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How Old Are You And Do You Have Epilepsy

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ksbkrzi

New User, Becoming EHEALTHy
Joined: 18 Jun 2004
Posts: 10
Location: Slovenia, Europe

Posted: 06-18-04 19:01pm

Hi, adam!
I'm 40 years old, from slovenia. My first epileptic seizure came when I was 9 and I had troubles till I was 19. Then I lived 20 years without any seizures, but now (oh, I am so dissapointed) they are back ... Be careful when deciding about your career - try to get a degree which will enable you to work at home as I do (translator). You will be spared a lot of trouble ...
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angelbeans

New User, Becoming EHEALTHy
Joined: 08 Jul 2004
Posts: 38

Posted: 07-08-04 23:11pm

Hi, im shannon and im 22, I have had epilepsy since I was 13...
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TSMcPherson

New User, Becoming EHEALTHy
Joined: 05 Jun 2004
Posts: 6
Location: Federal Way

Posted: 07-14-04 13:10pm

Hi shannon,

i'm 41 yrs old, I have had epilepsy since I was 8 yrs old. The seizures started out of the blue only now have I discovered the epilepsy may have been caused my an infection my mother had while she was pregnant with me, it's very difficult to determine the cause. My seizures have been controlled with medication until I reached mid thirties than I started having seizures problems. I suggest if you begin having problems with seizures or your medication is not working for you ect .... Don't hesitate to tell your doctor and expect him to make changes, not have the attitude you have to live with it. Also, eeg are good one way of keeping track but I also suggest mri's they will give your doctor additional information.
Good luck !!
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fswhong

New User, Becoming EHEALTHy
Joined: 31 Dec 2003
Posts: 6

Posted: 07-17-04 03:50am

Hi i'm francis. Has the sickness according to my dad since I was 6 mths old due to fever. Don't know whether if it is true.

Has it until now for 34 yrs. Tried using several types of medication to control it. Also gone for surgery but still has the attacks for they cannot remove some of the affected parts will affect half of my body.
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danceman

New User, Becoming EHEALTHy
Joined: 17 Jul 2004
Posts: 22
Location: Australia
Do You Have Epilepsy
Posted: 07-17-04 09:22am

I have had epilepsy since day 1 for me ( I am now 43)male I did go 8 yrs at one stage without a turn and they came back again, I have tried every available medication as they come out ,some with awful side effects like losing weight (skelton like) insomnia , weight gain,. Some improve my turns slightly but have not yet found that magic pill or comnination of pills to let me be turn free again, my neuroligist wants me to go in for evaluation for an operation but I am extremly scared of side affects and operation , I am interested in reading messages from anyone who has had the operation ,particularly those in new south wales australia.
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ems

New User, Becoming EHEALTHy
Joined: 17 Jul 2004
Posts: 2

Posted: 07-17-04 09:34am

Hey

ive had epilepsy since 7th grade (13), I just had one out of the blue and it's stuck with me. I'm entering my senior year in college (21). I drive..Go out, play field hockey at school, have a great boyfriend and all. Life can be scary, embarassing and complicated at times...But sleep well, eat well, stay drug and alcohol free and you will find that epilepsy is something you can easily live with. Good luck my friend.

P.S I take depakote and love it. Very little side effects-im groggy in the morning
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danceman

New User, Becoming EHEALTHy
Joined: 17 Jul 2004
Posts: 22
Location: Australia
Reply to Ems
Posted: 07-18-04 00:39am

Thanks for your kind words, I do make the most of what I ve got and can do, naturally there are limitations with this problem , but I am actively employed and go dancing(hence my user name) for exercise ,socialising and fun 2-3 times a week and love it . But the thought of a operation ,opening your head up removing a part of your brain is scary,sometimes I wonder is it better the devil you know, because I dont want to find I get memory or periphial vision loss or any bodily function I currently have now. Embarassed
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Alice in Wonderland

New User, Becoming EHEALTHy
Joined: 07 Feb 2004
Posts: 46

Posted: 07-18-04 17:44pm

I'm 44. I live in the usa and have had epilepsy since I was 4 years old.
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Tigerlilyz

New User, Becoming EHEALTHy
Joined: 27 Jul 2004
Posts: 8
Hi
Posted: 07-29-04 14:20pm

I'm 25 and have had e since I was 6 weeks old.
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kelly207

New User, Becoming EHEALTHy
Joined: 23 Jul 2004
Posts: 7
Location: canada

Posted: 07-29-04 15:35pm

Hi, i'm 35, and have officially been diagnosed with epilepsy since I was 15. I say officially because when I had all of my testing done for surgery the doctors concluded that I actually must have been having seizures my whole life and they only became noticeable (because mine are nocturnal) when I was 15. Before that they feel that they were not too severe. As i've grown older though, the seizures have become worse, as well as bouts of paralysis lasting up to 3 weeks after a seizure.
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ksbkrzi

New User, Becoming EHEALTHy
Joined: 18 Jun 2004
Posts: 10
Location: Slovenia, Europe

Posted: 08-14-04 19:04pm

Dear adam 2490,
i am 40 years female from slovenia. I have been diagnosed at 13 too. I try to live normal life (ok, I don't have driving license, since I have fear of driving and get attack), I take my meds regularly, so my illnes is under control. Don't let epilepsy be your "master". A lot of people are having this or that illness and epilepsy is just one of them. Yes, it can be nasty, but still life is offering a lot and really try to enjoy it!
Good luck!
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Kathleen19

New User, Becoming EHEALTHy
Joined: 14 Sep 2004
Posts: 3
Location: California

Posted: 09-16-04 11:18am

I'm 19 and have had epilepsy for about two years. If anyboby wants to chat, you can e-mail or im me at banana oil13@yahoo.Com
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Jenni

New User, Becoming EHEALTHy
Joined: 31 Aug 2003
Posts: 49
Location: PA
Reply to Ems..
Posted: 09-19-04 17:18pm

Im 16 and got diagnosed less than a month ago. I had my first grand mal seizure and it was the scariest thing ive ever been through. The doctors said that ive been having really small seizures for awhile but we never noticed them. I guess im not as scared as I was when I first found out. I cant drive for 6 months now and whenever I get a weird feeling, I freak out and im afraid that im going to have another seizure. Im taking keppra and it makes me soooo tired and weak in the morning and at night. I hate it but I guess its just something I have to learn to deal with.
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