Epilepsy Forum - Avm
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chrisp22

New User, Becoming EHEALTHy
Joined: 20 Oct 2005
Posts: 3
Location: england
Avm
Posted: 10-25-05 13:38pm

Hi to you all I have just joined the site, I have a cavernous heamangeoma in the centre of my brain, I have been told that nothing can be done as an operation would be to dangerous, I was diagnosed in may 2000 when I had my first stroke due to a bleed, I have had quite a few problems since but learning to cope, I will be keeping up with the site and reading your postings. :)
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Queen of Complications

New User, Becoming EHEALTHy
Joined: 24 Oct 2005
Posts: 13
Avm
Posted: 10-25-05 14:01pm

Hi,

i had an avm removed in jan. Of '86, though mine was located left temperal lobe... If you ask me, any surgery is risky, but sometimes worth trying... I'm only guessing here, but I can't help to wonder maybe they choose not to do surgery because of the location of it? Like yourself, i've had my fair share of strokes as well and they're no fun... Have you seen more then one neuro about this? And, are you currently, or have you ever, been on any medication?
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chrisp22

New User, Becoming EHEALTHy
Joined: 20 Oct 2005
Posts: 3
Location: england
Avm
Posted: 10-25-05 15:28pm

:) yes I have had second opinons, but because it is in the centre of my brain and the avm is combined with healthy blood vessels, doctors say that the risk is far to high. At the best I would be left with a lot more dissability than I have now, at the worst I would not make it through surgery( nice !) thanks for your reply, I am on meds for temporal lobe epilepsy, but as this only happened when I had my first stroke, and I do not seem to have any problems with that, I am now asking the docors if I can come of the meds.
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