Scleroderma Progressing Too Fast Posted: 05-03-06 00:03am
My friend was diagnosed with scleroderma
last year. She was seen to have
interstitial lung disease. She was put
under medication, which she followed
diligently. Despite this, her
interstitial lung disease has worsened a
great deal and so has her general health.
She in fact seemed better than when she
had no medication at all. Is that normal?
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dynamicdebz
New User, Becoming EHEALTHy
Joined: 21 Apr 2007 Posts: 41 Location: Sheffield, UK
Posted: 04-21-07 07:55am
I have CREST Scleroderma, I have absolutly
loads of different symptoms. I also have
to have constant tests to moniter symtoms
that may develop.
Does your friend have diffuse Scleroderma
(which is more progressive than CREST)? I
have to have lung tests every year just
incase my lungs get affected.
I notice it's almost a year ago since you
wrote the above post, how is your frind
now?
Scleroderma can go in a kind of remmission
& then flare up. I am currently going
through a flare up at the moment but it is
mainly my bowels & stomach that are
playing up.
I hope your friend has all the answers
& is improving, it sounds like she has
a lot of supposrt in you which is one of
the most important things to a sufferer.
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Chaitali
New User, Becoming EHEALTHy
Joined: 02 May 2006 Posts: 2
Posted: 04-21-07 13:01pm
Thank you for your reply. My friend's
sufferings have come to an end. She was
finally diagnosed with lung cancer and
succumbed to the disease. The progression
of the disease was really fast and she did
not have to suffer much.
I hope I have not upset you. I did not
mean to. However, I was so surprised at
getting a reply after so long that I
simply needed to reply. There is a huge
void that she has left for us and
unfortunately nothing can be done.
She was unfortunate. However, I came to
know of many other patients who do a lot
better.
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