I've found you about a month age and have
been logging in to look up my symptoms in
comparison to other peoples. It's always
nice to know you are not alone. I was
diagnosed 10 years ago, but have been
fairly symptom free for 3 years, until
recently.
I was most happy about the person, I
don't recall who, who vibrated. Try
describing this symptom to anyone and not
getting a strange look.
Hi mia,
don't know if it was me you were
referring to...Or a whole bunch of us. I
have twitches, some others called it
vibrations...As far as I can tell we were
all talking about the same thing.
I still have the twitches and my doctor
took me off of a medication for about two
weeks to see if that was it...It wasn't.
Another friend of mine has twitches all
the time too and she said it's common with
a lot of lupus people.
Anyway...I have a friend in tx who may be
very near you who has lupus too, if you
would like I can see if you both want to
swap email addresses.
Clarebear
|
LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 01-26-04 19:52pm
Hi mia! Wecome to the group!
|
mia
Experienced User , Rather EHEALTHy
Joined: 25 Jan 2004 Posts: 147 Location: dallas
Posted: 01-27-04 19:41pm
Hi clarebear,
i'd love to hear from someone here. My
rheumy stopped taking my health insurance
and I need to find someone new, maybe they
have a good doctor. I'm having a
horrible flare and need to see someone
soon.
Do you have vision problems? I've been
getting really dizzy, nauseous and
lightheaded with red eyes and light
sensitivity. My Dr. Wants me to see a
neurologist also, but the doctors don't
know everything about the crazy symptoms
we get.
no, I don't currently have any vision
problems. A lot of my symptoms are very
very light compared to many of the other
people on this forum. I have sle and
have been diagnosed with it since 04/02.
There is kidney involvement but after many
chemo sessions (last one in march, coming
up) my kidneys seem to be on the
up-and-up.
The only real difficulty I have at the
moment is the twitching, but it's not as
bad as it was before the new year
(probably because I got off my duff and
started going to the gym).
I will private message my friend's
email address to you.
Sorry I couldn't help with the eye
problem thingy.
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This page was last updated on June 11, 2008
