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Insight From Someone With Seizures

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New User, Becoming EHEALTHy
Joined: 25 Jul 2003
Posts: 3
Location: utah
Insight From Someone With Seizures
Posted: 12-06-03 19:14pm

I've had siezures since I was 8. I am now 30. There are always times when it is tough. (peers, family, misunderstandings, etc.) however, for me, I have learned a few things that affect my pet. Mal and grand mal siezures: 1. Tv/computer frequency. ( only on certain ones, usually the older ones) 2. Aspartame and like products. 3. Food that I eat. I usually do better when I have a balance on fat and vegetables. I don't do well with sugar sweets. 3. But probably one of the biggest factors for me it getting my sleep. If I don't get enough sleep most every night. I will eventually have a siezure.

A few things that may help some of the family members/friends of loved ones with siezures: it's not always that bad. For me it feels like i'm taking a nap. Sometimes after a serious seizure I feel like a had a wonderful full body massage(because of tensing and relaxing of the mussles). It looks worse to those around me. I might loose my memory at times, or not have very much energy, but remember it doesn't mean that i'm dumb. I have a rather high iq. Many people that I know, with epilepsy, do to.

I found ways to deal with it by finding a job that I can be self employed. Worked out situations so I always had someone to take me around to run errands etc. I have just worked myself into a situation so I am self efficient. Another idea: try getting in touch with your local rehab center some times they can help with financial aid and employment.

P.S. For me, when I was going into and during parts of the siezures, I could hear extremely well(at times), but I couldn't always respond. One thing that helped me to pull out of a siezure was when people around me started asking me questions. It seemed to help me get my train of thought back on track.

Good luck.

I hope this can help others, i'm not an expert, but I know what works for me.
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