Joined: 04 Nov 2006 Posts: 2 Location: South Florida
Organic Brain Disorder Secondary to Systemic Lupus Posted: 11-04-06 21:07pm
I have been seaching the boards for the
above topic or a posting. It is very
difficult to search for topics as postings
are made under topics but often the true
subjects are all over the place. In
addition, the subject is not usually a
"subject" but rather a request or some
other non subject statement.
I have severe organic brain disorder which
has been evaluated through
neuropsychiatric testing. The results
were very frightening but since my
insurance was cancelled effective 3 days
after I was given the test results, I do
not know anything about the prognosis,
what to expect, what to tell people, the
legal ramifications, nothing.
I don't even know whether the brain damage
could be due to something other than
lupus. I will have medicare next july but
until then??????? I am scared to death
and I have a 9 year old daughter. What do
I do? I live in south florida and they
are not so charitable here.
It took over an hour to draft the message,
everything takes a very long time. I was
diagnosed with lupus 15 years ago and have
never had a remission. How quickly will
this disorder progress? I am very
educated but can hardly deal with every
day paperwork and forget 4th grade
homework I
make tons of mistakes such as paying the
wrong bill, paying an incorrect amount,
etc. If I go out of the house I
frequently get lost. Not lost in front of
my house, but if I drive into town.
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reneblack
Experienced User , Rather EHEALTHy
Joined: 07 Nov 2006 Posts: 247 Location: A beautiful place, CA-USA
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