Joined: 03 Dec 2005 Posts: 10 Location: SACRAMENTO, CALi
Please Help Me.. Im Sooo Scared!! Posted: 01-08-06 22:16pm
Hello everybody... I have a quick couple
of questions.. But first let me explain
my situation.... Ive been in the hospital
4 times since august... I had really bad
tremors and they did 3 mris and found some
abnormal brain activites but they still
dont know what it is! And it keeps comin
back but one of the doctors said that it
showed of lupus but she also said that
they tested me twice and it came back
negative... But nooow, im starting 2
notice some signs... Im losing a whole
lot of hair, I get these heat flashes, I
have headaches, my joints hurt and im
startin 2 see some red on my face, annd
when im doin simple things such as bendin
over or things like that I get shortness
of breath... But now I dont know if thats
because im an inactive person or what :)
im also very stressed out right now....
Im on a whole lot of medication...
Calcium, vitam d, risperdal, ranitidine,
gabapentin and zolofot.. I guess my
question is.. Do u think its possible
that I have it even if the tests came back
negative??? Or do you think that the
medications i'm on can be causing some of
these signs?? Does your white blood cells
have anythin 2 do with lupus??? Ad
also... What other signs should I look
for???
Thanks a bunch!!!
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brenda49
New User, Becoming EHEALTHy
Joined: 24 Nov 2005 Posts: 6 Location: greenville,n.c.
Treamors Posted: 01-10-06 03:21am
Hello my name is brenda I have had lupus
for 15yrs. I have a very good reum Dr.
I too also started to experience shaking
or tremors in my right hand then my arm
started to shake also. I am on prednisone
plaquenil, coated ecotin asprin and vits.
I thought it was my meds. That was
causing my problem. My doc. Referred me
to a neurologists they did a mri showed
white lesions on the right side of my
brain. The Dr. Had me to increase my
pred. From 10mg. To 20mg. That did not
help I did that for 2wks. I went back to
him told him I wanted to know exactly what
the white spots where, that was the way he
told me what was wrong while spots nothing
to worry about. When I saw him again he
did a through exam checking flexability
walking on a line and etc. He decided
then to do a lumpar puncture they also
drew blood and they sent blood to
california it took 2wks to get the
results. My rheumy Dr. Had already told
me it wa lupus, he was right, he put me on
imuran 25mg it took awhile but the shaking
and weakness of my left side subsided.
Lupus test can come back neg. But u can
still have lupus so my rheumy told me.
This was the first rheumy Dr. I had.
The white cell count if high means there
is some typed of infection in your body,
they also ck. Your sed. Rate among other
things. I was very tired stress can make
the situation alot worse cause u to ge
ialot tireder and depressed but hang in
there and all will be well. Take one day
at a time make the best of that day all
days will not be good but I bet u will
have a good one!!! Make the best of it.
God bless you,
brenda
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xXxPLiiCT
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 10 Location: SACRAMENTO, CALi
Posted: 01-11-06 18:23pm
Brenda, thank you sooo much! I have
another quick question... I'm starting 2
see a lot of bruises on my arm... And
you could really see my veins.. Haha did
that make sense?? Anyways, I heard that
this was also a symptom of
lupus...????????? I currently dont have a
primary doctor... Just the neourologist
and she said once I get a primary doctor I
need 2 get my thyroid checked... Do u
know anything about that?? If so.. Could
you please tell me?? Thanks! :d
