I will make a really long story suckers as
possible. I am 34 female. I have ms and
ra. I had pulse steroid (1500mg) first
week in may over 5 day period. I felt
great, after 6 days had a very heavy
feeling in my chest and couldn't catch my
breath. Er dx severe pneumonia left and
right, upper and lower. Started meds. 1
week later hives started followed by
diarrhea 2 days after that (4-6x daily).
Developed angioedema in my lips and chin.
Back to er. More steroids (100mg) and
epinephrine injection, rx for allegra
180mg. I needed 1 allegra every 14 hrs to
keep the hives under control. My gp says
"no big deal". I went to allergist, no
allergy detected. Went to a dermatologist
had a punch biopsy. Dx plain ole hives.
I change gp's. By this time the biopsy
site is very infected. Derm rx
antibiotic. I see new gp. He says don't
take this new rx because he suspects
c-dificile. So I used polysporin. By
this time I still have hives, horrible
diarrhea and now awful pains in ruq. He
suspects gallbladder. Ultrasound confirms
some sludge, no stones. Hipa looks fine.
I explain this pain is awful but not only
on right side sometimes it is centered
between my ribs, and others it left side.
Majority of the time its right sided.
Stool sample...All looks normal. Now we
enter september. I am having yeast
infection every 3 weeks. Never had them
before. My entire tongue turns a whitish
color but not patchy and I have small
blisters inside my mouth on my tongue and
roof. At the same time as the mouth
thing, I get an awful rash on my chin.
Covers almost my whole chin and it is
blistery and itchy most of the time. I
was prescribed a topical anti fungal cream
for my chin and told to discontinue
nysatin cause it doesn't look at all like
thrush (the cream has not helped nor has 3
day dose of diflucan). I am told to
gargle with hydrogen peroxide. I have a
stiff neck, sore mouth, diarrhea and
horrible bloating in my stomach. And
headache, hives seem to be slowing
significantly. I have my first appoint
with a gastro next week. I also am 5'3"
and usually weigh about 140. But I have
put on about 40 lbs in the last 4 months.
(i'm hoping its leveled and will start to
fall) I have been researching to try to
figure out what kind of a doctor to see.
Should I see an infectious disease
specialist? An endocrinologist? I have
gone through 3 internal medicine doctors.
None which have referred me anywhere. My
latest doc wants to treat me for c-dif
even though stool sample was negative. I
hesitate because I see all the side
effects ( most of which I already have)
and I don't want any future dr or
specialist to blame flagyl(sp?) for my
symptoms which have now been around and
escalating for 5 months.
I am concerned I may have a staph
infection or a fungal infection (maybe
from pneumonia in may?)
i would owe my life to anyone who could
provide me with direction on what type of
doctor I need.
Thanks and sorry so long
mary
|
liezab
New User, Becoming EHEALTHy
Joined: 16 May 2006 Posts: 2 Location: ky
Thanks: 0
Thanked:0
Posted: 05-16-06 12:14pm
I am seeking a competent Dr. Also for
staph. You be courageous and make sure
you live....Not die...Now is where the win
lives.........In your 'fight', be it with
haughty yes-men that say it is fine, or
the finest specialist on earth. You can
set your mind and body to new levels of
determination....I know....I do this
also.
My next idea:
find out physicians name of a third party
I must first locate......That was treated
with i.V. At a hospital successfully.
(ironic disease.......You go where you got
it to get rid of it, and you have it
everywhere...But...
You can 'catch it'?)!
Quickly go there and hope that 7
antibiotics later.....Someone will
listen!
If that fails.....I think that the
health department may actually take
someone saying these bacterial diseases
more seriously than the personal Dr.
Someone is out there knowing about the
genes and all the breakdowns of the
breakdowns....Lets keep on until we find
"that guy".
I do not have insurance, so each try makes
me feel like I just bought rotten
groceries!
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