Anyone have von willebrans here? I have
been told my whole life that I have it but
when I got pregnant I was tested again for
it and it was gone. I was told that
pregnancy can sometimes reverse it. Does
that mean just for the duration of my
pregnancy or is it gone for good?
|
tupperbaby24
New User, Becoming EHEALTHy
Joined: 10 Sep 2006 Posts: 3 Location: California
Von Whilderbrans Posted: 09-10-06 04:56am
Hi there,
my name is kristina and I am from
california. Both my boys have this and
so does my mother in law. I have always
been told that one of the things about von
whilderbrans is that your platlets will
work fairly normal sometimes and not
normal others. With my kids I have
always just taken the extra procautions
when needed since you don't know when they
are working or not. The same thing with
my mother in law. Any time she has had a
surgery they have a hemotologist there and
they consult with him pre-operatively and
sometimes there is medications to take
before or after surgery to help increase
the effectiveness of the platlets.
One of the things that has always bothered
me is that they believe that there is a
factor in my mother in laws blood
(possibly what caused the von
whilderbrans) and that my father in law
must have the same gene just resesive or
something like this which caused my
husband to be born with an even more rare
and devistating blood dissorder. Hwas
born with glanzmans thrombasthenia which
only about 18 or so people have in the us
and canada and with this disorder his
platlets are there, just on average 97%
don't work. We have been told that this
is one of the things to be concerned about
in the future with our children and there
future partners (that they could have a
child with the same problem as my
husband).
My best guess is that your problem didn't
actually go away, but that your platlet
function has just been more functional.
I would definately contact a hemotologist
to know more specificly. But I have
always been told this is a life long deal,
not something you can just get over.
Sorry if this isn't exactly what you hoped
for.
Good luck
|
lil_blaze2004
Moderator
Joined: 29 Oct 2004 Posts: 6492 Location: ,
Thanks: 1
Thanked:0
Posted: 09-11-06 10:01am
Thanks for the reply. Funnily enough, my
14 month old son was tested last week and
I am awaiting a reply but so far mine is
gone. So I guess we'll see.
|
Reddwolf
New User, Becoming EHEALTHy
Joined: 04 Mar 2007 Posts: 3
Posted: 03-04-07 15:15pm
I have von Willebrands too. I was
diagnosed last year but I always supected
before that I might have it because I've
always bruised really easily, and my
sister was diagnosed with it a long time
ago so I thought I might have it also.
Luckily it is pretty mild for me, my
sister's is a little worse so she has to
be tested before any medical procedures to
check her clotting time. I think our
mother probably has it (she also bruises
easily) but she's never been tested...
Does
anyone here use a medical ID bracelet? My
hemotologist said it would be a good idea
to get one so I did but I'm not sure if
it's really necessary since I have the
mild form.
|
sarahannemarie
New User, Becoming EHEALTHy
Joined: 22 Oct 2007 Posts: 1
Posted: 10-22-07 06:28am
i dont think youd need too use a medical
ID braclet .. im only 13 and i dont have
one
|
Murph
New User, Becoming EHEALTHy
Joined: 25 Nov 2007 Posts: 1
Hi Posted: 11-25-07 20:50pm
Hi my son (who is 4)has von willebrans.He
got diagnosed when he was 2.My dad has it
.I dont but have a factor 11 defiency
which josh has 2.My other child who is 18
months has been tested and they said he
has not got it.I have been told he will
have it 4 the rest of his life which was a
shock.He has had blood transfusions
because we live in a small town and the
hospital didnt know what it was.Everything
sorted now and he gets proper
teatment.Diseases get better when you are
pregnant.I am epileptic and that
dissapered in both pregnancies but came
back.The docs told me there is a 50 50
chance my children will have it.I would
like to meet other people with the same
problems.Feel free to message me.Hope this
has been helpful.
|
mamma4
New User, Becoming EHEALTHy
Joined: 13 Feb 2008 Posts: 2
Posted: 02-13-08 19:23pm
I am a 32 year old mother of four. I was
diagmosed when i was 12. the first 2 years
after i was diagnosed i spent alot of time
in and out of the hospital recieving
plasma. I was told that i would never be
able to carry a child to full term, guess
i proved them wrong! I had complications
with delivery with 2 of my children so i
say 2 out of 4 isnt so bad! I suggest to
anyone who may be pregnant with the
disease to talk to her doctor about doing
a bleeding time prior to delivery.
The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made.
Schizophreniahealth
This page was last updated on June 11, 2008
Does
anyone here use a medical ID bracelet? My
hemotologist said it would be a good idea
to get one so I did but I'm not sure if
it's really necessary since I have the
mild form.