Is This Trigeminal Neuralgia? Posted: 12-13-03 18:13pm
I wanted to see if anyone could tell me if
thi is trigminel neurolgia? I have had 2
differnt episodes now where I get this
excruciating stabbing pain in the left
side of my head above the temple. When I
get this pain, the painh is so intense
that I actually get a chilling sensation
that runs through my body, atleast thats
what it feeld like is happening. Can
someone just let me know if this is what I
am experiencing, and if not then do you
have any idea as to what it is? I have an
appointment to go and see the neurologist
but that will not be for another 1 1/2
months. Also, how dangerous is this
trigeminal neurolgia? Whatever the pain
was that I have experienced, it really
scared me, I never felt anything that
intense before. Please help me.
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kevin1965
New User, Becoming EHEALTHy
Joined: 03 Feb 2004 Posts: 10 Location: detroit,mi
Trigeminal Neuralgia Posted: 02-04-04 03:02am
A simple blood test will find out if its
trigeminal neuralgia, I know because I had
my doctor check me for it which came up
negtive. But I think we got the same
systoms because sence 06 of 2002 I get a
mild pain on the right side of the head
along with electriclike shooting pain and
chills that run through my body. Had cat
scans done on my head and other blood test
so far negtive. Im still trying to get
them to send me to a neurologist plus to
get a mri done. Trigeminal neuralgia is
not dangerous from what my doctor told me.
If you want you can e- mail me or let
me know how it turns out.
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poochie
New User, Becoming EHEALTHy
Joined: 06 Apr 2004 Posts: 2 Location: puerto rico
I Have Been Having Spasm Like Pain In My Left Jawbone Posted: 04-06-04 10:27am
I am wondering my friends if this is
trigeminal neuralgia also. My symptoms
happen when I am asleep, I am awoken by
this terrible intense throbbing in my
jawbone, I cannot open my mouth, close my
mouth, if I lift my head up, the pain
intensifies in my jaw, I have checked with
the dentist no problem, and have had
x-rays. Negative. My jaw actually feels
as though it will explode with pressure.
I am on the floor crying like a baby for
mabe 25 minutes until it goes away. These
symptoms happen every couple of months
mabe 2 or three. But sometimes I will
get it 2 times in one month. The
soreness goes away about 3 hours after the
initial pain. It feels as though some one
has punched me in the jaw, and I once had
a light red mark there. I am scared that
this pain will come back, some times I
wonder when it will, I am positive it will
come back, thats the scary part. In all
my life my friends I have never had pain
such as this. And I have had children
. I would consider
it a priviledge to keep in contact with
you both to know how you are doing and
mabe we can compare notes, I truly do not
know what triggers it. God bless
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pegasuslegend
New User, Becoming EHEALTHy
Joined: 22 Jun 2004 Posts: 2
Tn Or Atypical Face Pain Posted: 06-22-04 07:04am
You dont say if you ever had extenstive
dental work, alot of what I have
researched on both these issues have
started from dental trauma like root
canals extractions and so on. I had a
bridge, crown work and several root canals
last year, this year again I had new root
canals started on the crowned teeth that
were never bothering me before, and then
the bridge ached all the time, the root
canals failed had the bridge and teeth
extractioned and am left with aching pain
in my jaw bones and inflamed gums, this is
horrible pain all the time, some time it
let up. I have been on antibotcis,
nothing helps, they are now looking at
atypical face pain, since tn is sharp
lightening bolt pain, it sounds like to me
you have a similar pain, however
ibuprophen helps mine which is very
unusual to nerve pain to respond too. So
no one has concluded what this is other
than dental trauma, its been two months ow
and no let up. I am going to my regualr
gp he wants to put me on neurontin, I am
not an advocate for drugs at all my body
always give me problems on them, so I am
going to try to find someone in the
homeapathic field to help me/ I would love
to know if this could be a bone infection
since thats what this feels like. Good
luck to you hope you get better too
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poochie
New User, Becoming EHEALTHy
Joined: 06 Apr 2004 Posts: 2 Location: puerto rico
Posted: 06-22-04 14:30pm
I recently took an x-ray of my sinuses,
guess what it is guys, I have a cyst in my
maxillary bone, also with cronic
sinusitis, it is the last thing I everr
thought of. I hope all of you check for
that possibility too. Im going to see my
ent in three weeks. God bless you all.
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pegasuslegend
New User, Becoming EHEALTHy
Joined: 22 Jun 2004 Posts: 2
Wow Thats Something No One Would Expect Posted: 06-22-04 20:50pm
What will they do for a cyst there? Is it
dissovleable? Did your teeth also hurt
with this problem? Thanks god they found
it...God luck and keep in touch
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flowers
New User, Becoming EHEALTHy
Joined: 02 Jul 2004 Posts: 1 Location: new york
Neuralgia Posted: 07-02-04 10:45am
Well I was diagnosed with neuralgia; be
careful what medication is given, u can
suffer an alergic reaction to them. I
would like to refer a neurologist Dr.
Jeffery cohen, he is a 170 east end ave in
new york city; he is affiliated with beth
isreal hospital. The pain can be bad,
but I was told not life threatening currently I am
on, neurontin 300mg. It works, but be
patient, results take about 2-3 weeks!!
My pain went into remission for about 1
year then came back I
have had the pain now every day, for about
3 months I am hoping the
pain will go again with the treatment of
neurontin now being used again..
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speediebean
New User, Becoming EHEALTHy
Joined: 02 Jul 2004 Posts: 2 Location: USA
Another Trigeminal Neuralgia Sufferer Here Posted: 07-02-04 13:38pm
I can tell ya from my own personal
experience, tn pain is nothing to sneeze
at!! My first experience with it was
over 12 years ago, when I was 28 years
old. It hit like an ocean of lightning
bolts rolling over the shore of the right
side of my face, over and over and over
again, with no end in sight. The pain
was beyond excruciating, sharp jolts that
waxed and waned like waves. I went
through dental procedures, including root
canals and an extraction, then treatment
for tmj. The mouthpiece that was made
for me to wear at night was the worst
thing ever!!!!!!!
I was working at a long-term-care facility
at the time, and one day, while doing
rounds with one of the doctors, one of
those 'attacks' hit me.
He asked me to describe it to him, and
when I did he said, "if it is what I think
it is, then god help you" (yes, quote!)
it was, and I ran the gamut of all the
medications that were being used at the
time, all to no avail. The doses that
relieved pain were toxic to me, I had
horrendous side effects, or the relief was
very short lived. Next step: partial
neurectomy. I've had 65% of the first
branch removed, 75% of the second branch,
and 85% of the third branch removed (on
the right side).
While there was pain relief, I was left
with a perpetual numb right side of my
face, as though I just left the office of
a dentist who got a little needle-happy
with the novacaine. Oh well, at least no
more tn pain!!
Wrong!! Now, 10 years later, it's back
with a vengence on the left side of my
face. I am currently on tegretol (again)
200mg bid, and baclofen, 5mg tid, and a
total zombie. Yes, even at such a low
dose, it's got me zonked out big time!!
Today is my first day of this dose of the
tegretol, so i'm hoping that the effects
will calm down over the next few days.
The Dr. Says that, if this is not
effective, (which, btw, it's not; I am
still having the pain) then it's back to
the neurologist.
I'm wondering; have any of you had any
luck with acupuncture for this!?
I am seriously considering it (as
everything else short of having a hole
drilled in my head seems to do no good)
but i'd like a bit of info first.
If any of you have anything to share about
acupuncture for tn i'd love to hear about
it!!
. I would consider
it a priviledge to keep in contact with
you both to know how you are doing and
mabe we can compare notes, I truly do not
know what triggers it. God bless 
I
have had the pain now every day, for about
3 months 
I am hoping the
pain will go again with the treatment of
neurontin now being used again..