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Hysterectomy?

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iris

New User, Becoming EHEALTHy
Joined: 24 Jan 2004
Posts: 4
Location: southeast texas
Hysterectomy?
Posted: 01-25-04 22:14pm

Can anyone tell me if they have had a hysterectomy and how it affected your symptoms of ms? Im 33 years old and worried my ms will worsen. Im currently taking copaxone (2years) and have not had a relapes since I was diagnosed.
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Gailinmdr

New User, Becoming EHEALTHy
Joined: 22 Feb 2004
Posts: 2
Location: California
Hysterectomy & Ms
Posted: 02-22-04 13:20pm

Hello,

i am not sure if you had your hysterectomy yet, but I have ms and I just had a hysterectomy jan. 15, 2004. I too was afraid that the surgery would set off my ms symptoms, but so far it hasn't. There is so resting involved (and required) after the surgery that I think it actually helps with your ms! I also called my neurologist and asked him how I would do and he said to me "you will do fine, good luck with your surgery!" I would suggest that you call your neurologist and see what he/she says.

So, I speak for myself here, but I found that I am doing fine with no ms flare-ups. I am on rebif and I have had ms for ten years now.

Good luck and let me know what you decide!

Gail
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iris

New User, Becoming EHEALTHy
Joined: 24 Jan 2004
Posts: 4
Location: southeast texas

Posted: 02-22-04 13:26pm

Hi thank you so much for replying. I have not had on yet but it is in the future. I read an article where a lady had a hysterectomy and never had an ms flare up again. It had been 10 years. My nerologist said she has never heard of a study on this but said I should have no problems with the surgery. I will keep you posted. Thanks!!
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Gailinmdr

New User, Becoming EHEALTHy
Joined: 22 Feb 2004
Posts: 2
Location: California

Posted: 02-22-04 13:46pm

You are welcome! You know, I was wondering if having a hysterectomy would stop the ms symptoms because there is a relation between hormones and ms symptoms. I almost considered joining a study at ucla about women with ms and taking something to lessen the symptoms (relating to hormones). Have you ever noticed that the week before your period your ms symptoms act up? Mine sure did.

Anyway, I will keep you updated if you want on how I am doing. Please do the same!

Gail
Smile
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stacyhy

New User, Becoming EHEALTHy
Joined: 17 Sep 2004
Posts: 1
Location: Jacksonville, Florida
Possible Ms And Having a Hysterectomy
Posted: 09-17-04 23:50pm

Hi iris,
i'm brand new here and my neurologist is thinking I may have ms too. It could be I have been mis-diagnosed for years now. I am 35 year old mother of two and problems with my periods and births since I got my menstral at 12 years old. I think that if I don't have ms I may have another form of muscle disease and it is now causing many problems with my uterus.After all the uterus is a muscle too. Mine doesn't contract right and I bleed uncontrollably every month. I've also have had periods for as many as 67 days and went without a menstral for 4 months. I have also had lesions found near my spinal cord in two different mri's. I am having a muscle biopsy next month and hysterectomy in nov. Through out my life my hormones have also been out of control. I would always get very ill within two weeks of my periods. Have a week on my period, than I would usually only have one good week of feeling healthy. Good luck with everything. I could go on and on but I don't want to be greedy. Stacyhy Confused
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shelby08

New User, Becoming EHEALTHy
Joined: 21 Sep 2005
Posts: 2
Location: st petersburg
Hysterectomy And Multiple Sclerosis
Posted: 09-21-05 19:49pm

I had a hysterectomy leaving only the ovaries and have had some complications with my ms. The neuro told me that this flare up could be because of the trauma the body has endured.
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