Epilepsy Forum - When You Have Not Been Told You Have Epilepsy!


When You Have Not Been Told You Have Epilepsy!

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cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

When You Have Not Been Told You Have Epilepsy! Posted: 12-04-05 08:33am


Hi there I just thought I would leave a post here! Ok I have not been told by a doc I have epilepsy yet but my friends think I do becouse what happeds to me if you read my pstes if tell you there! I am just worrieding when all you lot was told you have epilepsy did you forget things qutick a lot becouse that is happeifng tome to can anyone help me! Caroline

cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Doctor Posted: 12-05-05 12:04pm


Hello no I have not been yet I am going to see if I can go torrow my friend said to me she rang me last night and I never asnder the phone to her we think I was told out of it we think I had a fit becouse all ways anser the phone even when I am a sleep! Caroline what you all tink!

kayakmom

Experienced User , Rather EHEALTHy

Joined: 21 Jun 2004
Posts: 252
Location: Conn

Thanks: 2

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Posted: 12-06-05 12:07pm


Caroline, did you get to a doctor? I hope so. He is really the best one to answer the question if seizures are happening. I wish you well....

cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

I Have Been to Docs Posted: 12-06-05 12:34pm


Hey how are you doing thanks for the rep you lefted me yer I went to the docs today! He cheaed me over and did not know really what it was wrong with me he said he was going to send an letter to the hostaapl and see if I have somthing a wrong with my shunt! I do not think it is! My shunt!

kayakmom

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Posted: 12-06-05 12:46pm


Hey caroline, glad you saw the doc. Good to at least rule out the shunt problems! Could that cause seizures do you know? Did you ask for an eeg? Maybe when you go to the hospital you can ask them for one? Good luck. I am doing ok, thanks for asking! Ginny

cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Thank You Posted: 12-07-05 13:23pm


Hey ginny how it going wel I am not to bad today I keep shking when I am not a sleep and when I am a wake I shake my arms,legs,hends feet! I went to sleep when I came back from college and I got worked up becouse I stared shakeing and yer I think my noesurger will do one and I donno if my shunt is working prolim! I am going to email asbha later on! And see what they think and I lever a messger on the board to you caroline

kayakmom

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Joined: 21 Jun 2004
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Posted: 12-07-05 13:36pm


Sounds good, caroline. Hope you get answers and help. Sorry you are still shaking in sleep. Take care g

cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Shaking Posted: 12-09-05 16:23pm


Hi yer I know it is still haping to me cannot do anything! About it! Thought I have to wait for the ansers now! Caroline a few people keep ing saying I have epliespy and if so what type

kayakmom

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Joined: 21 Jun 2004
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Posted: 12-09-05 16:58pm


Really the best way to know what type is to have it seen on eeg. There are over 20 different kinds of seizures according to the ilae and epilepsy foundation

cool2005

New User, Becoming EHEALTHy

Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Hi Posted: 12-10-05 11:46am


Hello ok thank you for that I let you know how I get on then! Caroline

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