Joined: 04 Dec 2003 Posts: 1 Location: DAYTONA BEACH,FL
New Diagnosis of Grandson Posted: 12-04-03 21:36pm
My grnanson has been in arnold palmer
childrens hospital for 4 days. He was
finally diagnosed with epilipsy. He is
having numeroys seizures daily and
medication is not seeming to help .They
say they will wait until the week-end to
see if there are any improvements and if
not, they say the will put him into a coma
for 7 to 10 days to prevent further brain
damage. His seizures are hard to
recognize, he loses focus and goes into a
blank stare and his body becomes
motionless.
I would like to hear from others that have
had this type of treatment
grandpa
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
What Kind of Sizures? Posted: 12-08-03 00:29am
Hi, are they gran mals is
your grandson with a neurologist
have you had a 2nd opioion i'm
sure you are checking all your options. I
have never heard of putting someone into
coma to stop more brain damage.
I was 39 when I was diagnosed with epy
and tried so many different drugs. Went
to 5 neuros and ended up at u.C.Davis. 4
years later I had brain surgery june of
2002. I'm about 70% better. They told me
my chances would be 40 to 60% I would not
have anymore sizures. The other side I
would have them. So now i'm on keppra as
of 6 weeks ago with topamax. Ihave been
on top for about 4 years. No sizures so
far. I'm back to work at my same job
after 2 years off. Only part-time. They
want me to wait the 6 months till I can
start driving. So let me know how you
g-son is doing. Jamie
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pj34
New User, Becoming EHEALTHy
Joined: 07 Dec 2003 Posts: 4 Location: Alabama
Posted: 12-08-03 00:56am
Hi, I am new to this board, and to
epilepsy!
I am not sure what kind of seizure your
grandson is having, but it sounds to me
like absence seizures. My daughter has
the same symptoms!
She was diagnosed just this past oct.
Is your grandsons seizures a result of
fever? ( febrile)?
I to have never heard of doctors putting
into coma! If his seizures are absence
seizures, there is little fact that it
will cause brain damage!
Have they done a eeg since he has been in
hospital? This will show if there is
brain damage! It can also show if there
is a history of seizures!
Please keep us posted as to how he is
doing!
Best wishes... Pj
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Eeg, M.r.i. Posted: 12-08-03 14:04pm
I have had both of these several times in
the past 6 years. And also sleep
depervation for 3 days, hooked up to a
monitor and vidieo. They did alot of
testing for 6 months before I had my brain
sugery. So they first have to know where
they are coming from. Mine were coming
from my right frontal lobe. They think
due from maybe a blow from the head in
1977 from a car accident, spinal
menitigtis when I was 6 months old, or a
bad case of measles when I was 6 years
old. They can't pin point it. But I
started noticing after the accident I was
having the petit mals once in awhile for
the first 10 years. Then they kept coming
on more and more the last 10 years and
boom it hit the 1st gran mal when I left
my marriage (bad). In 98. So just try to
find out any infor about your g-son health
history. Take care jamie
is
your grandson with a neurologist 