Pulmonary Embolisms Not From Legs Posted: 01-10-07 21:12pm
I am a 43 year old female who on dec. 11
was diagnosed with multiple pulmonary
embolisms. I had a ultra sound test done
on my legs and everything showed up
normal. I had no swollen areas on my
legs, no injuries, don't smoke, not on
birth control, no family history of blood
clots, no long trips...Nothing. I am
concerned as to why I developed these
clots and can't find anything on the
internet. Almost all of the people with
pulmonary embolisms got them from their
legs. I am on warfarin now and for the
next 5 months and then my doctor said I
will come off it and that will be it. I
am worried that I will develop more after
I stop taking the warfarin. If anyone has
had multiple embolisms and can share their
experiences here that would be great! I
am living with such anxiety now because of
the unknown and hope to hear of others who
have had mutlitple clots that didn't start
from the legs and that got answers as to
why they developed them.
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kgac
New User, Becoming EHEALTHy
Joined: 01 Feb 2008 Posts: 1
Multiple PE's - from somewhere... Posted: 02-01-08 15:45pm
I too had multiple PE's in my lungs...
spent 10 days in the hospital while they
looked & poked and prodded - asked
over & over about airplane travel.
birth control, family history - etc
etc.... My legs were also give a "clean"
bill of health.... But, as one Doctor
explained to me... those clots could have
formed, broken free and left no sign of
the original location... so instead of
stressing about WHERE they were... we
opted to focus on how not to have any more
form at all - anywhere. This was back in
July of 2005... and I have been on
coumadin ever since.. I struggle with
keeping my PT-INR levels at the 2.5
goal... but don't have sleepless nights
worrying about new clots forming. I get
checked by my GP every month (or sometimes
more often if levels are out of whack) and
then back to my Hematologist once a year
for a review... I can live with the daily
pill taking and slight side effects from
medication rather than worrying over every
little "symptom" that may or may not be
another clot... Hope this helps!
