Third Trimester of Pregnancy Forum - Risk of Down Syndrome
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Risk of Down Syndrome

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brookes22

Experienced User , Rather EHEALTHy
Joined: 30 Nov 2005
Posts: 88
Location: vermont
Risk of Down Syndrome
Posted: 03-11-06 17:34pm

I just found out that I have 1 in 163 chances of having my baby with down syndrome. Should I worry? I have to get a amniocentesis done on tuesday. To tell you the truth... Im so scared.
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KatieFlower

Experienced User , Rather EHEALTHy
Joined: 15 Feb 2006
Posts: 407
Location: Massachusetts, U>S>A

Posted: 03-11-06 18:31pm

To be honest, I would be worried too. But there is a 162 in 163 chance that he/she won't be. Try to look at it that way. Good luck. I have faith he/she will be a normal healthy baby!

~katieflower~
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sandyallen

Extremely EHEALTHy
Joined: 02 Feb 2004
Posts: 4580

Posted: 03-11-06 18:44pm

Hi there! I understand what a scary situation this can be! I was in your shoes with my daughter, my second born child, I had a lot of troubles with my pregnancies with miscarriages then I really got lucky and my son was born weighing 10pounds 2ounces after giving up on getting pregnant and then we had the scare with our daughter with the drs saying she would be born with downs syndrome and I cried and cried and at that time, I was working at a state hospital with mentally challenged or special at that time they called them retarded children and then, I decided that I was going to think and be positive, my daughter did not have downs syndrome she is a young adult now. Sshe has two years of college down, almost three and even if she did have ddowns syndrome, I would not have loved her any less, I would have taken care of her. You have some good odds and try to be positive thinking that the baby to be does not have downs and if he/she does you will deal with it when the time comes.
The best to you and yours!
Please keep us posted on what you find out and feel free to vent or talk anytime! We are herer for you!
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Kimmeh

Extremely EHEALTHy
Joined: 11 Jul 2005
Posts: 1104
Location: Calgary, Alberta, Canada
Re: Risk of Down Syndrome
Posted: 03-12-06 02:03am

brookes22 wrote:
i just found out that I have 1 in 163 chances of having my baby with down syndrome. Should I worry? I have to get a amniocentesis done on tuesday. To tell you the truth... Im so scared.


i understand what you are going through I have a 1 in 100 chance...Its very scary I am overdue, I try not to worry about it because itsa 99% chance that she wont be...But that 1% chance is still there. Atleast your risk is less then mine, it most likely wont happen and worrying does more damage to the baby. I like to think of it as there are soo many worse things to have go wrong with your baby now a days. I mean it really sucks if it happens because all anyone wants is for their child to be born healthy and happy and have a "normal" life. But people with down syndrome are so loving, and they still have very full lives, they can live on their own (or ina group based housing) they have jobs and go to school. I wish you the best of luck.
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rowemason

New User, Becoming EHEALTHy
Joined: 20 Dec 2005
Posts: 28

Posted: 03-14-06 11:08am

If you don't mind me asking, what are the doctors basing your risk factor on? The afp test? If so, I know quite a few people who had positive screenings and none of them had children with downs. I can relate to how nervous you are. Pregnancy is a scary time of feeling out of control........Let us know how your amnio goes. How far along are you?
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Kimmeh

Extremely EHEALTHy
Joined: 11 Jul 2005
Posts: 1104
Location: Calgary, Alberta, Canada

Posted: 03-14-06 21:15pm

I had a routine medical ultrasound done at 19 weeks and they measure the back of the neck and there is this nucal fold there, that gets smaller as the baby grows bigger (its not accurate to test after 20 weeks) but mine measured too big...Which is associated with downs. It is not 100% and they said so themselves that there have been a lot of misdiagnosis but it still lowers my risk to having a down syndrome baby. I try not to worry about it too much because it most likely wont happen, but it's still scary.
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