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My Husband Died From Lupus Only 2 Months Ago And Know I Find

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bubblez1322

New User, Becoming EHEALTHy
Joined: 23 Nov 2005
Posts: 2
Location: Florida
My Husband Died From Lupus Only 2 Months Ago And Know I Find
Posted: 11-23-05 12:31pm

Out that our 2 yr. Old son also has lupus!

I just fell so confused, they told us that we wouldn't know for sure untill he was 5..

He has to take a baby aspin everyday, he doesn't understand why mommy gets so scared when he gets cut? I feel so overwhelmed...Anyone else have a child with lupus?
My husband was 26 yrs old when he died
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Georigia13

New User, Becoming EHEALTHy
Joined: 26 Oct 2005
Posts: 4
Location: Antiqua
I Am So Sorry to Hear
Posted: 12-16-05 05:46am

My sympathy goes out to you. How long did your husband suffer with lupus and what complications did he die from. I hope these questions are not too hard for you to answer. Don't worry too much about your son and getting cuts I havent herd about cuts causing a problem with lupus patients and if he does have lupus since he is diagnosed early he may have a much much better chance of not developing this sickness. I wish you much luck.
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bubblez1322

New User, Becoming EHEALTHy
Joined: 23 Nov 2005
Posts: 2
Location: Florida
Re: I Am So Sorry to Hear
Posted: 12-16-05 12:48pm

georigia13 wrote:
my sympathy goes out to you. How long did your husband suffer with lupus and what complications did he die from. I hope these questions are not too hard for you to answer. Don't worry too much about your son and getting cuts I havent herd about cuts causing a problem with lupus patients and if he does have lupus since he is diagnosed early he may have a much much better chance of not developing this sickness. I wish you much luck.


wow, thanks so much for responding..He found out he had lupus at 18 when the actually blood clot hit him in his lung,they took out half of the lung b/c of it, he was in a coma for 9 weeks..They thought he was dead..But he did surive, he died b/c a recurring blood clot in his leg that had broken off and traveled to his lung..He was dead for he knew it hit him.
Yes, we have been seening alot of doctors that deal w/ lupus..But they don't understand how a 2 1/2 yr old has this...They are doing a good job a manging this deasise.
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Georigia13

New User, Becoming EHEALTHy
Joined: 26 Oct 2005
Posts: 4
Location: Antiqua
Thanks For Your Reply.
Posted: 12-21-05 13:21pm

Once again I must say that I am very sorry to hear about the death of your husband. As a lupus patient we never like to hear when someone dies. However, that is the harsh reality of the sickness. I too suffer from blood clots. I was rushed to the hospital with severe pain in my lung area but the doctors did not realize I had a blood clot at the time. However, further testing showed I indeed had one. I have been on blood thinners ever since and my doctor told me I will be on them for life. I hope your husbands doctor had put him on thinners.

If your son is taking blood thinner then yes you need to be careful with him having cuts. I am really very sorry to hear that your son at such a tender age has to deal with this ordeal and I really wish you all the best.

How old was your husband when he died?

Please try to hang in there and make prayer a part of your day to day activity. Bye for now. Please reply if you can.
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BlakkStarr1

New User, Becoming EHEALTHy
Joined: 27 Dec 2005
Posts: 12
Re: My Husband Died From Lupus Only 2 Months Ago And Know I
Posted: 01-02-06 20:26pm

bubblez1322 wrote:
out that our 2 yr. Old son also has lupus!


I just fell so confused, they told us that we wouldn't know for sure untill he was 5..


He has to take a baby aspin everyday, he doesn't understand why mommy gets so scared when he gets cut? I feel so overwhelmed...Anyone else have a child with lupus?

My husband was 26 yrs old when he died
.

My condolences on the death of your husband. I am curious as to why your son is on aspirin. I, too, was diagnosed with sle 7/05. My first problem with lupus was a drastic decrease in my platelets, which are needed for clotting of blood. I am still on prednisone for the low platelets.
Although your husband had developed blood clots, does the doctor feel your son is also prone to developing clots?

Good luck to you and your son. Hope all goes well for him, and you, in the future.
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