Cholinergic Urticaria (heat Hives)

Bsmith16,

yeah i've been on cyclosporine for about ten days...And it's not working at all. Today I tried to go running, but I couldn't finish off the mile because the itching was too unbearable...

If anything I could gain from the experience, after not excersing for a while, it was good to know that I still had the will...

But yeah, I think i'll stop taking it and go with the herbal solutions...I hear good things about herbal medicines when it comes to cu...Do you or anyone else know anything about herbal medicines?

It sounds like if I keep taking this medicine...I'll only keep hurting myself...And i've been on it for ten days and have seen no improvements. I dont' need a disease in addition to this...It's annoying enough as it is.

Wow. I didn't know I had all these replies. I was just searching google arbitrarily tonight for cholinergic urticaria cure and came across my own post.

Well, my zyrtec worked perfect but I couldn't afford so now i'm using loradine and it works as good. When ever I get some spare money, i'm going to try the online drug presciption at the website www.Urticaria.Com.

Hopefully, I will be hives free one day, but untill then I must live with constant unbrearable itching (only when the meds wear off). Just to say...When I was 16 and 17 and never ever had a problem with my body...Now it seems a bomb has exploded...Lets see.

I'm now 20 I now have to worry about the cu, surgeries of sorts, skin cancer (where I had a moles surgically removed but came back non melanoma, and I don't have that many moles, either). Anyways, I hope you people with cu will seek a definite cure.



Sincerely,
josh

Zyrtec, claritin, and cyclosporine have been utterly useless!!!

There was a short time back in december when I was taking prednisone and it worked like a charm, not an ounce of itching at all...

Anyway, I hear good things about herbal meds...Does anyone know where I can obtain them?

Hey guys,

i saw an allergist last week and was perscribed hydroxyzine hydrochloride which is atarax, an anti anxiety and antihistamine. I'm taking this as well as zyrtec and it seems to be working really well. I'll check back with new results in a few days. I definately recommend this med.

When I was on hydroxyzine it was 100% effective but since it's supposed to treat anxiety too, it would absolutely kill my concentration, slur my speech, make me feel like I didn't care for anything. The docotor never told me about that it treats anxiety..

Hi,

i've suffered from cholinergic urticaria since I was 14, daily. None of the h1 antihistamines were very effective, the combo h1 and h2 blocker also proved useless. At 21 years of age I visited one of the top specialists in the world in london. I was put on low dose stanozolol for two weeks along with fexofenadine. There was a dramatic improvement after this treatment. I've been told that another course; perhaps two, will be needed for complete remission.

I came back from my allergist today...And i'm not allergic to any foods.

Meaning that whatever the cause of my itching/hives are, it has to do with either stress or diet.

But what's weird is the fact that when I eat certain foods, my face and scalp get itchy...

Does anyone else know what i'm talking about? What's the deal?

Hey guys, I don't have time to read all the replis right now, so sorry if I ask osme things that have been answered. I'll read the whole thread later tonight.

So i've been diagnosed with cholinergic urticaria by my dermatologist. Like i've read on the internet, I have the typical symptoms. When my body temp. Rises or I get really stressed, I break out in extremely painful and itchy hives. My regular doc gave me alavert and it did nothing, so I saw a dermotologist, and she prescribed me a larger amoutn of zyrtec. Neither have don e anything. I have another appointment with her in 2 weeks. For a couple days (while I was moving and working hard), I noticed it would happen off and on during the first couple hours of moving, and then it would be ok the rest of the day. For a couple days this happened and I thought the zyrtec was working. However, it came back and it was worse than ever. I have't gotten a chance to try it, but could I potentially exercise hard in the morning and suffer the pain badly for a little bit, and then have it go away the rest of the day? I read something aobut this maybe working, something about the histamines all being flushed out and the body not having any left to release for the day, thus eliminating the symptoms. If this works, i'd def. Want to do it until I can get on some right medicine. I would hurt extremely bad, but it would be worth it to get rid of it for the day. Right now it's so bad that I can barely leave the house or be active at all.

What do you guys think?

Hey guys, I just ordered a medicine called lacitrex today...Apparently it's supposed to be really good for cu and no one's said anything bad about it...

It's supposed to get here about wednesday or thursday, i'll let you know how everything goes.

Does anybody hgave it on their legs too? I've had it for a couple months, and today for the first time my legs got it too. Does this mean it's getting a lot worse? I'm desperate.

I can always tell when I am going to have a bad outbreak as it usually starts itching really bad on my legs. If I skip workouts for a few days my legs are the first to get itchy. I have been able to control the itchy legs by sweating a couple of times a week. I have also just purchased a steam room for my house. This will allow me to sweat everyday and hopefully ward off any major outbreaks.

For the most part, a lot of the descriptions fit my... "condition" to the dot. Went to an allergist about it and he called it something different but pretty much gave me the same meds others have had. I was on zyrtec for a while but eventually it stopped working. I'm on hydroxazine (atarax) which makes me feel so tired and groggy I usually don't bother tanking it.

Mine isn't too bad in the summer but kicks in from fall - spring usually. At the moment i'm just glad i'm not the only one out there with my condition and I would really like to hear more the med you got cdz19 when ever you can get some info.

For the mean time i'm gonna try the running thing since I feel alot of times it is because of not being able to sweat very well. (i sweat when I work out but it always happens b4 I actually start sweating as if the hives are trying to restrict my body from doing so)

thanks again for everyone who has posted and if anyone gets any information about any herbal remidies please share for it would be greatly appreciated.

So far so good...


I'm quite surprised really...


I got the medicine on wednesday after having a major breakout that day, which caused me to stay home the rest of the day and made me miss class...The timing couldn't have been anymore perfect.



I had a mid-major attack on thursday, but after that, there was nothign else the rest of the day, my attacks seem to happen around 12 everyday...Well 12 rolled around and I was just as calm as a cucumber, not a hint of itching, and I was even laughing hysterically while out in the sun...So I had stress and sun in that situtation, and no itching.

After that, friday and saturday have been nothing but utter peace...A few "prickles" of itching here and there, but after applying the solution to these places, it quickly wears off.


I'm still weary though...After having cu for so long and going through 8 different medicines, it's hard to believe that this particular medicine is actually working. I still walk around thinking about it sometimes, dreading certain days and times, fearing that it may happen...But to no avail, thankfully.


I guess i'll ask a few questions to the people who sell this stuff, but for now I guess i'll treat it as if i'm rehabilitating from any other ailment...I'll give it time to really set into my body before I try working out, or trying anything really extreme again. It's still early, and i've only had the medicine for 4 days...So only time will tell.


I wouldn't advise anyone to buy it unless you've got nothing else to go on, and no other medicines you've been given so far have been working...It's worth a shot. It's completely natural, and i've had no side effects. If anything, you feel calmer...But I guess that's to prevent stress, which creates the hives in the first place (in my case, my cu arises from stress)

i hope this helps, and good luck to you all in your ongoing war against the dreaded cu.

Oh and for reference here are all the medicines i've taken up until this point:

1. Benadryl
2. Claritin
3. Zyrtec
4. Methylprednisolene
5. Prednisone
6. Doxepin
7. Cyproheptadine
8. Cyclosporine

all of which either didn't work...Or worked for a bit, but then my immune system fought it right off.

Hey, what form of it are you taking? Pills? Which "kit" did you get? Did insurance cover it?

Cfm7: they're pills, and I don't really know about the insurance part...It's just there for you to purchase.

It's made completely of herbs, and I got the kit with only one bottle of topical solution and pills.

Hope that helped

Cdz19 i'm new to this forum and was wondering if the lacitrex is still working for you? I have been considering ordering it myself. I have have had cu for the past 4 years and have taken many of the meds mentioned on this board and would much rather use a holistic product/remedy.

"dream"

Hey guys im wondering how bad if gets for all of you. Ive only had it a couple months and its been getting worse and worse. Now I get it all the way down to my ankles and the pain is unbelieveable. Im 21 and always have had a high threshold for pain but this is unbelievable. If I dont jump in the shower it feels like im going to pass out and I eventually will. The visual aspect of it is getting worse too. I can now feel the hives rising off my skin. How bad does it get for you guys? If you stay inside and manage to not have an attach for a few days, does it make the attack worse once you get it? Like its been building up? Maybe I shouldnt put it off for so long because it seems like its 10x worse when I do. How am I supposed to lead a life with this stuff

Hello everyone.


Just found this forum. I believe that I have cu. My doctor is skeptical. She says that cu is rare and she believes that I simply have dry skin.


Whever I go into a heated building from a cold (during winter), experiance emotional stress (could be as simple as someone calling my name in front of a large group, or seeing a girl I like smile at me), or go for a run or to the gym to lift, I get very very intense, painful itching feeling on my scalp, back and chest.

During the summer, I only notice it if I go for a run. It starts within 5 min and ends after I begin sweating.


During the winter, I notice it for all of the above stimulents, and it is much more intense than in the summer.


The thing is, I dont know if I get hives or not. I certainly dont swell up or anything, but I do have redened skin in a streaking pattern with small red bumps.

The red areas and the bumps dissapear before my workout is over.

When I go for a run, it usually starts within 5 min, and ends at the 15min mark. I am usually sweating by then. As soon as I am sweating all over, I no longer experiance it.

If I run in the morning, I can go back and forth from the cold outside to inside with no problem for a while. I'm not sure how long this period of remission lasts, but its less than 10 hours.



A few months ago, I ran 4 times a day, evenly spaced. I made sure to sweat each time. I hardly noticed anything. But...Not that im back in school I dont have that much time.


Antihistamines dont do anything.


Im going to try and get the doctor to let me run in place at my next visit so she can see the sighns and tell me if they are hives or not. I will let you all know my progess.

Good luck everyone