Epilepsy Forum - I Have Epilepsy............


I Have Epilepsy............

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Randi03

New User, Becoming EHEALTHy

Joined: 07 Aug 2003
Posts: 7
Location: clovis

I Have Epilepsy............ Posted: 08-07-03 01:01am


I have epilepsy and it really bites I am 18 years old and cant do anything I have already worked but I had a seizure at work, I cant drive becasue the dmv wont let me drive, I cant watch flashy lights and thats like all the movies nowa days or go to parties or anything. I feel like there is nothing else for me to do im only 18 and I dont know how to go on disablity if I can. I hear that students that have a disorder with their brain like epilepsy have to be in a class that is their pase I cant think like all the other kids can im not as fast thats why my grades were like c's and d's then I finally dropped out and graduted at an adult school. People with epilepsy dont remember alot of the stuff that they were taught so how can we study for a test and then take one if we cant remember it. I just dont know what to do anymore

asmita

New User, Becoming EHEALTHy

Joined: 16 Aug 2003
Posts: 3

Posted: 08-16-03 08:39am


Hey randie, I am an epiliptic......And the first thing I wud say is "get those thoughts off ur mind"...... There is sumthn great about the human mind.......We have the power to do what we want how we want and wen we want......I don't know if u are aware of it or not or wether u will believe me or not but we have sumthn called as a subconcious mind.....The more u tell urself that u can't do it never will u be able to do it!!!! The battle of life is all in the head....I personally know ppl who have cured their own brain tumors with their will power itself.....And u say that ppl wid epilepsy can only be in a classroom....Welll life is not aall about driving or moovies there is much more to it.......So wat if ur grades have fallen make an effort the more u think that u cant do it u wont be able to do it even if u have the capcity to do it!!! Make sure u tell urself that u will do it and watch the difference......And remember epilepsy can be won by will power....Trust me on this there are things out there u can jes win so reach out cause noone can do it for u unless u wanna so it urself!!!!! Take care :d

drdorrin

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Joined: 18 Aug 2003
Posts: 2
Location: Vallejo, Ca

There Is Hope For Epilepsy Posted: 08-19-03 15:54pm


Hey randi- there is hope, believe me! I've had epilepsy for 13 years now, and I absolutely refused to let it destroy my life. (i'm 40 and was in an accident.) you just have to find other ways to do things. I can't drive either, so i've learned to depend on buses and other people. You ask if you have to be in a special class? No, I don't believe so; I was never in one (and I had seizures when I went to chiropractic school). You just have to tell the teacher that you have them and what he/she should do. And i'd advise you to make friends with someone in the class and tell him/her what to do. Then you're covered. You say your thinking is slowed down--believe me, you're not the only one with that problem. It helps if you find someone to study with; to pound the stuff into your head. That helps more than you would believe. It upset me that my grades weren't as good as they'd been when I went to college, but hey, I lived. Just remember, other people have much worse problems than you do...

Dian40

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Joined: 28 Sep 2003
Posts: 5
Location: Pennsylvania

I Have Epilepsy Posted: 09-28-03 03:15am


I have epilepsy and have so since I was 7 yrs old. Now 40, I guess I have learned to deal with all different facets of life. I think at this age I have sort of learned to be so greatful and look at life different then those who dont have to deal with a disease. I am a financial mgr of 2 large auto stores ... Happily married....And have raised my two wonderful sons now 16 and 18. So now I face epilepsy with menopause I guess. Yea its back to the neurologist for me this tues. I am scared ....I guess some days go by where I believe I have this thing beat..... so here I go again .....But I will not let this defeat me......I have come too far in life .... You whom all face this illness......Are in my prayers i still consider myself blessed

feelgood

Experienced User , Rather EHEALTHy

Joined: 09 Sep 2003
Posts: 56
Location: Calabasas

Thanks: 2

Thanked:0

Posted: 09-28-03 15:25pm


Hi randi, your medication and the right dosage is verry important...So, keep in touch with your doc and maybe he needs to change either your med or the dosage, that makes a big difference..My doctor says that if your on the right med and dosage you should not have any seizures, but remember all meds have side effects, so you just have to find one that works for you...Now i've been on all meds and my doc says "do you want to have your life back?" then have the surgery.....................Take care, susan

Cynthia Lombardo

New User, Becoming EHEALTHy

Joined: 19 Sep 2003
Posts: 14
Location: Crossville,Tennessee,U.S.A.

Hello There Posted: 09-29-03 18:39pm


I can understand how you feel,but you can't let this stop you from anything in the world.Ok,no matter what anone tells ya,ok.You take your medicine,and just do right,ok.The light bothers me,but I wear sunglasses all the time,you learn to deal with these kind of things,it's really easy too.I had a hard time in school,but I didn't go to no speical class though.As a adult now.I still go out,cause i'm single,but I don't drink,if you think you have to drink to feel like you fit in,your in the wrong crowd,your friends should respect you,and you health ( life ) instead,good luck..Cyn

Dian40

New User, Becoming EHEALTHy

Joined: 28 Sep 2003
Posts: 5
Location: Pennsylvania

I Have Epilepsy Posted: 10-01-03 09:15am


wow I just went to the neuro doc and after 30yrs of living with this disease it amazes me in how little they have learned. So now he wants to change my meds to zonegran .....Instead of tegretol ....Has anyone had good results or negative with this med? I am also being sent for an eeg and mri with contrast .....Gosh I am so damn depressed. I hate this disease. You know just when you think you got it covered .....Then this. I understand my doctors reasoning and it has been over 15 yrs since I had an eeg .....But tell me.....What new can they see? I know I have experienced some recent changes since I am 40 and pre menopausal gosh I am hurting this morning at work with a lump in my throat this morning

amavone

New User, Becoming EHEALTHy

Joined: 09 Nov 2003
Posts: 1
Location: Mozambique

Posted: 11-09-03 21:10pm


Hey! I am 39 years old and I have been epileptic for the past 19 years. My friend there are restriction of course for what we can do as epileptics. But that is not to mean that we should take a misreable life because of it. For all this time I have learned that in most cases we suffer more with the social environment than because of the disease itself. I mean that we normally suffer because of the way people treat us. Therefore what you should learn is how to deal with this people. You should prepare yourself not to suffer with the way people will treat you. Of course people will try by all means to treat you differntly but you should be strong enough to igonre it and show them that you can make it. :p

jamal

Experienced User , Rather EHEALTHy

Joined: 05 Nov 2003
Posts: 60
Location: oroville,Ca

Ahng In There Posted: 11-15-03 23:16pm


Randi, im 44 and found out at 38 that im a epy to. Ive been thru caca to!!!!!!! Cant drive anymore lost my job 0ver 2 years ago because they could'nt control them with all the different meds they put me on. The 4 docs that I went to told me would I go for brain surgery? I thought they were all f-------ing crazy. Well here I am today. I had brain surgery june of 2002 at u.C. Davis. Im not a 100% better, but im back at my old job 2 days a weeek 5 hrs aday taking the short bus that picks me up at my front door for 1.25 one way. No more car ins, car payment, gas money, aaa card. I have my wonderful boyfriend thats been her for almost from the beginning of all of this. The funny thing is it all started when I left that guy I was married to for 19 years. So I had to go on welfare because my job did'nt pay well enough as a manager and clothing buyer for a the store I worked at for 7 years, no bennys. And that guy ihad 2 boys with did'nt end up helping me with our boys over the last 6 years. Now they are 18 and 20 at the end of this month. So what saved me is medical paid for my surgery. Do they know what causes your seizures? I could go on and on. I tell you more about it. When you write back let me know were I left off. You have to make light of it or you never get through the day sweetie. Please write back jamie oroville ca. By the way I can't spell worth a caca!!!!!!!!!

sami_1982

Experienced User , Rather EHEALTHy

Joined: 13 Dec 2003
Posts: 200
Location: Australia

Its Not the End of the World Posted: 12-14-03 06:49am


Matey...Keep that chin up I know you feel sick and tired right now but hey maybe you could go to a group or something and meet fellow epileptics. I know I feel safer when I am with someone whom knows how I feel and what they have to do. People I can rely in and trust. I am 21 and I was diagnosed 2 months ago I have lost my managers job at a supermarket and I have had my licence taken away for 2 yrs. Im not letting it get me down I hjave met ppl from the net that have epilepsy that live in sydney and we have met up and shared our stories. Ill tell ya it helps. I am photosensitive too I have to ware dark glasses always and if I watch tv I have to hold one hand over one eye for about a minute then I can take it away and I am ok. But I still get headaches from watching to much tv. And too much computer. But I dont stop going out with my mates poker machines make me have episodes so look on the bright side we wont be alcaholics or gamblers. From sam

KiKi2004

New User, Becoming EHEALTHy

Joined: 12 Jan 2004
Posts: 2

Posted: 01-15-04 18:18pm


Hi! I am 25 years old with a 4 year old daughter and I just found out 2 weeks I am epileptic. I have 2 seizures now and my life has completly changed right in front of my eyes my activities are limited along with my job performance and they cant get my medicine up to the actual level it is suppose to be at and I am scared to be alone. If anyone wants to talk to me please do I would really like to know more about this and here other people situations.