My daughter began experiencing unusual
night time behavior about a year and 1/2
ago. She was six at the time. She had
what Dr.S seem to agree was a febrile
seizure. Two days later she had a similar
episode which have continued several times
a month since then. Before this she had
never had any sleeping problems and has a
strictly adhered to before bed routine.She
has had a 3 day veeg which showed nothing
as no events happened while she was there.
Since they did not observe it during that
time our neuro. Said it was most likely a
parasomnia and not to worry. We still
have lingering doubts as to this
diagnosis. A typical episode is as
follows. Awakens approx. 90 minutes
after falls asleep. No screaming, but
rapid heartrate, feelings of fear,pale
face. Gets up and wanders purposefully
while doing repitive hand movements
involving picking at clothes, rubbing
mouth and face,smacking lips,spitting
gestures and excessive saliva. She will
communicate with us with difficulty. She
says something is wrong, things look
funny(sometimes she says everything is
small and out of proportion) all the while
rapidly picking, rubbing face, gesturing
and feeling very fearful but cannot
verbalize a reason. She will always start
farting and rumbling tummy in the middle
of this ( I know it is kind of funny) the
episode ends suddenly(it lasts a total of
3-5 minutes) and she frequently looks
spacy while rubbing nose with right hand
vigourously and sometimes coughing. She
will then fall back asleep or sometimes
just come out of it and talk to us for a
moment before sleeping. She has no memory
at all of event even immediatly following
and wonders why she is not in her room.
Have any of you or your children had night
terrors/confusional arousals which fit
this pattern? Many of the symptoms seem
to overlap with temporal lobe seizures.
Each episode is virtually identical. Any
input is appreciated.
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Posted: 11-05-05 17:46pm
I have a bunch of questions. What kind of
doctor did the study? Has any doctor
discussed the possibility of complex
partial seizures? It is possible to have
a normal eeg (most of my sons have been
normal, never catching a seizure on it.
He has had some that were abnormal as
well.).......
What you describe sounds to me like a
complex partial depending on a few
things.
1. Does she remember anything about this
the next day?
2. How is she when she wakes up?
3. Does she act or seem different on the
mornings after she has this happen?
She can have a regular sleep study to help
rule in or out parasomnias. Usually an
eeg is not going to see all that a sleep
study does as far as the various sleep
parasomnias.
My son has epilepsy as well as periodic
limb movement disorder. He had a
misdiagnosis of parasomnia for 2 years.
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This page was last updated on June 11, 2008
