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Hysterectomy Nightmare!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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hot missy

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 4
Hysterectomy Nightmare!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted: 01-29-04 16:47pm

Hi , I am new on this forum and thought I would share with some of you what happened to me. I went in for what was suppose to be a "piece of cake hysterectomy" which was the doctors exact words as he walked away from my post op bed to get all scrubbed up. Anyways it ended up being a nightmare. A week before my surgery I had a pelvic exam done along with a pap smear to make sure everything was good. According to my doctor everything was good there were no signs of anything abnormal. I wasn't really worried about it I just wanted it to be over so I could have a normal pain free life. Anyways, a hour surgery ended up being 3 hours and 15 minutes. When they wheeled me into surgery my nightmare begins. I started hemoraging as soon as he got close to the cervix ( which had severe endo) and my uterus was 4 to 5 times the size it was suppose to be and was full of endo. He said all he was doing was clamping off blood vessels. When I read some of my pathology report it stated I had a cysts that was 191 grams which was almost 2 pounds and it was on the funuds of the uterus. Can a doctor miss that big of a cyst? Also they had to call in a urologist to cut a hole in my bladder to see if it wasn't damaged, after that was done they ended up putting a stent in one of my ureters to make sure it didn't colapse. I have to have a catheder for the next three weeks and after that they will take an x-ray and see if they can take the stent out. I use to love my doctor, but I have changed about him. I also had to have a j tube put in my abdomin to drain the blood, the first night it was 400 cc's and was like that for about 3 days finally the other day I got it out, which hurt!! Know I am in tears all the time over this. I can't understand why he wasn't able to feel my uterus or atleast the size of my cyst. Also, I had sent over 10 of my friends to him and really respected him. My family is just glad I am stil here, but when I think of all that went wrong, I cry and am so thankful I wasn't looking down on myself and talking to god and him telling me what had happened. Teary eyed hot missy
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neddyb

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 5
Hysterectomy Nightmare!!!!!!!!!!
Posted: 01-29-04 16:57pm

So sorry to hear about your story Confused I am actually in the process of making a decision to have one. It is a very scary decision. I trust that all will go well Exclamation how are you doing now Question where do you go from here....Let me know, please!!!!
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jack brookshire

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 1
Nightmare!!
Posted: 01-29-04 17:13pm

Sorry to hear about your problems! Having just gone through this with my wife, your story interested me. We also had to remove cysts, only hers were multiple. She went trhough a post op depression( in english, she was scared!). It may or may not help you to know, she now considers it the best thing to ever happen to her. Her pain is gone, she is losing weight, and her sex drive has tripled. E-mail me anytime to discuss or if ya need a shoulder
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neddyb

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 5
Nightmare!!
Posted: 01-29-04 17:27pm

Thanks for the input...
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hot missy

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 4

Posted: 01-29-04 17:35pm

Hi neddyb, I am stil in the recovery stage.
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hot missy

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 4

Posted: 01-29-04 17:46pm

Nebbyd, this was a very unusual situtation. Don't be scared. Please make sure you have a ultrasound before your surgery. I put post op instead of pre-op(before surgery) so I am stil in the recovery part. I had my surgery 2 weeks ago. I am for hysterectomies, because there are so many benefits for having it. I just never imagined I had an enlarged uterus, after all he delivered 2 of my babies so I would think he would know if mine was that large. No ultrasound was done, because he didn't feel it was necessary, if he would have the people in the operating room would have been on their toes!! They would have also been more prepared. Let me know where your from and I willl tell ya if you are in my state. Take care teary eyed hot missy
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neddyb

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 5

Posted: 01-29-04 23:39pm

Hot missy, I am in georgia. I thank you for your honesty. I have been viewing the questions and comments and it has helped some what. One thing I totally realize....Everyone is different and has different experiences with their surgery experiences. I believe that I am going to have the partial hysterectomy. I have two beautiful healthy boys, ages 10 and 7. I was kinda holding out for a little girl... I really need to make a decision for health reasons. I hope to chat with you again. Exclamation
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kayfla

New User, Becoming EHEALTHy
Joined: 15 Jan 2004
Posts: 16
Location: Florida
Hi Misti
Posted: 02-03-04 08:14am

I am in florida and my name is kay, I had a total hysterectomy 3 months ago, which was november 2003, my doctor told me the same, that all was gonna be okay,, well, just the oppisite, I am 41 and thought I had the knowledge of seeing threw people who would hurt you, my dr was a nightmare, totally different...I starting hemoraging after he either forgot to completly take my right ovary out, or was trying to kill me. After surjury he came to my bed because I was begging for pain relief, he had given me nothingfor pain ( no pump) nada! I watched my stomach grow with fear because I could not breathe, for my stomach was filling with blood, I had some idea, I was fading in and out passing out..The nurses watched in fear and was telling my husband to make sure he took me to another hospital , for they were gonna release me soon with my blood count was 4 and my crits: 16.... I was dieing, I tolf my husband to call my oldest daughter that was out of town and tell her I loved her, thats when the dr came in ,, told me to go home and take some ibuprofrin and some iron pills,, I said yeah ok,, my husband had our truck pulled up to the door and the nurse said to me & him:: get her to shands in gainsville fla.. Fast! As he drove I said, honey I will lie down at home, he said kay,, you are going to shands now! I said okay, I had no strength...We drove 20 miles or so, and the dr there saw the colour of my face which was a bluish grey, and they called in dr stewart obgyn. He told me that my tummy was full of blood, then he packed my vagina, and sent me to icu, for several hours while they gave me enough blood, so that I could handle surjury okay.. I had 2 pints in the er.. @ more during a 6 hour surjury.... I have had difficulties ever sense, my bladder is not the same, my bowels are not the same, my mood is within my pain on the inside, and outside due to the fact, I cant trust doctors too well. I pray alot, I am asking you to do the same, pray misty,, we are the world. Women rule, without us women,, men could not make it, I watched the nurses at the hospital, the Dr.S are nothing without them. Lol.I will light a candle for you misty and pray for you and hope that your body becomes yours again... You take care and write me anytime,, p.S. Where are you from? Talk with you soon.. Bye bye..
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hot missy

New User, Becoming EHEALTHy
Joined: 29 Jan 2004
Posts: 4
Hot Missy Back From the Hospital For the Second T!!!!!!!!!!!
Posted: 02-05-04 01:17am

Well, I just got back from being in the hospital(i went to another hospital) for another 5 days. I have a new gynecologist and a new urologist, who isn't happy with the doctor that did my hysterectomy. I had to have 2 pints of blood and I also had a bad infection in my pelvis area. I also have a hematoma, an abcess and a cyst near my bladder. The new hospital I went to the er doctor felt so sorry for me, because I was so bloaded up and had so much adema. The infection is probabaly from having to wait an hour on the operating table for the urologist to get there. My old doctor has lied to my family( thank god I had alot of my family there during the surgery) and I am so thankful I am stil here. My new urologist is going to take me to surgery in a few weeks and will make sure that the stent they put in is working and that everything is fine in there, before he takes the stent out. I have cried everyday from this whole ordeal, and have become closer to the lord. I am going to college to become an rn and have learned alot of things while I was in the hospital. One big thing is compassion for patients(which I have always had anyway) thats why I wanted to become a nurse in the first place. Lastly, before anyone gets a hysterectomy make sure that you check your doctor out with the board of medical examiners in your state the hospital has reputable standings with the state. Also, make sure he does an ultra- sound of your pelvis area and is very through-all. Sincerely, hot missy thats on the road to recovery!!! Thank the lord!!
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kayfla

New User, Becoming EHEALTHy
Joined: 15 Jan 2004
Posts: 16
Location: Florida
Hi Misty
Posted: 02-11-04 05:01am

Its me again kay! I am so sorry for you have had to endure. I too have had the same thing as you. Its good we can share this here together. Yes the lord has helped me too. I have several forums here that you should read. I will continue to pray for you. God bless and take care and rest, rest, rest. Bye for now..
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nabrown

New User, Becoming EHEALTHy
Joined: 11 Jan 2004
Posts: 6
Location: syracuse, new york
Hysterectomy
Posted: 02-11-04 09:06am

I too have had a hysterectomy---but I have a different outcome !!--mine was total & is the best & smartest thing I have ever done--no complications--no more bleeding or pelvic pain. I am on a low dose of estrogen.--i have no more mood swings--actually, I feel better than I have in years !!!!!
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