hi everyone!
I am sooo happy I found this sight and
have people who understand lupus to talk
to. Last jan. I underwent a liver biopsy
to confirm my illness - auto immune
hepititis. I have since been on
prednisone and suffering the side effects
of it. My doctor is trying to wean me off
of it by also giving me immurane, but no
success yet. As we try to reduce the
prednisone dosage the liver inflammation
flares up!
I suppose i'm on a relatively low dosage
of prednisone - 25mg/day. I was wondering
how others on a similar dosage were
finding it? I have zero energy and find I
have to take several naps a day. I have
taken a month off work as I find it very
difficult to focus and concentrate on a
task and my memory also seems to have been
affected. I would love to hear if anyone
else feels this way.
A fews weeks ago, I developed a purplish
rash caused by bleeding under the skin.
The doctor performed a skin biopsy and I
will get the results in two weeks. They
are not sure if it is related to the
lupus. Again, anyone else experience
this?
Kathryn
|
LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 01-06-04 22:38pm
Hi! Nice to meet you!
I have lots of skin involvement. Let me
know how it goes!
As for the prednisone, I have not been
below (successfully anyway) 20 mg in over
2 years. I take much higher doses when
the lupus decides to act up. I vary from
120mg to 20mg. How do I find it? It
sucks, to be quite frank. I, too, take
naps most days...Even on good days. I do
not sleep well at night, despite taking
the steroids in the early morning (which
is the way your body naturally releases
your steroids).
Memory...A lot of lupus patients complain
of memory problems. Do you have a
neurologist? My memory loss got out of
hand. I just started seeing a new type of
neurologist because of possible lupus
complications in my brain. *sigh*
it is so nice to meet you. I wish you the
best with the biopsy!
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This page was last updated on June 11, 2008
