I hope that you have made contact with
someone that can give you information
about treatments for myelofibrosis. I
was diagnosed aug 2001 and have had
"stable" blood counts - hemaglobin (hgb)
around 11 -until this fall when the
numbers have dropped - hgb 9.9 end of sept
and 9.2 beginning of nov 2005. I'm
scheduled for a bone marrow biopsy and ct
scan on dec 15th and will get results on
dec 21st. And likely discuss
transfusions then. There doesn't appear
to be any treatments that increase
longevity - except bone marrow/stem cell
transplant if you are young enough.
Other treatments simply treat specific
symtoms. Like transfusions for low hgb.
Do you have myelofibrosis? Some close
to you? Dayxday
