Is It Possible to Have Pain Post-hernia Operation Corrected Posted: 03-26-06 07:57am
I had a right side inguinal hernia
operation twenty years ago (that is
correct 20 years) and I have been having
pain for these past twenty years.
As long as I do basically nothing of a
physical nature I can have days that I
feel as normal as any other person. But
almost anything of a physical nature
(including sexual) can cause me to have
pain that starts at the area of the
incision and depending on what I do, can
go all of the way around into my back. I
have had events where this pain would last
up to as much as 3 months.
Sometimes I can just bend over one time to
pick up something off of the floor and it
can take me anywhere from several hours to
several days for the pain and discomfort
to go away. To tell you how pronounced
this is, something just as minor as the
effort it takes to get the top off of the
bottle of medicine that I take to releive
the pain, can cause the pain.
It has to be that either there is a nerve
that is entrapped in scar tissue or that
there is scar tissue that is rubbing
against the nerve.
My question is, is there anyone out there
that has had a similiar experience with
pain and is it possible and likely that
this can be corrected by another surgery
by a skilled surgeon. Is there somewhere
I can go to research the results (good or
bad) of surgery to correct nerve damage
from hernia surgery ??
Let me say that I am in pain as I am
composing this correspondence and that as
you might guess that after twenty years of
life like this, I am very depressed and I
don't really know how much longer I can go
on like this.
I thank you for any suggestions you might
offer.
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Lena121
New User, Becoming EHEALTHy
Joined: 04 Oct 2005 Posts: 24 Location: UK
Posted: 03-26-06 16:46pm
First of all, I am sorry to hear about
your pain, that really sounds very bad and
I can't believe that you have managed to
live with this for so long.
I have not had this kind of experience, I
did experience pain after both my
surgeries but both times I had a recurrent
hernia and that was the reason why. Have
you considered that this might be your
problem too?
I would suggest you go to a surgeon just
to get checked out and they can tell you
the options. I usually do all my research
through the internet so googling this
might help to give you some of the
statistics that you are looking for.
I did read however that some patients have
constant pain after hernia surgery and
that they had to go back into surgery to
get the nerves removed, so my guess is if
it is to do with the nerves that you could
get them removed and should be pain free
afterwards.
I would really get a consult. If you look
up a good hernia surgeon in your area and
go to a consultation you should expect to
get an honest and opinion and could go
from there.
Also, how much worse can it get than it
already is now?
Here is the link to another hernia forum,
it is run by hernia surgeons but you can
go on there and there might be people with
similar experiences that you had and you
can ask the surgeons questions that you
would like answered. If you make clear
that you would have the surgery only in
your area they are likely to give you
their objective opinion on the matter.
They also might have an idea what might be
causing your pain since I think they
specialise in that area.
The link is: http://members3.B
oardhost.Com/northpennhernia/
i hope this might help you out a bit and
that you will find a good solution. There
must be something that can fix you, I am
sure of it!
Take care and good luck,
lena
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wpshooter
New User, Becoming EHEALTHy
Joined: 26 Mar 2006 Posts: 2
Posted: 03-26-06 19:39pm
Thank you for your response.
Just to let you know, I have consulted
many doctors including surgeons over this
time and all of them say I do not have a
recurrence of the hernia. Most of them,
have told me that my only real option for
possibly permanently getting rid of the
pain is more surgery.
With the experience that I had with the
first surgery, I have been very, very
reluctant to go this route again. I have
tried several other things (various pain
management techniques and physical
therapy) as recommended by other
physicians over the years but none of them
have really proved to be of much, if any
help. Pain medicine makes it tolerable
(most of the time), but this does not
allow me to live the type of life that I
would like.
I have been alone these twenty years and I
have had some fun times but it has been
terrible being all alone. I know many
people at work and other places must think
I am anti-social and some of them probably
think that I am lazy because of all of the
things that I can not participate in.
But if I try to do any of those things,
the pain just becomes too aggrevating.
I have already talked to my doctor about
recommending someone to try a surgical
repair but I just am so scared that I
might wind up worse. But like you say, I
am really wondering if it could be worse.
Also, I am sort of concerned about having
the correct skilled professional to
attempt this. Since this involves
possible repair or removal of a nerve, I
am wondering if a person that is just in
the business of doing hernia repairs and
general surgery, is the type of physician
that I should have attempt this.
Thanks again for your reply, I will check
out the link.
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Lena121
New User, Becoming EHEALTHy
Joined: 04 Oct 2005 Posts: 24 Location: UK
Posted: 03-27-06 09:19am
I thought that you probably would have
consulted a doctor already, and I can
understand the feelings you have about
surgery, my first surgery didn't go too
bad but after the second one I nearly
fainted and got a really bad stomach
upset. Since I went home straight after
the operation and since it was a weekend I
had to wait 18 hours until we could get a
doctor to come out to give me medicine to
stop the vomiting etc. . My mom thinks
that it was bad tea they gave me after the
opeartion that caused it but I have been
wondering for a while if I just had a bad
reaction to the anasthetic.
Since these troubles I have looked into
alternative forms of surgery and sedation
and I think that if you conuslt the right
surgeon they might do the operation with
local anasthetic if it isn't too big of an
operation.
On the forum I gave you the link to I have
read somewhere that the surgeons do
sometimes do another operation to remove
nerves that cause post operation pain, and
since they operate in that area and do
those kind of operations they may be able
to help and be competent I would think,
even if it is just to answer some of your
questions.
Also maybe you can phone some kind of
medical board or something and ask them
for surgeons that specialise in nerve
removal, if there is such a thing.
I am sure that if you do the research you
will find someone you feel is competent
and that you can trust.
If the pain has affected your life for so
long, how bad can a few hours of surgery
and a few weeks of recovery be in
comparison? I am not trying to say that
it will be easy, but maybe think of all
the benefits if you have the surgery, and
I am sure that a surgeon who can perform
the operation will be able to give you an
outline of expected recovery etc.
I can't imagine how bad the situation must
be for you, to be that limited in social
and personal life is horrible, especially
for such a very long time. I think if
something can be done about it and even if
the only option is surgery I would really
consider going for it, and I am sure that
no surgeon will attempt the surgery if
they don't see a chance of improved life
or full recovery for you. Do you know how
invasive the surgery would be? I think
maybe if you really ask the doctors on the
forum, or even phone them up and speak to
someone they may at least be able to
answer some of your questions and to maybe
referr you to someone they know that is
competent in your area.
I hope you find a good solution soon, you
really shouldn't have to live your life
like this and I think it is terrible that
you had to live like this for so long.
I often felt disabled with my hernias, I
had hernia pain since I was 9 or so and
never got diagnosed until I was 14, so
experiencing pain after doing sports has
been pretty much part of my life since
then. Also not being able to do any
proper lifting and having to say "i'm
sorry, I can't do that, I am not allowed
to do any heavy lifting" especially while
I was at school felt horrible, and often
people look at me in utter bewilderement
when they see this young, healthy and fit
looking woman asking them to maybe lift
her luggage off the bus, train, etc. So
to a certain extent I know how it feels in
a social context, but I can't imagine how
bad it must be for you since you don't
seem to be able to hardly do anything
without there being pain involved.
Have you tried counselling? I am sorry if
this sounds too personal and you don't
have to answer, but if you haven't maybe
you could, it might help you get through
an operation, prepare you for it and also
to help you afterwards to work through
some issues.
I often notice how I get quite emotional
thinking about my medical history and all
the mess ups from doctors I had to go
through, so if I feel like that now I
can't imagine how you must feel after 20
years of pain and it might be helpful for
you to talk to someone.
Anyway, I wish you all the best and that
you will find a good surgeon that you can
trust, I am sure that an operation would
probably sort you our or make your life a
little better and more liveable at least,
so I wish you strength, courage and good
luck on your journey!
Maybe let me know how you get on, of
course you don't have to but it would be
nice to hear if you find a solution and if
it works.
Take care of yourself,
lena
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rand82
New User, Becoming EHEALTHy
Joined: 04 Apr 2006 Posts: 1
Posted: 04-04-06 00:21am
Well your not alone. Its been 2 years
since my hernia operation. I dont think
im as bad as you, but I also have
reoccuring pain that can last up to a week
cause by about anything. I gave up a
year ago going back and forth between
doctors....As they told me nothing and no
explanations. I have found out more
online than doctors told me. One doctor
telling me the pain will go away....Or you
will get use to it.
Well just recently I realized it was not
going away and I am surely not anymore use
to it that what I was 2 years ago. And
after hearing your story, 20 years wont
seem to help.
I did change my doctor, and have an
upcoming appt in a coupld weeks.
Researching this, I found several reasons
why this pain could be happening.
Nerve entrapment in scar tissue like you
said
misplaced mesh if used or contracted,
scarified and hardened mesh plugs
recurrent hernia
constriction or narrowing of the internal
inguinal ring around the spermatic cord
i got a feeling my case is the last one
since my pain goes from the incision down
to my testicles, and I knew something was
wrong within a week of the operation.
Not to mention my surgeon telling me time
and time again how tight he made it. Too
tight im thinking. It was never
mentioned to me but this place I found
online claims the cause can be identified
ahead of time thru x-rays, mri and ct
scans. If this is true or not I will ask
my next appointment. Im not looking
foward to it for sure....The pain is on
and off depending on my activities or the
way the wind blows. Thing is like
allways by the time I get in to see my
doctor the pain will be gone and
everything will be ok for a while.
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zdoorman
New User, Becoming EHEALTHy
Joined: 22 May 2007 Posts: 1 Location: dayton,ohio
Posted: 05-22-07 12:59pm
I almost fell out of my chair when I came
across this article. its like finding that
needle in a haystack so to speak, I also
have been dealing with post operative
hernia, Nerve Damage. although I have only
been dealing with this for 11 Years. I
thought I was reading my own Journal as I
read your story. My pain also has been
constant and sometimes more than I can
deal with. I receive nerve block shots, In
my groin, this is not a painful as it
sounds. the shots make it tolerable for a
few weeks at a time. I have been on every
pain med that is available, I find that it
is very difficult to talk or even carry on
a conversation, while on medication as I
am at this time. I have been to two neuro
surgeons and they have said that the risk
is too high to operate. I too wonder how
long will this problem follow me as it is
very difficult to deal with this problem.
I suggest that you find a professional to
talk to, if it is within your budget. It
does not help the pain right away but it
may help the pain in our minds.
My pain is a constant pressure feeling in
my groin, remember how you felt the last
time that you were kicked in the groin?
well that is the feeling that I have
constantly. as you said that it is
difficult for every day chores I thought I
was alone in this. I am sorry that this is
still a problem for you. what does the
DR's say. I would be interested in
knowing
Everyday things like doing dishes or
mowing the lawn is a Killer for me as
well.
I wish you the best of luck and hope that
we are able to be pain free one day soon
guys -- i really think what's going on
here is complications to the mesh product.
It's a very common thing and the cure is
sometimes worse than the problem. There's
information available to anyone who's
interested. Also quite a few individuals
mad enough to try to get organized and
have something done. if you're interested
pm me.