Your Experiences of Wolff Parkinson White Syndrome Posted: 04-04-06 23:41pm
Hi everyone, i'm a newbie and just
discovered this forum whilst searching for
wpw related items tonight :wink: I would
be really interested to hear of other
peoples experiences of wpw especially with
recurring wpw after ablation.
This is mine.
My name is kat and i'm 25 years young,
northern irish and recently moved to texas
in the good old us of a. I've had wpw
diagnosed since I was 10 years old and
have been on a multitude of drugs
including propranolol, flecainide,
digoxin, lanoxin,bisoprolol, metoprolol
and verapamil..Thats what I can remember!
I've had 3 unsuccessful ablation surgeries
between the ages of 17 and 18. The first
one was a disaster as I was given diazepam
as a sedative and it was discovered that I
was deathly allergic to it. The surgeon
(tom trouton) spent around 9 hours trying
to zap the pathway and couldn't get it.
The 2nd op was done under a different
sedation and the same thing happened. I
have a weird adverse reaction to benzo and
narcotic drugs and stop breathing when im
given them..Real cool huh :roll: :lol:
the 3rd op was done under a general
anaesthetic and my heart rate soared to
520 bpm and after being given adenocard
went into ventricular fibrillation. I was
cardio-verted and he got me back again
thankfully after 12 mins of trying and
instead of waking up on my usual familiar
wee ward, I woke up with a tube down my
throat in cardiac i.C.U. :shock: ! That
was another failure! Since that i've had
countless trips to er as my heart goes
into svt and atrial fib just to complicate
matters and ive had to have adenocard so
many times ive lost count.
My surgeon said at my last appointment
that I may have to look into having a
defibrillator fitted which I really don't
like the idea of at all! I may have to
bite the bullet though as lately my heart
has been worse than ever going into mad
beats of 300 bpm plus. I just hate that
feeling of it going fluttery and merging
the beats and having that cold feeling in
my throat and dizzy/tired feeling. My
husband is a paramedic and also suspects
that im throwing pvc's just to add to the
fun!
I was diagnosed last august with epilepsy
after having seizures out of the blue and
the medication for that is definitely
interfering with the verapamil that i'm
on.I'm very active but it seems lately
that i'm getting too tired to do my
beloved long distance running and dog
agility. I just recently moved to texas
and am looking into cardiologists in the
area where I live but I really do dread
going to see one as I know it won't be
news that I will want to hear :?
Alrighty thats enough rambling from me so
I shall sign off and look forward to
hearing from y'alls wpw experiences.
Best regards,
kat :d
|
Hally
New User, Becoming EHEALTHy
Joined: 30 May 2006 Posts: 2 Location: WA
Posted: 05-30-06 23:52pm
Wow, thank you for sharing your story. I
was 34 weeks pregnant with my second son
when I woke up at 6 in the morning with my
heart racing. I have had my heart start
racing for no reason several times through
out my life (i'm 26), so I didn't think
too much of it, it has always stopped on
its own after about 15 min. To a half an
hour. I just thought that everyone's
heart started racing like that from time
to time.
But on this day 15 min came and went and
it was still racing, it was going so fast
I couldn't count the beats. Then a half
and hour came and went then an hour. By
this time I was getting nervous, I felt
okay a little tied and dizzy but not too
bad. I started to worry about my baby, I
was worried that he wouldn't be getting
enough o2 or blood because my heart was
going so fast, I didn't see how it could
have been pumping blood as well as it
should. So I called my doctor and she
said go into the er as soon as possible.
So I went in and my resting heart rate was
at 180. My baby was doing fine but I
started to go into labor as a result of
the stress on my body. They had to give
me meds. To slow down my heart rate, I
don't remember what it was called but it
basically stopped my heart for a moment
and restarted it in normal sinus. So
they caught the event on ekg and thought I
had avrt, so in april of 06 I had an
ablation. The procedure was very painful
and did not go well. They got the
arrhythmia started fine but it was not
what they thought it would be and it
turned out to be wpw and the pathway was
only a millimeter away from my natural
pathway. They used a new cyro catheter
and so far I have not had any problems,
the specialist who did the ablation said
if I can make it 3-6 months without any
problems I should be home free.
Did your ablations hurt? Where did they
go in from? Did you have dizzy spells
and chest pain after the procedure? To
be quite honest the Dr. Who did my
ablation didn't really answer my
questions, and everything happened so fast
I really didn't have a chance to research
anything. So i'm interested to hear from
other people with this disorder.
|
mindyandkai1
New User, Becoming EHEALTHy
Joined: 20 Jun 2006 Posts: 1 Location: SUNNYVALE, CALIFORNIA
Hello.. Another Wpw Patient Posted: 06-21-06 18:55pm
Hello out there...My sister got me into
these forums when she researched my heart
problems. I would like to know if there
is anyone out there that has peripartum
cardiomyopathy & wolff parkinson white
syndrome... I seem to find people that
have either or.. But not both.. What we
have is so rare with the wpw but to have
both. It's been my living nightmare for
almost 3 years now. I have a cardiac
ablation scheduled july 27th. A little
nervous about it, but thankful that it
will be done at one of the best hospitals
in the world. My cardiologist is great.
But, once this is done I still have the
cardiomyopathy to worry about. My
ejection fraction is still very low at 30%
and I am so sleepy and tired of being
tired. I hate the medications and for
being 27.. It's a lot to grasp in... No
drinking, no coffee.. No red bull.. No
more kids...I will fight this thing for my
son so that I can stay in his life as long
as possible. He is going to be 3 years
old and he just is the only thing putting
a smile on my face. Let me know if
anyone out there has both heart problems.
I would like to hear how you feel and
what's going on. My e-mail is mindy
andkai1@yahoo.Com.
