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No "cause" For My Pain?

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NickVellios

Experienced User , Rather EHEALTHy
Joined: 01 Nov 2006
Posts: 55
No "cause" For My Pain?
Posted: 11-29-06 17:58pm

I have been experiencing severe chronic back pain for the past 4 years from a car accident and severe neck pain for the past 2.5 years from a violent assault resulting in two compound fractures of my mandable.

I have had x-rays that showed that my spine was straight as an arrow but they didn't show any "damage". I went and had bone and soft tissue mri's and they showed nothing but my pain is there. I was tested for ankleosing spondilitis and it was negative. There is no apparent nerve damage.I went to physical therapy and it made me worse since the pain is deep and doesn't feel like muscle pain. It feels like it is in the bone and the pain radiates into my skull/brain. So I am now stuck taking pain medicine. I went from tylenol/advil to motrin 800 to darvocet to muscle relaxers to vicodin then ultram er/tramadol and now oxycontin with vicodin for breakthrough pain. It manages it fairly well seeing as I can work again now. My pain is down from constant 7-10 to 3-6 with severe 10 pain occassionally still.

My question is to anyone who is in my same position. No diagnosis, just pain. How do you manage your pain? How long have you been undiagnosed? I have had doctors look at me and say "you look fine, there's nothing I can do". So I found a good doctor who did all the tests and finally referred me to a pain specialist because my pain got so bad that I wasn't able to work.
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NickVellios

Experienced User , Rather EHEALTHy
Joined: 01 Nov 2006
Posts: 55

Posted: 12-09-06 06:07am

Nobody, huh?
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croxie

New User, Becoming EHEALTHy
Joined: 08 Oct 2006
Posts: 13

Posted: 12-11-06 08:27am

Yeah...I'm in that position.
Since my hysterectomy 11 years ago when removing a cancer tumor, i've had a severe burning pain that got even worse since I had my gall bladder removed a couple of months ago.

The pain clinic focused on my epilepsy since they thought it had to do with that and it all ended up that we couldn't agree, so I walked out.
I've had the epilepsy since I was 12 years old and no pain until 11 years ago. I'm 42 now.

Today i'm trying to get rid of the addiction that tramadol created after the gall bladder surgery (and a second surgery to corrrect a mistake made by the first surgeon). The tramadol won't make any difference for this kind of pain and the only thing that i've had success with is morphine.
But because of hallucinations i'm staying as far away from that as I can come.

Chronical pain without an obvious cause that can be pointed out on scans or x-rays makes doctors and specialists uncomfortable and we're among those who are either labelled as hysterical or they assume we make it all up. Their ability not to understand or see beyond what they once learned is saddening and unfortunately it makes life very difficult for us who are not "accepted" as being ill.

My pain is a deep roaring pain that shows up from nowhere. I have a clear nerv damage after the hysterectomy since I have no sense of feeling at all on the inside of my thighs, but since the mri won't show anything wrong with my back, they automatically ignore any other symptoms.

Take care and know that you're not alone.
There are millions of people out there in the same situation.

Christa
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