Joined: 28 Jan 2004 Posts: 1 Location: leicester england
Brugada Syndrome Posted: 01-28-04 05:59am
In september 2002 I was diagnosed with a
condition known as brugada syndrome. In
england this illness is very rare, infact
its so rare that im the first person to be
diagnosed in the midlands area of
england.
I was fitted with a icd but developed an
infection where they removed the
defibrillator 7 months later.
I was fitted with a new one but this time
it was placed on the right side. Now ive
learned that there has been movement and
the wire has come out of its location so
they are talking about removing this
icd.
For the first 7 months I was given
anti-biotics to try and clear up the
infection and now im suffering stomach and
colon problems.
It seems just lately that if it aint one
thing its another with me but im trying to
be as positive as possible even though ive
lost a tremendous amount of weight in the
last month and im unable to eat.
Is there anyone else out there whos
suffered similar problems to me and if so
what advice can you give as here I dont
seem to get any answers what so ever.
Thanks.
Les.
|
joef
New User, Becoming EHEALTHy
Joined: 18 Oct 2004 Posts: 3 Location: England
Posted: 10-21-04 03:15am
Hi les
im not a sufferer but my dad is and we
live just in the north of england. I
cant really relate to the infection you
had bud the icd moving around happened to
my dad
as u know they place the icd in a pocket
in the muscle and obviously it is meant to
stay there but my dads slipped out and
started moving around towards his kidneys
and he had to have it removed and a new
one placed in a different area, his
shoulder.
Might it be the case that the icd is too
small to fit into the pocket of muscle
where it is and maybe yours needs to be
replaced the icds are now like the size of
soap so maybe you could enquire about
maybe them moving your icd into your
shoulder as not only my dad but other
sufferers in the family now have
i hope this helps please respond I would
like to know what u think
many thanks
joe fairbridge
|
joef
New User, Becoming EHEALTHy
Joined: 18 Oct 2004 Posts: 3 Location: England
Posted: 10-21-04 03:15am
Hi les
im not a sufferer but my dad is and we
live just in the north of england. I
cant really relate to the infection you
had bud the icd moving around happened to
my dad
as u know they place the icd in a pocket
in the muscle and obviously it is meant to
stay there but my dads slipped out and
started moving around towards his kidneys
and he had to have it removed and a new
one placed in a different area, his
shoulder.
Might it be the case that the icd is too
small to fit into the pocket of muscle
where it is and maybe yours needs to be
replaced the icds are now like the size of
soap so maybe you could enquire about
maybe them moving your icd into your
shoulder as not only my dad but other
sufferers in the family now have
i hope this helps please respond I would
like to know what u think
