Lupus Forum - Do It Or Don't I Have Lupus, That Is My Question!!
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Do It Or Don't I Have Lupus, That Is My Question!!

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natasha0291

New User, Becoming EHEALTHy
Joined: 22 Jul 2006
Posts: 2
Do It Or Don't I Have Lupus, That Is My Question!!
Posted: 07-22-06 18:09pm

Hello! I'm 17 years old and when I was about 7 years old I came home from school one day and took my stockings off (it was in winter) and had red bumps all over my legs. So we went to the docter, who brought up my medical history, and turns out my dad's biological mother (he was adopted, obviously) had serious lupus. He ran some type of antibody or what not test and diagnosed me with underlying lupus. Eventually I developed raynaud's phenonmenon and I deal with that anywhere from 3-8 times a day depending on the weather and room temperature. I always get raynaud's after I eat, always. And occasionally if I rest a cold glass between or on my thighs i'll get these huge welps that burn and eventually go away once warmed up again. My specialist, the one that diagnosed me, retired. Once I switched to a new regular physician he tried to say that the tests run to diagnose me were basically theoretical caca, but how he can he say I don't have lupus if I display all of the typical symptoms? When I tell you i've tried every kind of allergy medication behind and over the counter, i'm not kidding you! Not to mention the ridiculous annoying raynaud's. Anyone on this board know what kinds of blood tests are ran?

Ughh.. Medical problems.. Suck. To say the lest, huh?
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dax

New User, Becoming EHEALTHy
Joined: 11 Aug 2005
Posts: 5
Location: Vancouver

Posted: 07-30-06 03:47am

Well my rheumatologist does a bunch of tests but the thing that confirmed my lupus was my positive anti-dna. That was a while ago though, and my recent blood tests have been negative. I have no medical training, just so you know.

I too have raynaud's. But it's fairly mild. I only get it in my fingers and toes, and it needs to be like less than 10 degrees celcius at least. And it's mild enough that it doesn't stop me from using a pencil or typing.

Yes, being sick can suck. Historically, i've been extremely healthy and fit person. But I just had an oncoming sickness over the past 1.5 years. Probably seen the doctor more times in this period than the last 15 years of my life.
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