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I Have Had Mono Three Times. This Isn't Right!

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feebsicle

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Joined: 12 Jul 2005
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Location: vancouver
I Have Had Mono Three Times. This Isn't Right!
Posted: 07-12-05 16:59pm

I have been tested and diagnosed with mono three times in my life: twice in my teen years, and once more last summer. These were all confirmed by doctors. I am 22 years old.
It lasted for months last year, and during that time was tested for other things such as anxiety and epilepsy. I had an eeg scan, a holter monitor, and an ecg, but everything turned out normal.
It is yet again summer and I am feeling the exact same symptoms as I had last summer. On top of the mono symptoms (extreme tiredness, apetite loss and gain, sore glands, fever, hot/cold sweats) I also have dizzyness, sore joints, sore muscles, harsh headaches, anxiety, and I often daze out and have "episodes" very much like those with mild epilepsy.

First of all, I heard that you're not supposed have mono more than once, and it is very rare to have it twice.
Secondly, if all my tests come out fine....Why am I having so many symptoms? And symptoms of what?
Does anyone have a clue what this might mean?
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lee21

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Joined: 14 Mar 2005
Posts: 8
Location: florida
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Posted: 07-13-05 17:20pm

I was diagnosed with mono in feb. 05 and i'm still having symptoms. I know that was only a few months ago but my doctor said (back in feb.) that the symptoms should subside in 4-8 weeks but I still have symptoms. My glands are constantly swollen, and my body is always sore and if I over do it I get sick real easy. I've heard that mono stays in your body, just lays dormat, even when you get better. And it can reflare. But a friend told me this I haven't asked my doctor.
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intimate_lover

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Joined: 12 Jul 2005
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Location: new orleans

Posted: 07-13-05 18:07pm

When I had it it only lasted for two weeks, and yes it does stay in your body and it can reappear when you have a lot of stress in your life, or you are sick a lot and don't rest. ~as told by my doctor
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jenbuffy

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Joined: 07 Aug 2005
Posts: 2

Posted: 08-07-05 14:55pm

My co worker whom I believe I may have got mono from. But not from kissing. Anyway she had mono for a whole year ten years ago and now she has it again. But her husband hasnt gotten symptoms. Anyway she has an immune deficiency disease. So if you have mono agaimn maybe thats whats wrong.
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Sainne

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Joined: 20 Aug 2005
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Location: Canada
...
Posted: 08-20-05 23:28pm

I am currently sixteen years of age, and was first diagnosed with mononucleosis at the age of fifteen. Over a year ago.
I was first infected by the illness during the summer of 2004, when I was out with a few friends. I suppose I made a mistake by sharing a cup, glass, lipstick or something of the sort with a person that night, and I became sick, instantly, the following morning.

I can't say that the one night did not change my life, because it has. Since that summer, I have been diagnosed eight other times with mono. My most recent was, infact, three nights ago. My tonsils are completely swollen/infected, and remain the same even when I am not fully feeling the symptoms. I am constantly drowsy, and cannot seem to easily pry myself out of bed unless I get a minimum of 10-12 hours of sleep every night. If I don't, I start to feel my tonsils beginning to become irritated, and so I pop back a few advil to numb the pain, and hope to god it will pass.

This time I wasn't as lucky. But I have an appointment to get my tonsils removed in september, and I am praying that it will stop this on-going trauma in my life. I am still in my teenage years, but my body feels as though it has aged drastically. I feel helpless some nights. I feel useless, and unloved. I don't think it's fair that any of us have to go through this sort of pain.. And I only hope that i, and the rest of you, get past this illness. It has been tearing holes in my heart, and I can barely live a normal life without worrying that what I am doing will affect my health, and perhaps bring the mono back. It has also come to the point that my friends, family and teachers are beginning to doubt me, and believe it an excuse I use to get out of certain situations. Which it is not. I don't understand how some people can be so incredibly ignorant and not care to look past what others believe to be true, appose to what is the truth.

I pray for my life back, and I pray for those who are in the same position as myself.

God bless you all.

-sainne
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Amandalugo

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Joined: 23 Aug 2005
Posts: 1
Location: Minnesota
Damn Mono!
Posted: 08-23-05 09:35am

Hi! I am currently 18 years old. I was diagnosed with mono when I was 17, back in december. I haven't been sick since I had mono until now. I'm been sleepy, have swollen glands, and my left side is sore....All symptoms of mono. I really hope I do not have mono because I am starting college next week!
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diamondsz

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You Can Have Mono More Than Once
Posted: 11-11-05 10:19am

The first time I had it I just thought it was a never ending flu and I had never heard of it until a dr told me I had it, I was about 16 at the time and I was out of it for three months. The second time was when I was 19 I went to the hospital I was in alot of pain (spleen was enlarged) omg it hurt all that was said is not to overdo myself that lasted 2 months.

The last and final time was when I 19 but few months down the road it only lasted a month and I could still move was just exhausted I got good and bad news from bloodtest lol, I was pregnant and had mono.

I asked dr why I keep getting it he says its like a light switch and everyone has different triggers that set it off for me its stress, when I just overdo myself mentally and pyscially I burn out and get mono..........Dr told me I have to becarful with futur episodes cause your spleen is really delicate and could rupture with mono.

Jess
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fatfamily02

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Joined: 20 Jul 2005
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Location: Georgia, USA

Posted: 11-11-05 10:49am

I know me and my kids went thru the same thing. Each child only diagnosed atleast one time, but for over a year it was floating around my house. I wonder if in some cases you dont like "carry" it after the first episode. My son got it and lasted for 3 months, then daughter got it right after him. He kept getting signs (3 different times)for over a year when his brother got it. All confirmed by Dr. Swollen spleen and sore and achey--let me tell you. I was not ever diagnosed with it--they only checked me for strep throat--but I know I got it too. I had never before contracted it. And I had all the same symptoms as them. We never thought it would go away.
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