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Freaking Out.

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DaliciaLynn

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Joined: 29 Jul 2005
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Location: Missouri
Freaking Out.
Posted: 06-20-06 23:04pm

I was at the lake all day today and missed a phone call from brayden's doctor that she said was urgent.

Well the thing is, brayden had his thyroid test done after he was born & it came back abnormal, so we re did it and they said it came back normal...Well today the doctor called and chris answered the phone, they said it had something to do with his thyroid test and etc.

I am flipping out. The doctor told me I should go get it checked out because I could of passed it on to him & that I could have to have surgery on it or etc. I'm so afraid that he'll have to go through that.

Has anyone ever had this happen before? I researched it online & it gave me the symptons in an adult and I have a lot of the symptoms, but when I searched for the babies bray had none?

Any info would be appreciated.
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HcoBrunette06

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Posted: 06-21-06 01:10am

Well I don't have any info on it but I really hope everything turns out alright d :)
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katiestiglec

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Joined: 16 Jun 2006
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Posted: 06-21-06 05:45am

The most typical thyroid problems are hyperthyroidism (graves') and hypothyroidism (hashimoto's). These are diagnosed by testing tsh levels initially, and then free t4 and t3.

A low tsh level indicates hyperthyroid, and a low indicates hypothyroid.

These are only two conditions of the thyroid, but they are the most common. You can't "pass on" something in terms of disease, but if you mean genetically, it's possible, but rare in children.

What symptoms do you think you have?

Treating thyroid problems is very simple. In the case of hypothyroidism, a small pill a day replaces the t3 or t4 that your body is not producing.

I could go into more details, but I don't like making people paranoid without receiving more information.....
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DaliciaLynn

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Joined: 29 Jul 2005
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Location: Missouri

Posted: 06-21-06 12:38pm

Symptoms of hypothyroidism (an underactive thyroid)

i have a lot of symptoms from what I put above which are

fatigue, exhaustion
feeling run down and sluggish
depression
muscle cramps
increased menstrual flow
more frequent periods


all of those I have.

I meant my son could have it because of a genetic thing. My doctor told me to get it checked out because his was abnormal the first time, but when they re did it I didnt think anything of it because they said it was normal.

I keep calling the doctor and am getting mad because they havent called me back and I just called again and they said they're at lunch and wont be back until 1:00 I told the lady "the nurse said it was urgent so why isn't she calling me back?"
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oh_mommy

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Posted: 06-21-06 14:32pm

My mom has a thyroid problem cant remember which one it is.. But I remember her saying with one you gain weight and the other you loose weight.. I hope I dont get a thyroid problem.. My mom just takes this small pill everyday for the rest or her life for it.. But be calm and think the best you can.. Hopefully the nurse just said something wrong to make it sound so horrible
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ThriftyGal

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Joined: 21 Apr 2006
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Location: Ontario, Canada

Posted: 06-21-06 14:52pm

Dalicia I don't think you could have an underactive thyroid because typically it will cause you to be over weight. The two people I know who have it both are obese. My ouma has an underactive thyroid, and she is extremely skinny. Same with this other girl I know. Both can eat as much as physically possible and not gain a pound. My ouma is like 5'10 and weighs the same she as she did in highschool, which is like 105 pounds. A lot of the symptoms you named are also common symptoms of anemia (which I have) and which is very common in women.
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DaliciaLynn

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Joined: 29 Jul 2005
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Location: Missouri

Posted: 06-21-06 18:51pm

Just wanted to update you guys..

Well they said bray probably does have it, when they first gave him a blood test it was 4 times past the limit. The normal is 20 which is what the doctor likes it to be, and it was 107 when he got it tested...We tested him again after that and he was a 22 which went down a lot but still isnt what the doctor likes it to be.

So tomorrow we are going to get his blood taken and if its not at 20 then she is going to send us to a specialist which is in st louis, missouri. About 2 hours away. And he'll have to be on medication for the rest of his life, she said if left untreated it could cause mental retardation.

I started crying but then thought, look at all the other kids who have it way worse. I called my mom and she was telling me how this 4 year old gives himself shots in his stomach because hes a diabetic. And it's like jeez...It sucks but i'm sure he'll be okay.

Tanya, I am going to the doctor to get my blood drawn and checked for it, so I guess it'll be a waiting game until then.
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lil_blaze2004

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Posted: 06-21-06 19:15pm

Dalicia I know you don't like me but I do hope everything is ok. I don't wish a sick child on anyone. Trey has asthma so I can kind of understand what it's like to know you're child will be on meds for the rest of their life. Is it usually passed on by one parent? Maybe it's from the father's side.
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ThriftyGal

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Posted: 06-21-06 19:17pm

Good luck, I hope things work out okay. It doesn't seem like it would be fair for you to have even more to deal with.
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michelle1981

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Posted: 06-21-06 19:47pm

I hope everything turns out fine........ I'm sure it will!

Good luck!
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DaliciaLynn

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Posted: 06-21-06 20:08pm

lil_blaze2004 wrote:
dalicia I know you don't like me but I do hope everything is ok. I don't wish a sick child on anyone. Trey has asthma so I can kind of understand what it's like to know you're child will be on meds for the rest of their life. Is it usually passed on by one parent? Maybe it's from the father's side.


they said it's from birth =(
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lil_blaze2004

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Posted: 06-21-06 20:13pm

Is this something he can grow out of? Does your mom have a thyroid prob too? Sorry I don't know much about this stuff. But I saw on a site that it's very treatable if caught young and usually doesn't show up till 2-3months after birth which means they caught it as soon as they could which is good news. You're strong girl, you can handle this!!! What kind of meds is it? I hope it's not some shot. Poor baby.
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DaliciaLynn

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Joined: 29 Jul 2005
Posts: 2322
Location: Missouri

Posted: 06-21-06 20:30pm

lil_blaze2004 wrote:
is this something he can grow out of? Does your mom have a thyroid prob too? Sorry I don't know much about this stuff. But I saw on a site that it's very treatable if caught young and usually doesn't show up till 2-3months after birth which means they caught it as soon as they could which is good news. You're strong girl, you can handle this!!! What kind of meds is it? I hope it's not some shot. Poor baby.


nope my mom doesnt have any thyroid problems, and from what I know it's something they have to deal with long term which is why he'll have to be on medicine for the rest of his life.

Hopefully when they test him it's at like a 20 or something normal so we wont have to go to the specialist. My dad said there are all different kinds, and whatever will make the number drop lower (if its high) then thats the medicine they'll wanna choose.

So basically he'll be put on a whole bunch of different kinds, and whatever works the best and whatever has less side affects for him will be the one he'll be put on.

Its called congenital hypothyroidism, research it if you'd like. It also says that it will cause severe constipation which brayden has had a problem with ever since he was about 2 months old.
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lil_blaze2004

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Posted: 06-21-06 20:35pm

Well then I really hope his levels are down to 20. And I hope yours are ok too. Good luck dalicia.
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DaliciaLynn

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Joined: 29 Jul 2005
Posts: 2322
Location: Missouri

Posted: 06-22-06 16:38pm

Ello, just wanted to let everybody know brayden's levels are normal!!! Just got a call from the doctor! Woo hoo

she said that at his next appt on the 5th we'll re test him again and if his levels are still okay then everything is fine.
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ThriftyGal

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Posted: 06-22-06 16:54pm

That's really really good. I'm glad for you and bray.
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Jolie_3110

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Joined: 04 Dec 2005
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Location: Essex, England

Posted: 06-22-06 17:15pm

Yay!! Hope everything stays alright for him!
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DaliciaLynn

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Joined: 29 Jul 2005
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Location: Missouri

Posted: 06-22-06 17:35pm

Thanks guys =)
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jaime_elms

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Joined: 12 Mar 2006
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Location: newcastle

Posted: 06-22-06 18:20pm

Hope everythings okay hun, let us all know yeah :d
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lil_blaze2004

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Posted: 06-23-06 21:26pm

Phew, that's great to hear dalicia! Yahoooooo!!!
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