Joined: 29 Dec 2006 Posts: 1 Location: West Virginia
Taking Several Seizures a Day Posted: 12-29-06 12:03pm
I work with several clients, all of which
who have various levels of mental
retardation. I have one client who takes
anywhere from 6 to 40 seizures a day.
It's very random but the amount on the
average day is close to 30. On good days
it is less than ten – which may only
happen a couple times a month.
During her menstrual cycle she takes fewer
seizures.
Her seizures usually last less than a
minute and range from just stiffening up
and staring to stiffening and jerking all
over. When she is finished she takes
gulps.
She is on medication and has had a
magnetic thing placed in her chest. I
can't remember what it is called right now
but I can almost say for certain it is not
being used properly or monitored properly
by her doctor. Her family said it never
really worked anyway.
She sees a neurologist, but the doctor
does not seem to be doing anything
positive.
My question is this. Does anyone know of
someone with a similar condition who has
found successful treatment? When I do my
visits with this family it bothers me to
see her take so many seizures in one day.
It is also very hard to find staff to be
with this client as most people are
intimidated by all the seizures.
Any help, advice, or suggestions would be
appreciated.
|
Serena10
New User, Becoming EHEALTHy
Joined: 18 Jan 2007 Posts: 7 Location: Queensland, Australia
Posted: 01-19-07 06:51am
Hi,
i worked in a special school for a short
time and observed what you have described.
For that particular young girl the
conceptive pill was very effective as it
was suggested that her seizures were
related to hormones. Also as heat was a
factor for her, we avoidied to much change
in temperature.
Good luck, I hope something can be done to
assist her.
|
shorty1825
New User, Becoming EHEALTHy
Joined: 22 Feb 2006 Posts: 27
Excepting Seizures As "way of Life" Posted: 05-23-07 16:39pm
Hi, I'm not a doctor or anything. So I
really cant help you from a medical stand
point. What I may be able to do is to
shine some light on the "patient" side of
things.
I have had Seizures for about 25 plus
years now. Mostly I have Complex Partial
Seizures; but, I have been known to have
Grand Mal, Petit-mal, Simple Seizures as
well. Anyways, I can remember days having
40 to 50 Complex partial Seizures during
one day. It's can make a person go crazy!
On these days, I would call my
neurologist and cry, telling him how many
I already had and that I wanted to "commit
myself to a Physic ward or something
because I didn't know how much more I
could handle. I was a mess on these
days. My Neuro would adjust my meds to
try to gain better control. This took
many years to do. Some of the Meds used
to "gain control" of seizures, have side
effects that make Seizures seem like a
"Walk in the Park". For example, my
Neurologist placed me on Klonopin to see
if this would help. I took this for
1-week. AT the end of that week I was on
the phone to my Neuro asking for something
else because dealing with the (Heckle and
Jeckle type) side effects was worse than
dealing with Seizures. This was one Med
that (for me) caused 24/7 severe PMS mood
swings. One minute I would be a sweet
mommie and the next minute I would be out
of control.
I say all of this to say that in some
instances, dealing with what ever number
of Seizures per day is better that adding
side effects of some Medications used to
gain control of Seizures.
I am now taking Felbatol and Keppra.
Felbatol was my last hope before brain
surgery. If this med didn't provide some
type of control, I was headed for brain
surgery. Thank God Felbatol has had some
control. I still have Partial Complex
Seizures but, more often I experience
"Simple Seizures". My day of endless
Seizures have been replaced by a 10-day
period in which I may experience 10-40
Seizures [from Simple to Grand Mal]. To
me, this is exceptable (better than it
was, anyhow).
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