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disabledcoastie

Experienced User , Rather EHEALTHy
Joined: 13 Dec 2005
Posts: 68
Location: West Virginia
Scar Tissue Causing Back Pain And Neuropathy
Posted: 12-13-05 13:20pm

Hello all i'm new to this board and wanted to ask a question, and get some advice. Background info 36 male, was injured while on active duty, first surgery in 1992 bone fusion, fell apart in 2002 second surgery 2002 alif with cages l4tos1

i have recently discovered that my back is fusing together because of scar tissue build up. I have a l4tos1 fusion utilizing cages that was performed in 2002. Now i'm having excurciating pain in my bag and legs. I take morphine 15mg 3 times a day, plus loratab 10/500 as needed, usually 3 or more, to control the pain. I went to the doctor had some x-rays done, part of the report stated apophyseal joint sclerosis l3-s1 inclusive, the doctor told me that that means there is scar tissue building up on the facet joints and fusing them together. The pain is caused by the scar tissue compressing the nerves, he suggested that if I didn't start taking better care of my back that this build up could continue and cause paralysis! He also stated that I couldn't afford to fall. In addition I was informed that the more I aggrevate my back the faster this scar tissue builds. The interesting thing is that this build up occurred over a 7 month period, I had x-rays and test performed in march 05 and nothing was mentioned about the scar tissue, I was however diagnosed with degenerative facet disease. So far my diagnosis include degenerative facet and disc diseases, osteoarthritis, spondylosis grade1, some bone loss, and now this scar tissue build up.

Thanks for letting me vent this and also what advice can you give me? I'm only 36 and I have a 14 month old son, that incidently he doesn't want me picking up. This is so hard and very, very frustrating. Thanks again.
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disabledcoastie

Experienced User , Rather EHEALTHy
Joined: 13 Dec 2005
Posts: 68
Location: West Virginia

Posted: 12-15-05 20:09pm

Please doesn't anyone have any advice? I'm really at a loss as to what to do. The doctor has restricted me to the point that I am really not able to do hardly any of the things that used to bring me enjoyment. The lack of ability to help my wife around the house and with our son is really placing a strain on us as well. Thanks again.
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Tamadrummer

Active User, Really EHEALTHy
Joined: 15 Oct 2004
Posts: 710
Location: Zephyrhills,Fl

Posted: 12-17-05 10:38am

I am sorry it has taken so long to respond to you. I have been trying to see if there is any hope for an alternative to more surgery. At this point from what I have been able to find, you are going to need to have the scar tissue injected with a hypotonic solution of saline during epidural and facet injections, this will soften the tissue and then they can laproscopicaly laser olbliterate the tissue, this is not a perfect fix but it will buy you a few years of relief and then it will have to be done again. If you choose to go this route, please look into visiting one of the better clinics that you can access and afford. Check out www.Spineuniverse.Com for infor about these treatments and if you can travel I would recommend www.Floridaspineinstitute. Com for the place to have the major work done.

Dr. Hanna is the guy that you do the oblation of the tissue and Dr. Gruber would do the injections, at least I would have Dr. Gruber do that work. If you need heavier work done than Dr. Webb is the only doc on earth I would allow inside my back.

Good luck,
brian
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disabledcoastie

Experienced User , Rather EHEALTHy
Joined: 13 Dec 2005
Posts: 68
Location: West Virginia

Posted: 12-17-05 15:54pm

Thanks, i'm trying to avoid the surgery option. I'm afraid that it would come back more aggressively.
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nancyr

New User, Becoming EHEALTHy
Joined: 24 Dec 2005
Posts: 5
Location: Carlsbad, CA
Natural Enzyme For Reducing Scar Tissue
Posted: 12-26-05 18:28pm

Hi, i'm a holistic physical therapist. I treat many people with chronic back pain. I focus my treatments on manual therapy,using techniques such as visceral manipulation, joint & soft tissue mobilizations, education on proper stretching and positioning for reducing pain. I have also come across a natural alternative anti-inflammatory agent. It is a systemic enzyme that will eat up all fibrotic tissue and inflammation due to surgery, chronic inflammatory disorders, scar-tissue formation etc. The company is called world nutrition, inc. And the product is vitalyzm x. If you'd like more information you can email me at: nan cyredlich@hotmail.Com
i would also suggest trying to see a manual physical therapist that has experience in visceral manipulation techniques, craniosacral therapy, strain/counterstrain, joint and soft tissue manipulation etc. You can go to upledger.Com and do a search for practictioners in your area. I understand how debilitating your back pain can be but you need to know that there are practioners out there that can help heal your pain, in addition to taking such things as natural enzymes to combat inflammation and scar tissue formation. Good luck.Please do not hesitate to contact me if you have any other questions. I have a lot of resources.
In good health! Nancy
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Tamadrummer

Active User, Really EHEALTHy
Joined: 15 Oct 2004
Posts: 710
Location: Zephyrhills,Fl

Posted: 12-26-05 18:37pm

This looks great disabled coastie,

someone secretly discovered the secret formula to dissolve scar tissue in your back without any western medical intervention. Shhhhh don't tell your doc though, just buy the stuff, go to a meeting, and then start selling the stuff from "world nutrition" under the person who turned you onto the product and you could be a millionaire after you get all of your family and friends buying and selling world nutrition products. Again, this is a secret so don't tell anyone.

Again, I recommend that you try the hypotonic saline epidural injections, they do not heal the area but soften the tissue so that it is less painful. As the pain increases, you have to do the epidurals again. If west virginia is like florida, they will knock you out before the injections start and then wake you up.
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nancyr

New User, Becoming EHEALTHy
Joined: 24 Dec 2005
Posts: 5
Location: Carlsbad, CA
Not Promoting "world Nutrition"
Posted: 12-27-05 00:56am

There are going to be a few of you who believe that only western medical procedures are valid for treating symptoms of back pain. As a physical therapist who has worked with thousands of patients with back pain, some debilitating from multiple fusions, etc. I am here to let it be known that there are alternative treatments! Manual physical therapy is one of them! I am not promoting the use of natural systemic enzymes for profit, nor would I ever suggest it as a way for a total cure. I am trying to offer information and educate people on alternative ways of helping those who suffer from back pain. There are multiple natural supplements that can assist some of you that have chronic inflammation and scar tissue formation. Become informed, self-educate and ask questions. Learn what is out there and be wary of those who promote themselves for profit!
P.S. Including the drug companies!!
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Tamadrummer

Active User, Really EHEALTHy
Joined: 15 Oct 2004
Posts: 710
Location: Zephyrhills,Fl

Posted: 12-27-05 10:03am

I agree that becoming self-educated is important. Regardless of your credentials, beliveing that some supplement taken po will soften scar tissue that is caused by agressive surgeries is a bit far fetched. Also since I am in the inital stages of sclerosis at l4/5 and l5/s1 having the hypotonic saline epidurals under floroscopy and also having facet nerve blocks with the possibility of facet nerve oblation is a real possibility for me. There are not any supplments that my doc recommends with the exception of:

fentanyl 25 mcg transdermal q72
roxicodone 30 q8 (tid) po prn
cyclobenzaprine 10 q8 (tid) po
motrin 800 tid


i know those big bad pharmacutical companies are not interested in helping me but eithout them I would be totally bed bound.
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disabledcoastie

Experienced User , Rather EHEALTHy
Joined: 13 Dec 2005
Posts: 68
Location: West Virginia

Posted: 12-27-05 13:54pm

Tamadrummer,

when are you thinking of going ahead with the procedure? I have looked at the lsi's website and don't know if i'll contact them just yet, they are a long way from wv. I go back to the doc tomorrow for more morphine and hopefully more diagnostics. From what i'm being told i'm already fused from s1 to l3, if I don't have anymore neuropathy i'll probably wait until it begins to develop. Good luck with your condition, I know it sucks most of the time. I keep hoping that science will come up with a fix, as soon as bionic backs are approved i'll be in line waiting!!! :lol:
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sandyallen

Extremely EHEALTHy
Joined: 02 Feb 2004
Posts: 4580

Posted: 12-27-05 14:26pm

I do agree, the more surgeries, the more scar tissue, my dr's will not hardly touch me except they are going to do a stim trial(scs) and a pain pump trial later, basically speaking, I have to live with most of the pain that I have 24/7 and be almost brain dead with all of the meds he has me on so I just have to except it and move on the best I can.
Good luck to you!
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Tamadrummer

Active User, Really EHEALTHy
Joined: 15 Oct 2004
Posts: 710
Location: Zephyrhills,Fl

Posted: 12-27-05 14:54pm

Sandy,
if you can get them to implant the pain pump first, I would recomend that before the implanted stim unit. I have not met a single person that has a negative word to say about the medtronic pain pump. I am not far enough along to need the pain pump but if they have mentioned it to you. Beg them for that first. It will totally change your life as well as give you your sanity bacck.

You have a very small amount of pain medicine because it is placed in the spinal canal and goes directly where the pain is generated and you will no longer require breakthrough because you feel great.

Best of luck,
brian
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nancyr

New User, Becoming EHEALTHy
Joined: 24 Dec 2005
Posts: 5
Location: Carlsbad, CA
Good Luck to You
Posted: 12-28-05 00:10am

I wish you all the very best with your choice in healthcare. I'm sorry that you have had to endure this type of pain. If you believe it will help you, then it probably will.
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disabledcoastie

Experienced User , Rather EHEALTHy
Joined: 13 Dec 2005
Posts: 68
Location: West Virginia

Posted: 12-28-05 14:40pm

What helps me deal with the pain is about 100mg of morphine a day, + some loratab thrown in for good measure, the anti-inflammatories and muscle relaxers, I hate taking all the meds but is sure beats the pain. Btw I do not experience any side effect symptoms from the meds, except the dreaded constipation that comes with the drugs. That is easy enough conquered by eating alot of fiber.
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PainPhysician

New User, Becoming EHEALTHy
Joined: 02 Jan 2006
Posts: 6
Location: Ohio

Posted: 01-02-06 14:31pm

In general the spinal cord stimulator is considered first line for back or radicular pain before an intrathecal pump except in cases of malignant (cancer) pain. The reason for this is that the whole point is to decrease the amount of narcotic it requires to control pain, therefore leaving it as an option for therapy later on down the line. There are many more complications associated with an intrathecal pump as compared to a stimulator. Either way, I hope you find the answer to your pain. You can find more information, including animations that show the various interventional techniques available for back pain at www.Painphysicians.Org . Good luck!

Rg
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