Hi,
i was diagnosed in november 2003. I had
what was diagnosed as uveitis during
summer of 2003 and experienced tingling on
entire left side (not the face) in
november 2003. I was treated with steroid
drip. Mri showed multiple lesions.
Spinal fluid showed no antibodies. I
started on betaseron in january 2004. Six
weeks after starting the betaseron I
experienced sensory symptoms (lost
temperature sensation) in right hand. At
this point I have a lot of numbness on
large parts of my body and I experience
persistent tingling in my left hand (and
loss of some strength and dexterity in
that hand). I may be experiencing some
decline in cognitive processes but i'm
also getting older. My question...Has
anyone else experienced only sensory
symptoms and feel you may have benign ms?
Did you start/are you staying on your abc
drug? Have you discussed the issue with
your neurologist? Would love any feedback
or discussion. Thanks. Beth
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deric
New User, Becoming EHEALTHy
Joined: 15 Sep 2005 Posts: 3
Posted: 11-26-05 11:17am
Hi I was dx in spring of 2000 with on, had
an mri..All my sensory sx are very weak
and only last minutes at a time ie
numbness, needles/pins..Think i'm between
benign/rr 2 symptoms i'm not sure about
attaching to the ms are ear ringing and
some erectile dysfunction that I later
learned could be ms symptoms..I take no
abc drugs just have used diet/supplements,
my neuro told me to wait on the meds as
did my gp. Deric
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bag351
New User, Becoming EHEALTHy
Joined: 16 Nov 2005 Posts: 2
Benign Ms Posted: 11-27-05 01:48am
Deric,
thanks for your input. When I was
diagnosed the abc drugs were a given.
My neurologist never suggested waiting to
assess the course of my illness. I'm
seeing another neurologist this week who
thinks that you can predict the course of
a patient's ms. He believes millions of
dollars are spent treating patients who's
ms would follow the same course with or
without the medication.
I've heard that ed can be a consequence of
ms. Ear ringing sounds like it could be
a consequence of ms. Best of health and
post more about your use of alternative
medicine if you get a chance. Beth
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oopoopoop
Extremely EHEALTHy
Joined: 18 Mar 2004 Posts: 1363 Location: ,
Thanks: 58
Thanked:3
Posted: 11-29-05 07:16am
Two years ago I was diagnosed with severe
optic neuritis. Although I am at high
risk for ms, because my father had it, my
consultant advised me to wait to see if
any other symptoms develop before doing
any tests. No drugs at all were
prescribed.
Since then, I have been taking high doses
of vitamin d, plus linseeds, lecithin, and
essential fatty acids. So far (touch
wood) I have had no other symptoms, other
than very poor short term memory which may
or may not be related.
It does seem, if you look around, that a
lot more people have some minor versions
of symptoms associated with ms than are
actually diagnosed with it, no different
from what some of the people with "benign
ms" seem to have, but without having
bothered to look into it. The either/or
of ms may be wrong -- it seems that there
is a very big continuum of symptoms, and
some of the people who are being medicated
might never have had any progression.
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deric
New User, Becoming EHEALTHy
Joined: 15 Sep 2005 Posts: 3
Posted: 11-29-05 22:04pm
Hi poo, mine was severe on too! I have
taken to a veg diet since dx and use
hempseed oil as my essential fatty acid
atleast twice a day. I agree my gp even
said how do you know if your treating a
remission and praise the meds. For benign
ms I feel the best cases never become a
stat because they never see a Dr.
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luckyMSgirl
New User, Becoming EHEALTHy
Joined: 03 Nov 2007 Posts: 1
Thanks: 1
Thanked:0
Anyone Like Me? Posted: 11-03-07 09:26am
Was diagnosed in 1978, sole symptoms were
numbness, tingling and optic neuritis. No
follow-up symptoms until August of this
year -- yeah, close to 30 years
symptom-free. Tingling and numbness only
this time, responding nicely to preds.
Has anyone on this network had this sort
of experience? Just curious.
I was so relieved to read your letter. 32
years ago I was diagnosed as having MS
after a bad bout of numbness and tingling
but wasn't TOLD of the diagnosis. I was a
young mum of 22 so the doc decided to tell
me I had some viral complaint and see what
happened. Three years later I began to
loose my hearing and have bouts of vertigo
but I had changed doctors & moved to
the other end of the country and no
reference was ever made to that earlier
diagnosis. I finally got hold of my own
medical noted just a few weeks ago and
read the truth. Now I can track all the
little episodes of vertigo, gradual loss
of hearing, leg pains etc over the years,
but my present doctor refuses to consider
MS as she says I am too well!!! At the
moment I'm going mad trying to get someone
to take me seriously.
Who can I talk to???
