Joined: 21 Feb 2006 Posts: 1 Location: Norwalk, CT
Does My Ten Year Old Have Epilepsy?? Posted: 02-21-06 22:18pm
My 10 year old daughter got up one night
with her (r) arm flailing about. It was
scary as she had no control. This has
continued for approx. One year. Though
the violence of the movement has been
controlled with two medications clonidine
and neurontin it has not stopped them.
Occasionally her left leg will become
involved. She is fully awake and aware
when it occurs. It can also happen when
she is awake (not always at night
sometimes during daytime) but when it
occurs during the day it usually is
because she is extremely tired. She has
them just about every night which is
causing her to be sleep deprived. The
movement will also occur when she closes
her eyes and holds her arms out straight
ahead. Her neurlogist has done a 24hr
eeg, mri and a ton of blood work all is
normal. Her neurlogist states thatthey
are myoclonic movements and he doesn't
believe that it is epilepsy but that he
has no idea what is wrong. He currently
is just trying to control the symptoms.
She saw a specialist in boston who stated
that though not all of her symptoms fit
seizures that most do and that she does
have some neurological deficits. We are
currently doing some more testing. The
doctor in boston reccomend another mri of
her brain and mra also to do a veeg.
From this we hope to find the answers just
wondering has anyone expericence anything
similar or have any thoughts??? It has
been a long year for both of us hoping
someone has some thoughts!!! Thanks!!
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 02-24-06 08:52am
I am so sorry there are not clearer
answers for your daughter. Have they
tried a sleep study to see if it is
another form of myoclonus from a sleep
disorder?
It is good that the symptoms have calmed
down some with treatment. Sorry they have
not gone away how ever.
Was her eeg abnormal when these were going
on?
I hope the boston specialist will find you
clear answers as to what is going on!
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