bricks. And i'm a very sound sleeper.
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souldiver

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 2
Location: Malaysia
Am I Infected With Cu
Posted: 05-06-06 08:56am

Hi, i'm 22years old and new here. I wish to know a few thing about cu because i'm currently having some rashes which I can't explain.

I live in hot tropical country which is hot all the time, and I never had any allergy record toward food or having problem with hot weather. I sweat a lot during sport day back in the highschool but I had never have any problem regarding cu.


I'm now in australia and it's autumn here, I being joining gym since february and do running for 30mins followed by 30mins weightlifting. In april, I discover that I have rashes which located on my chest, and it spread to my back and shoulder after a week. I checked with doctor and he gave me antibiotic and ointment to fight it. The rashes dissapear in 1 week time and I feel relief. However, now in may, the rashes appear again and it spread to my chest, shoulder, stomach and back.

I have a few question regarding this:
- am I infected with cu?

- if it's cu, will it be permenant to me, which mean I no longer able to do exercise, eat heaty food which I use to eat?

- is it possible for someone who doesn't hold any cu record infected by it, whats the reason behind it.

- is there any cure that is permenant for cu, or at least preventing it? I heard of antihistamine however it make ppl feeling dizzy and sleepy as side effect.

- I normally eat 2 eggs and drink a glass of milk an hr before I work out in gym, and normally eat sushi or salmon after work out, do this food one of the reason or cause for cu?
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Sean3000

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 35
Location: UK

Posted: 05-06-06 12:34pm

Dear all,
i also have cu (diagnosed today) at the moment im not taking anything for it as I find antihistamines simply do not work.
I was wondering how many of you found the organic and accupunture treatment worked?
Avoiding e numbers is said to give slight relief e102 tartrazine(found in yellow food colouring) ,e210-220(in spicy foods)
I heard that beta blockers can be used to control the condition, has anybody been perscribed these, if so do they work?
Just a quick question for cdz19 did you experience any side effects with the lacitrex?
Thanks in advance
sean
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jimmi56

New User, Becoming EHEALTHy
Joined: 24 Mar 2006
Posts: 19

Posted: 05-08-06 01:37am

Hey sean3000.. If you go to the previous page.. Or maybe page 5.. I have a list of things that ive used to be breakout free for over a month...

Souldiver.. I believe most breakouts are allergy related.. You could be allergic to the food you eat, the water you drink.. The lotion you use.. Whatever may come into contact with your body may be causing a breakout...
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Sean3000

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 35
Location: UK

Posted: 05-08-06 11:53am

Thanks for that jimmi i'l be sure to check those products out.
The past couple of days instead of getting the small red spots all over ive noticed this has changed and i'm now getting large area's of reddness/blotches, anyone else experienced this?
I wonder if I should be concerned about this
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josh6552

New User, Becoming EHEALTHy
Joined: 30 Jun 2005
Posts: 24
Location: Tampa, FL

Posted: 05-08-06 18:35pm

Sean3000, could just mean that the reason you had a different outbreak then previous outbreaks is because your body is more susceptible. Like for me, my medicines half life is 2-3days. Which in other words, the medicine will remain in my body for for 2-3days and then start to wear off. During the period where the meds wear off, I only get small spaced red dots, continuing to not take medicine results in massive body breakout since there is no antibodies to work.
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CDZ19

New User, Becoming EHEALTHy
Joined: 21 Jan 2006
Posts: 31
Location: St. Louis, Missouri
Steam Room Treatment
Posted: 05-09-06 00:55am

It's been about a week since I started the organic treatment and there are noticiebable effects...



The attacks have lost a good deal of intensity, and don't happen as often.



I noticed the other day, when I wore my hat, that after I sweated a little...The attacks completely went away, which got me thinking...



I should get a health club membership just to use the steamroom/sauna, early in the morning to sweat it out so I won't have to worry the rest of the day...Just until I go to the alternative healthcare physician and he can help cure me.



Any comments or suggestions on this treatment (steamroom/sauna) would be great...


Now that laundry detergent has been eliminated as an irritant, and I know that it wasn't toothpaste or any kind of food. I can pretty much determine now it's got something to do with me sweating....It looks like i'm getting closer to finally beating this thing...Wish me luck. :)
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Sean3000

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 35
Location: UK

Posted: 05-09-06 12:22pm

Thats great news cdz19 I might look into that myself, my condition has definatly changed I had 5 attacks today and im at a real low point! The summer weather is definatly taking its toll on me, thanks for the reply josh I think that your right. I'd love to hear from anyone who has been on beta blockers for this condition. From what I kno about them, they relax you and make you feel less nervous (key factors in this condition)
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souldiver

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 2
Location: Malaysia

Posted: 05-10-06 06:48am

Sean3000:
i'm not sure what cause the breakout too, since I don't hold any record in the past related to food and I don't use body products. The breakout normally start in the middle of my chest, and it spread, it's normally take 3 days to spread to whole chest area, shoulder and back. When I exercise, I don't feel itch, however around evening and night it start to itch and sometime sting. I do some reading, some recommend to have hot bath or steam room to release sweat, while most of the source told me not to heat up my body, i'm pretty confuse which is true and which is not. I confront a doctor around april when I 1st get the hives and the doctor doesn;t really sure what happen and give me some ointment and antibiotic, I was cure in a week, however the rash come back in middle of may and now I still have it, they doesn't go away unlike some of you and it stay with me permanently. Imo, I believe it has to be something to do with me undergoing exercise daily or maybe is the diet which is high protein and low carb. Anyone who has similiar situation like mine please give me some information.
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Sean3000

New User, Becoming EHEALTHy
Joined: 06 May 2006
Posts: 35
Location: UK

Posted: 05-10-06 11:33am

Souldiver, having hot baths and showers washes away the bodys natural oils and causes dry skin. In my condition (may be different with other people) the urticaria gets worse when my skin is dry. The fact that you say it takes 3 days would perhaps suggest that it isnt cholinergic urticaria, cu tends to be a condition that effects patients perhaps twice or 3 times a day. The hives usualy appear and go within the space of half an hour,
the advice I would give you would be to take some photos of the rash and show them to your doctor from there he will probably perscribe you with an antihistmine such as zirtec.
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skankmanicmaster

New User, Becoming EHEALTHy
Joined: 04 Apr 2006
Posts: 8
Uticaria.com
Posted: 05-18-06 14:10pm

Hey just wondering if there is anyone out there who has tried uticaria.Com any success?
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Moonshadow

New User, Becoming EHEALTHy
Joined: 20 May 2006
Posts: 2
Location: Florida
Sick of Hives
Posted: 05-23-06 20:27pm

Hi,
i'm new here, but m77, your post could have been written by me three years ago. They finally went away after 8 months and I thought i'd found the perfect cure. But after an especially stressful day at work two months ago they are back now with a vengence and the natural "cure" which worked so well then isn't even touching it this time.

Three years ago I was finally referred to an allergist who put me on 5 different antihistimines every day and 20 mgs of prednisone to take every other day. On the "on" days of prednisone the hives were almost gone but the "off" days they always came back. I had tried everything and then stumbled onto a website about bovine colostrum. It said that studies showed that it balanced out the immune system. I tried it and within a month the hives were gone. I'd have staked my life on it working always and forever for me but this time it hasn't helped at all.

My condition is autoimmune related. The allergist tested me for over 100 things and I wasn't allergic to any of them.

I tried the histimine diet,..For only one day because that night and the next day were the worst yet. Maybe I just need to give it more time but I figured if i'm going to be miserable I might as well eat what I want in the process.

I also am on a beta-blocker and the hives started within a few weeks of my starting it so I thought it might be related. I stopped taking it for a few days (not a good idea) but it didn't make any difference.

My routine is to get up about 1:00 to 3:00 a.M. And shower off. Then I rub down with alcohol using cotton balls. Then I slather on noxema and grab the ice cubes and rub all over the hives where the noxema is. It seems to help more than just ice or noxema alone. That stops the reaction for awhile.

Getting really sick of waking up in the morning with a face that looks like a prize figher,..Who lost.

Like one poster here say,..You really become a recluse. Thank god for make-up or I wouldn't even be able to go to work.

Sure hope we all find something that works ,...And keeps working.

God bless to all and praying for a cure.
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treadsafely

New User, Becoming EHEALTHy
Joined: 13 Apr 2006
Posts: 9
Progress So Far
Posted: 05-29-06 06:36am

Ok, so now i've tried the following:

traditional chinese medicine
buscopan
lacitrex
accupuncture

none of which did anything.

I went to see a herbalist last week in wales with a vegatest machine, which sends electric signals through your accupuncture points to test for allergies etc. Apparently my body had a bad reaction to a diptheria vaccine when I was younger, and it has now chosen to manifest this reaction later on in life with cholinergic urticaria. This diptheria jab has caused me to now become allergic to diesel fumes and tea (strange I know!) and the herbalist tested for antidotes, and he found that half a paracetamol per day should stop the allergies, and from there stop the cholinergic urticaria. (he also tested for one tablet of paracetamol, but that did not work).
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Moonshadow

New User, Becoming EHEALTHy
Joined: 20 May 2006
Posts: 2
Location: Florida
Hives And Re-occuring Fever Update
Posted: 05-29-06 08:25am

Ok,.. So I finally went back to the doctor. Along with the relentless hives i've had for the past 3 months now, I kept getting a sore throat and fever once a week or two. I've been reading how a chronic infection can cause hives so I convinced the doctor to put me on antibiotics. He also gave me another "z-pac" 6 day step down cortisol treatment. The antibiotic is one they give for strep throat infections. Tomorrow will be the last day I take any cortisol and today is the last day of the antibiotics. Usually by now (on this low a dose of cortisol "methylprednisolone") the hives would be coming back with a vengence, but (fingers cross) yesterday and today i'm practicly hive free! In fact my hives are always far worse at night and I wake up looking like I had wallowed in a bee hive but this morning, not one hive!

I also have done some reading up on how physical and emotional stress can make our adrenal glands sluggish which can cause hives too. Since the cortisol the doctor prescribed is actually an adreal hormone, and it suppresses the hives I thought that sluggish adrenals might be a possibility too. So i've been taking mega dosses of "super quercitin". It contains quercitin, vitamin c, bromelain, citrus bioflavonoids, hesperidin, rose hips, acerola, and rutin. All of those are natural flavonoids which are supposed to help the vascular system and adrenal glands.

I don't know if it's the antibiotic or this suppliment i've been taking or both, that has put the hives in remission. I took the suppliment before with no affect but then I read that you have to take enough to get 4000 milligrams of vitamin c for it to really work so I started taking big dosses. Adrenal glands need lots of vitamin c to work well especally if they are stressed.

Anyway,.. I am so very hopeful that this will be the end of hives for me forever. I pray that everyone else who experiances this horrible life debiliting condion will find a cure and relief as well. I hope maybe some of the info from my experiance will help someone out there.

Blessings to all, :-)
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Parteese14

New User, Becoming EHEALTHy
Joined: 12 Mar 2006
Posts: 9
Location: Orange County

Posted: 05-30-06 20:37pm

Hey everyone,

my cholinergic urticaria has pretty much disappeared spontaneously. I know this sounds like a bad thing, but it should provide some hope that your ailment could cure anyday. I started taking antihistamines in conjunction with my more "eastern" homeopathic and acupuncture medicines, so maybe that was the trick. Never stop trying to cure it. Good luck everyone!
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bystander

New User, Becoming EHEALTHy
Joined: 31 May 2006
Posts: 1
My Experience
Posted: 05-31-06 22:08pm

Hello all,

i have been suffering cholinergic urticaria going on about 14 years. Below are my observations:

-weather and environment is key factor. Outbreak can occur more frequently in dry and temperature mild to cold weather. Because you don't sweat a lot and histamine builds up. Once you sweat, you will experience the breakout.

-so if you are lucky enough to live in a tropical-like climate, as I had from one time to another, the condition will disappear as you are almost constantly sweating.

-i am currently doing sauna on a daily basis with cold shower afterward. It helps control the condition so the breakout is often none to light.

Hope this helps, and let's all pray for a magic cure one day!
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frustratedgirl

New User, Becoming EHEALTHy
Joined: 23 May 2006
Posts: 6

Posted: 06-01-06 08:29am

bsmith6 wrote:
i have noticed wearing tight clothing does make this condition worse. I agree that "sweating out" the histamine is the only thing that works consistently. The more I workout and suffer the itching the better the condition gets. I have tried almost everything and sweating is the only way to deal with this. Atleast I get a day free of itching and hives after a good workout. If I am going to be in public and know the attack may come I make sure to sweat prior to this and it helps dramatically. The more I workout...I sweat easier and quicker and the itching is much less. If I skip workouts...It takes longer to sweat and the itching is ridiculous.


i'm going to try this 'sweating it out thing' because I went to a barbecue last weekend and was nervous about breaking out...Which led to sweating...Which led to an outbreak. But after that had happened, the hives faded away and I was fine for the rest of the evening. Definately something to try.
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