I have a son who is turning two today....
I found out that very day he was born that
I have lupus .... I watched him suffer
and struggle because of something I had
and never knew .... He has since then
grew out of his lupus which was only from
the ammune system from myself the borrowed
as an infant .... And has gotten better
and is a normal little boy .... But now
... I am nine months pregnant with my
daughter .... And females are usually
carries of the disease .... Im petrified
that what she will go through will or
could be worse ... I need to find out
from someone who can help me cope and who
may know a lil something of what im going
through .... I have more problems than
lupus .... Since my son was born ... And
I wouldnt trade him to be healthy again
.... But I would like to know my
daughters chances .... Thanks
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Rebecca Schwartz
New User, Becoming EHEALTHy
Joined: 04 Jan 2006 Posts: 11 Location: Bowling Green, Ky
Neotnatal Lupus Posted: 01-04-06 14:14pm
I began showing symptoms of lupus along
with extreme hypothyroidism shortly after
the birth of my daughter, who is now 4,
but, because the flares seemed to
dissipate, and my thyroid was under
control, I decided not to be checked until
the pregnancy of my third child (now 1).
The flares were almost unbearable during
that pregnancy, and after I had him, he
seemed to be abnormally lethargic, had
frequent uti's, and always had rashes of
some sort. So I did some research.
While my son most likely had neonatal
lupus, a disorder characterized by the
mother's hormones filtering into the baby,
it usually goes away on its own by 6mos.
And it did. Treating the problem could
have caused more problems, such as dire
reactions, etc. But your outlook should
be positive, in that you only have about a
5% chance based on studies to give your
next child neonatal lupus. You and I
just conquered those odds(in a bad way).
Speaking for myself, I had to get my tubes
tied after two emergency c-sections, one
autistic child, and lupus. I only hope
you can have full happy pregnancies
resulting in healthy babies! Your odds
are good!!! :)
