Joined: 13 Dec 2003 Posts: 200 Location: Australia
Veeg Extended Stay In Hospital. Posted: 01-05-06 23:55pm
I am writing because I recently had a veeg
in hospital for 4 days. In the
examination room before they took me to my
ward, I had to have a normal eeg and when
the flashing strobes was on I had a huge
seizure the dr who was doing the eeg,
stopped it and got some of the neurologist
to come in and see me in the seizure. I
was taken to my room and there I stayed
for the rest of the time. I have had
seizures now for over 2 yrs I am a 23yr
old female and I am on epilim 1200mg
morning and night also im on keppra 1000mg
morning and night. The first night the
drs sleep deprived me and took away my
keppra. 4 hrs after being off my keppra I
had seizures. They called them absence
seizures that turn to grand mal seizures.
I was off my keppra 36hrs and my epilim
alone didnt hold my seizures away. So I
had many while I was there. It was all
caught on video camera and computer. I
still havent gotten my report from the
specialists. So I still dont know what to
do. But I have never really gotten a
propper diagnoses. Do you think that I am
really epileptic. The screens went crazy
with brain wave lines when I had these
episodes. And then took atleast a hr to
go back to normal after the event. So I
only have abnormal brain waves when I have
a seizure. I heard the drs say I had
myochlonic epilepsy or something as a
child that was never picked up. So I
wonder what it is now. And they said that
I might have to go back into hospital
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 01-08-06 15:02pm
Not sure what you mean by a proper
diagnosis. Sounds like they saw you have
seizures and the eeg picked it up and they
told you what kind of seizures you have.
Sometimes there is not a syndrome it is
just a diagnosis of generalized epilepsy,
like in your case?
I hope you can find the best medication
and have it control your seizures.
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hi Kayakmom Posted: 01-11-06 07:23am
Well firstly thankyou for replying.
I have had seizures for over 2 yrs now.
The 1st neuro fobbed me off saying I was a
wacko , needing some attention or
something and sent me to a shrink. So I
went to see the shrink, couldnt find
anything wrong with me there, no attention
disorder, know what I mean. As the first
neurologist said no epilepsy on the eeg,
must be faking seizures.
So I got a second oppinion as I had more
seizures, my doctor in the end put me on
tegretol not knowing much about epilepsy
but as he knew me he believed me and gave
me the medication at a low doseage. (
100mg twice daily.
2nd neurologist believed me - I was sent
to this 2nd neurologist by my doctor for
further tests, ct, mri - all came back
clear and normal. So a eeg sleep deprived
was suggested, I went took 20 minutes.
Week later results were back at
neurologists and he said no signs of
epilepsy when sleep deprived.
Still I felt like a wreck, I didnt know
what was happening in my life, I started
to question myself and ask myself why this
was happening to me and not my siblings.
I know thats mean but I just wanted to go
back to work I mean I had bills and a job
that I had lost because of my sudden
sickness. I was having these daily. But
no one believed me. So you see I felt
like I was in limbo, but the entire time I
have had all you guys here and I thankyou
very much for helping me and pulling me
through in this hard tough time of my life
as my parents are not around to help me
and they live so far away.
I moved from the city to live with my
girlfriends family in the country on a
farm and I started seeing their doctor.
He sent me to a neurologist here that is a
few hrs away.
So this neurologist is now the 3rd - I was
told to keep a diary, take folic acid as I
am on epilim, and as my seizure activity
hadnt lessened, he admitted me to hospital
for these extra tests. No long wait
either. He chose the times one week
before my period. And it worked. I
finally had spikes, I mean I am happy and
not down for once in my life because I
know its not all in my head well... I
know now that im not imagining it all.
And if I could I would tell those two
first neuros whom almost made me want to
die to shove their pseudo seizure
diagnoses. Because I now have medical
fact that I am epileptic.
I just thank you all for your replys and I
thank you
kayakmom for replying to me most.
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 01-13-06 23:47pm
You have been through a rough time and a
long road to better care. Hoping the new
med and this neuro will help you a great
deal! Glad they caught things on this
veeg...
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