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Dylan Jacob Lost Hios Battle With Life

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Carrie-Lucie

Experienced User , Rather EHEALTHy
Joined: 20 Feb 2006
Posts: 188
Dylan Jacob Lost Hios Battle With Life
Posted: 03-11-06 13:03pm

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Last edited by Carrie-Lucie on 04-05-06 11:20am; edited 2 times in total
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HcoBrunette06

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Joined: 06 Dec 2005
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Location: Missouri, United States
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Posted: 03-11-06 13:18pm

Oh my god carrie
i'm so sorry, I don't know what to say.

That letter was so touching, i'm sitting here sobbing :cry: ugh if you ever need anything i'm here to talk, you're still in my prayers, i'm so sorry.
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hunterjumper

Experienced User , Rather EHEALTHy
Joined: 18 Dec 2005
Posts: 203
Location: British Columbia, Canada

Posted: 03-11-06 13:32pm

That's a beautiful letter. Truely beautiful. Thank you for having the strength to share it at such a hard time in your life. I give you major kudos.

I have tears in my eyes. I'm so sorry for your loss. May you find strength and beauty in the time you shared together.

Prayers your way. :cry:
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Eyes Wide Shut

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Joined: 04 Jan 2006
Posts: 7892
Location: *UPTOWN*NEW ORLEANS*, La

Posted: 03-11-06 13:34pm

I'm sooo sorry for your loss. He is still with you no matter what....

I'm praying for you and your husband.......

Sarah
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hopefulmjz

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Posted: 03-11-06 16:30pm

Carrie, i'm very sorry for your loss. He may be fading in your memory now, but just give it time and i'm sure it will be back....You are going through an extremely hard time right now. I really wish there were words to say to make you feel better. Dylan was extremely lucky to have you for a mom, and is now a sweet angel looking down on you, making sure you are safe. Pm me if you need someone to talk to.
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DaliciaLynn

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Joined: 29 Jul 2005
Posts: 2322
Location: Missouri

Posted: 03-11-06 17:50pm

This post brought tears to my eyes.

I've never understood situations like this...How a little child has to go through so much, a baby who has never done wrong.

I don't know what to say, but can only imagine what you're going through. I look at my son & can't even think about anything bad happening to him without feeling the need to kill myself if anything ever did.

You have to be really strong, and know he's in a better place & isn't in any pain anymore.

Smile everyday knowing he's smiling back.
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snowygirl

Active User, Really EHEALTHy
Joined: 31 Oct 2005
Posts: 807
Location: hawaii
Omg
Posted: 03-11-06 18:10pm

Im so sorry for your lost. I feel really sad reading this post, here I am sitting down with tears crying. But I know dil is happy knowing he has such a wonderful and loving mom who love him so much. I will keep u in my prayers.
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Jolie_3110

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Joined: 04 Dec 2005
Posts: 1755
Location: Essex, England

Posted: 03-11-06 18:43pm

Carrie I am so sorry, your letter is beautiful, I can not even try to imagine what you are going through right now, your story and strength has brought me to tears.
We are all here to give you support if you need it, bless you and your partner and most of all baby dylan.
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michelle1981

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Posted: 03-11-06 18:55pm

dalicialynn wrote:
smile everyday knowing he's smiling back.

that's beautiful!

I'm so very sorry to hear about our little fighter! My condolences to you and everyone around him that has been touched by his short(but never forgotten) life!

Keep your memories close to your heart!
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AshBoBash

Experienced User , Rather EHEALTHy
Joined: 01 Feb 2006
Posts: 277
Re
Posted: 03-11-06 20:34pm

I'm really sorry
i dont knwo what to say for advice about that icant imagine how you are feeling
you have my condolences
i'm sorry :(
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oh_mommy

Supporter
Joined: 04 Sep 2005
Posts: 3689
Location: vancouver island, bc canada

Posted: 03-12-06 02:30am

My heart has dropped, and my eyes have started to water as I read your letter. But everything will be ok, even if it dosnt seem so. He's gone to a better place where he wont have to deal with bullies or pressures like drugs. Once day you can join him and hold him in your arms again. He may seem like he's gone but he isnt, he's still where it matters most, in your heart. Dont ever forget how much he loves you and he will be watching out for you just as you watched out for him
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Carrie-Lucie

Experienced User , Rather EHEALTHy
Joined: 20 Feb 2006
Posts: 188

Posted: 03-12-06 06:40am

All of your posts have made me cry, but not because I was sad - which is a new one for me these days. It's so comforting to know that we have so many people thinking of us in this difficult time. Matt and I sat here and read this and tears were in both our eyes as we read each post.

We have to sort out the funeral today - the hospital have taken it upon themselves to "help" but really I just wish they'd leave us alone. They never told us the truth about dil - we found out yesterday the 20% chance dil had of surviving was statistics not the surgeons instinct and dil had really had no chance of surviving the post-operative stress and that his condition was deteriorated so far that there was really nothing they could do. Had they told us this we would have asked for the time rather than the operation I think. They took the two and a half hours before our sons death and knew they were going to fail.

You guys have been simply amazing - there is no right or wrong thing to say at a time like this it just helps when someone says something. All your posts were beautiful and in a way I feel so lucky that my life was touched, even briefly, by my son as so many people never get to have those precious weeks we had with dil.
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HcoBrunette06

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Joined: 06 Dec 2005
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Posted: 03-12-06 12:34pm

Every post you make makes me cry carrie lol

i'm really sorry you have to go through this, my heart goes out to you and your family. But like oh_mommy said, he'll always be in your heart.
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Kia

Supporter
Joined: 23 Jun 2004
Posts: 6594
Location: Planet Tampaxia,

Posted: 03-12-06 14:50pm

Carrie I am so deeply sorry

i understand the loss of a child, and I also understand that as every child is individual so is the loss felt by the parents.

I honestly don't know what to say, except I know nothing can make you feel better right now.

I hope you choose to stay here, at least stay in contact.
I know it helped me when oliver died to be here, although in the early days I didn't come on much. I found that while the peopl ein real life I had to becareful not to upset and had to explain things to them on here I didn't have to.
If I wanted to scream and shout I could do it here, I could write posts about what had ahppened and it really didn't matter if the reader understood what I said or not I didn't have to explain it all to them they just understood my grief.

Take care and I really do hope you choose to stay in touch.
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sweetlildakota4e

Experienced User , Rather EHEALTHy
Joined: 20 Jan 2006
Posts: 71
Location: greece, ny
Carrie
Posted: 03-12-06 17:43pm

Hello,

when I read your post, I couldn't think.. I was dropped in horror but glad to see that you're brave enough to calm your child down but the only thing that is wrong of them is that they didn't tell you the statics of post tramua stress things.

May we all god bless you and dylan was grateful of having you as a mother, you're a great mother. We all cannot possibly think of what its like to live without a beautiful child that it was once born into life.

The letter was beauitful... Made me sad/teary about your son.

God bless you and your family
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Rodge

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Joined: 25 Feb 2006
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Posted: 03-12-06 18:43pm

Damn, that sucks. I'm really sorry.
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diamondsz

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Posted: 03-12-06 20:34pm

Carrie you have my condolences, my lil man is in icu he has tubes everywhere although hes a month old its heart wrenching my lil man is getting stronger but not al of us are lucky and get to expierence that. I do wish that you futur kids are healthy and born at term as I dont know what I would do without either of my kids, yes, they drive you nuts but when they go you miss them tons.

Please take care of yourself and family, it took me time to post because I was afraif for my lil man and you post made me cry best of luck carrie

jess
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Carrie-Lucie

Experienced User , Rather EHEALTHy
Joined: 20 Feb 2006
Posts: 188

Posted: 03-13-06 02:33am

Thank you guys - just a brief update...

We have decided for the funeral that we are going to have a little wicker bassinet and are going to have him cremated. This way we get to take up my aunts kind offer of making the bassinet she wanted for him, and also he gets a more nomal feeling about the funeral.

His ashes we have decided are going to be scattered off the top of a cliff in port isaac, cornwall, uk... This is a really special place for both me and matt as it is a childhood spot for both of us. It's also by the sea and the thing I was most looking forward to about taking dil home was taking him down to the sea. We were going to move so he could grow up by it.

It's weird for us at the moment - we're living in a kind of bubble here. Everything goes on around us but time seems to have stopped for our little family since we lost dj. Again, thankyou so much for the kind words you have no idea how much it means to have people not just avoiding eye contact and mumbling things under their breath. I guess that's the joys of being on the internet.

Jess, i'm really sorry for your son, I will keep him in my thoughts... I really honestly do hope he gets better very soon, the nicu is a very scary place to see any child let alone your own.
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*~Bree~*

Experienced User , Rather EHEALTHy
Joined: 24 Oct 2005
Posts: 77
Location: South, MS
Carrie
Posted: 03-13-06 09:08am

Im so sorry. I just hope one day i'll be a great mommy like you. Just from reading your posts I can feel that he was your world and as we all know you were his. Im a strong believer that everything happens for a reason I know right now that may be hard to understand but god has a plan for you. And maybe little dil just wanted to meet you but wasn't ready to stay here. Just keep him in your heart and know you gave him all your love and that he took that to heaven. He's prolly up there now telling all his friends, " look thats my mommy and daddy." he knew that from day one. Just keep your head up and know that everyone here has our thoughts and prayers with you. God bless you.
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Sunflower_pie81

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Joined: 17 Jan 2006
Posts: 5041
Location: to hell with this crap

Posted: 03-13-06 10:09am

Carrie,

i just wanted to say that I know where you are right now loosing your little guy. My husband and I lost our little hunter in 2004. It was really hard and know how you are feeling right now and the future looks really dim and not worth living. Just please know that you need to thrive knowing that your little man is in a better place watching over you and your husband. He is no longer hurting or in any pain.

The pain of loosing your baby may never go away, I know that it hasn't for us. I have just become numb from all the pain. Now we are expecting a little girl and we are very happy, but not a day goes bye that I don't think of him.

May god bless you and your husband. Your letter was beautiful, much like the one I wrote to my little one. I buried my baby with it and a picture of me and his daddy. Your letter brought tears to my eyes. I know your pain. I don't believe that you are going to forget his memory.

You will be in my prayers.

Genipher
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