I am a 49 year woman who has had lupus
since 1985. I was on social security
disability up until about 5 years ago.
I was feeling better and gave work a try.
I have been on 9 mg of prednisone
(tapered from 15), plaquenil, ibuprofen
and tegretol and depakote (for seizures).
In february of this year I had a torn
meniscus repaired in my right knee. It
triggered a flare which I cannot seem to
get rid of. I have applied for social
security again but was rejected the first
time. They skipped the reconsideration
(2nd decision) and I am waiting for the
appeal process, which they say will take
up to 18 mos. At this point I am on 50
mg of prednisone so that I can continue
working. Even with that I hardly ever
make a full week of work. I have
recently had an mri, mra and carotid
ultrasound for neurological symptoms like
numbness on the right side of my face,
dizziness, scalp tingling and shaky hands.
All were negative. When I get really
wiped out my speech gets weird like "me be
ok", "i be fine". It seems like I can
work for 2 - 8 hr days but then have to
stay home the next day in order to finish
the week. I have an uncle who died from
wegener's granulomatosus and a brother who
died from complications of mixed
connective tissue disease. Any input
would be appreciated. I am getting
really frustrated.
|
nichole handran
New User, Becoming EHEALTHy
Joined: 24 Nov 2005 Posts: 11 Location: mpls
I Am Sorry Posted: 12-01-05 02:14am
It is sad to here about the hard time you
are having. In someways I think all of us
who have lupus can relate to you in some
way or another. This gov. Is not much
help with ss I have tried to apply and was
denied. But at this point I cant sit
around and wait for another 3 months to
get denied a 2nd time. Now I have
returned to work part time pushing myself
daily to make that money. Life is
definitely more of a struggle when you
cannot do an everyday task like work and
live a normal life. It would be nice if
someway, somehow those of us who are
suffering with this disease could somehow
create an organization that can raise
money and help those who are in need.
Especially medically! Like paying for
meds needed or seeing there
rhuemetologist. I truly give out my heart
to you because it must be so incredibly
hard to deal with one thing after another
without the support of a gov. Who cares.
Good luck. And if you would like to talk
you can contact me
nicholehandrannikki@hotmail.Com
god bless and happy holidays
nikki
suffering with lupus 1 year last
thanksgiving.
|
BlakkStarr1
New User, Becoming EHEALTHy
Joined: 27 Dec 2005 Posts: 12
Re: New Member Posted: 01-02-06 20:34pm
mzwrjw
wrote:
i am a 49 year woman who
has had lupus since 1985. I was on
social security disability up until about
5 years ago. I was feeling better and
gave work a try. I have been on 9 mg
of prednisone (tapered from 15),
plaquenil, ibuprofen and tegretol and
depakote (for seizures). In february
of this year I had a torn meniscus
repaired in my right knee. It
triggered a flare which I cannot seem to
get rid of. I have applied for social
security again but was rejected the first
time. They skipped the reconsideration
(2nd decision) and I am waiting for the
appeal process, which they say will take
up to 18 mos. At this point I am on 50
mg of prednisone so that I can continue
working. Even with that I hardly ever
make a full week of work. I have
recently had an mri, mra and carotid
ultrasound for neurological symptoms like
numbness on the right side of my face,
dizziness, scalp tingling and shaky hands.
All were negative. When I get really
wiped out my speech gets weird like "me be
ok", "i be fine". It seems like I can
work for 2 - 8 hr days but then have to
stay home the next day in order to finish
the week. I have an uncle who died
from wegener's granulomatosus and a
brother who died from complications of
mixed connective tissue disease. Any
input would be appreciated. I am
getting really
frustrated.
find yourself a good lawyer who
specializes in social security cases. I
did, and was approved within 6 months.
