Hi I'm New Here... Don't Have a Dx (yet) Posted: 11-25-06 22:25pm
Okay, so I was looking up my symptoms
which no one is listening to online and
everything I look at points to lupus.
I do have raynauds phenomenon.
I have the "butterfly rash" on and off,
never have I been to the doctor when it's
there though. I have tons of fatigue,
I have joint pain, and weakness... Many
other symptoms of lupus. I'm confused
sometimes, almost disoriented like I can't
concentrate or lost the information that
was given to me. I also recently had
these weird mouth "sores" the doctor told
me they weren't sores but inflammed glands
on the roof of my mouth. Sjorouns has
been mentioned but none of the doctors
i've been to want to look further into
"just yet".
I'm at wits end, i'm to tired to do
anything it's affecting my job, my
schooling, my parental duties, everything.
Everyone thinks i'm nuts and lazy.
All I want to do is cry about all of this,
and have someone make it all better.
Can anyone give me suggestions on what my
next step should be? Do I just ignore
my doctor and oral surgeon (the one I went
to for the sores I had as I was referred
to him) and schedule an appointment with a
rhematiodologist (is that what they are
called?)
help!!! I'm crying today as I type
this, one because i'm overly emotional
about this now and two because it hurts
today to even type. I can't get enough
sleep either it seems.
Eta also, I get hives every single winter
for the past couple of years... First I
was told it was flea bites, got rid of the
animals because I had to move and still
got them... Then I was told it was dry
skin, finally I was dx'd with hives but no
one can tell me why I get them all winter
long. They are always on my torso,
legs, and arms. I don't think i've ever
gotten the "hives" except for that
"butterfly rash" on my face. I do have
allergies but the winter doesn't seem to
be related to why I get hives as far as
having an allergy to something.
Eta (again): I also have mvp (mitral
valve prolapse) and keep getting dizzy and
weird "zaps" in my head. If I think of
more i'll post more... Sorry i'm all
discombobulated (sp?)
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HangNguyen
New User, Becoming EHEALTHy
Joined: 29 Mar 2005 Posts: 18 Location: Bay Area
Posted: 11-26-06 12:58pm
If you read more forum about lupus, then u
should know many ppl who has lupus all
went thru what u've....The best is to do
lota of blood test, hormone test, and
rest, rest, rest....Stress free, worries
free..Althought it's hard to do...Most
doctors in us don't know much about lupus
or can't diagnosed lupus in time before
you know it, u end up in the hospital or
flares up when it's too late. Imho, most
obgyn don't know much about lupus or
symptoms of lupus, especially when our
body hormones changes, and they just
ignore it. Like hormone depletion, that's
when your immune system at the lowest and
when ur vunerable, that's when lupus will
attack your body. Whether ur a man or
women, we all need to test our hormone
chemicals in the body; thyroid,
testosterone, estrogen, etc at all ages,
whether puberty or menapause....Becareful
what you eat also, cuz since the immune
system is vunerable, ur more susceptable
with food allergies.....
Maybe you do have lupus in your family
histories but you didn't know about
it....So see your rhematologist and other
doctors also. Not just see one
doctor...Endocrine, obgyn, nephrologist,
urologist, opthamologist, not optometrist,
do colonoscopy and endoscopy if u needed
to and wear gloves and socks at all
time...
