Lupus Forum - Misdiagnosing page 2
medical questions | health forums

Misdiagnosing

New Topic  Reply  Ask A Doctor - Offline
Medical Questions-> Health Forums -> Lupus -> Misdiagnosing
Author Message
Georgie

Experienced User , Rather EHEALTHy
Joined: 22 Jul 2003
Posts: 58
First Sharon And Then Rita
Posted: 09-04-03 20:45pm

Sharon,
after years of working with and without this pain I do declare you deserve your ss and if needed you should use your doctors diagnosis for what ever ails you as they declare to get your ss. My hat is off to you because I get really urked at (and I don't use this term loosely) loosers who suck the system for all the milk they can get for nothing and leave us the servants of society (people who work for a living) to pay our taxes so the loosers in life get a free ride and our health takes the toll of our freedom to enjoy life after our work years are done because we are in to much pain to enjoy it but we have to work our butts off for that almighty dollar they take from our taxes to give to them. Embarassed sorry I had to vent. You go girl. Try to rest before you get the g-children so you can enjoy their visit. I do find that taking a very hot bath with 1 cup epsom salt and 1/2 cup sea salt help to ease some muscle soreness. But your bath has to be hot enough so that your skin shows the blood at the surface (red skin) to get the best results. Remember what works for one person doesn't always work for another though. Have a nice weekend.



Rita,
your right when you speak about using mind over matter to ease the pain, I do that not only for the muscle pain but for my awful migraines as well. But some days as you said the body gets to a point that it just can't fight any more and that is when we have really bad days. On these such days I am bed ridden to restore my strength to start fighting all over again the next day or the day after that. Depends on how exhausted my body is from the previous mind over matter fight.
But no matter how much pain I am in I have in the past couple of months been slowly strength training my body to make my muscle stronger in hopes that it helps to lower the pain level and so far I have been accomplishing that. Lowering my muscle pain is working thus far. I see you have 5 good reasons for a good fight, but if you take it a step further and you have five reasons not to be in pain.
I tell myself every day that one day soon I will have the fittest body I ever had and there is no reason it should be in pain and that is how I intend to rid my body of pain. Mind over matter.
I can't take pain killers and also the pain killers will suck your life right out from under you and I sort of think this is how I got into this painfull mess to begin with. I had taken some painkillers for a back injury and since then I have had nothing but problem with pain and yet my back is fine.
Any thoughts.
Have a great weekend ladies.
Georgie Laughing
Did you find this post useful?
|
MotherAngel

New User, Becoming EHEALTHy
Joined: 03 Sep 2003
Posts: 6
Location: Nebraska
Friends
Posted: 09-05-03 07:31am

Hi georgie and sharon, I know how you are feeling sharon. No matter what day it is I am in some kind of pain. I am on the strongest dose of muscle relaxers that you can be on and it does not help like it used to. And fighting for ss is a long hard fight. It was hard for me because I was only in my 20's when I went on ss and ssi. I had to go see a physcologist to prove that it was not all in my head and I fought for over 2 yrs. It is rough raising 1 child on ssi and ss but I have my boyfriend that helps with my daughter and then we have custody of 2 of his 3 children. But I am lucky now because sarah, my daughter is 9, and his two amanda is 12 and rebecca is 14, so all of my kids are teenagers. The boy don't live with us and he is 16. So they help me out alot. I am lucky because I don't have lupus and I don't know if I will ever get it but my fibromyalgia is just as bad. On top of fibro. I have degenerated disc desease inmy neck and back with bursitis in my shoulders, knees, hips and wrist. So at the age of 36 sometimes I feel like giving up but then I look at my family and I can not do that because they mean the world to me.
Thank you georgie for the information on lupus because I was not to sure what exactly lupus affected and now I know. Sharon you take it as slow as possible this weekend with your g-babies and try Laughing not to over do it. I know that is going to be hard. I am going to my boyfriends sisters house this weekend so I have to clean before we leave tonight and get ready for that long three hour drive and then the weekend of fairs. So I will be back on on monday morning and I hope you both have a wonderful painless (as little as possible) weekend.
And thank you for being here for support and understanding and for the information. I don't know about you two but I know that I have been in a better mood since finding this sight and being able to talk to you two who understands.
:d
Did you find this post useful?
|
sharon

Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
G-babies
Posted: 09-05-03 21:40pm

Hi ladies, Smile well it's friday night and I finally got them to sleep at 9pm the baby is coughing but I was only able to get half a dose of ped. Cough med. In her. She sees you with med. She runs!!! Can't blame her it taste nasty. Now if only I could sleep. Thats half my problem when I have them I can't sleep for anything. I dose but I don't ever fall all the way to sleep. Every little sound they make ,my eyes pop open. In the mean time they sleep soundly until about 5:30 or 6am. By then i'm ready for a deep sleep. I wouldn't trade them for anything! I do okay when their here but when they leave my body lets me know it.I started this day off with a mean headache!!!! My headaches are getting worse again I wish I knew whats causing it.Who knows! We have been fighting a virus in our computer. Of all things -it is nasty porno! Twisted Evil i'll be typing away and look up to have boobs or worse staring me in the face! My nephew is acomputer expert and went in and cleand it out or what ever they do. It took over 12hrs. To do it and we are still getting some pop ups. He installed a high tech security program in also! Have you two had any problems like this? Well I better try to get some sleep. Talk at you later.

Sharon Smile
Did you find this post useful?
|
MotherAngel

New User, Becoming EHEALTHy
Joined: 03 Sep 2003
Posts: 6
Location: Nebraska

Posted: 09-08-03 07:11am

Goodmorning sharon and georgie,

well, it is monday morning and I feel like sleeping for the next 3 weeks. It was a long weekend and full of activities. Besides all the activities there was alot of stress with 5 girls ( 3 teenagers) to deal with this weekend. But I made it through and I guess that is what counts.

Sharon, I haven't had a virus yet but my boyfriend did tell me last night that someone is sending a virus through email with the topic 911 supporters. So anything to do with the 9-11 attacks that comes through our email we are just deleting right away with out opening it up. You both watch yourselves with these viruses that are going around on the computere.

So how was your ladies weekend? I hope that everything is going okay for you guys this fine morning. Sharon, you probably need to sleep to catch up on your sleep that you lost this weekend while enjoying your g-babies. Well ladies, I have alot of work to do this morning to catch up on that did not get done this weekend. So I will talk to you all later.

Take care. Smile
Did you find this post useful?
|
sharon

Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
Sleep!
Posted: 09-08-03 20:00pm

Hello ladies, I barely survied my weekend! It didn't end until this evening. I'm pooped!! My feet hurt so.......Bad!!!! I think teenagers can be as hard on our bodies as g-babies. It will take me all week to recoop.
Gorgie I ask my husband about what you ask me. He said he thinks we have that,but he's not sure how it works. I will need to ask my daughter-in-law this used to be hers. We can seend a private message and exchange e-mail addresses. I'll try to seend you ladies mine. Just don't laugh at my e-mail name I think it' cool! Smile
sharon
Did you find this post useful?
|
sharon

Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
Opps!
Posted: 09-08-03 20:42pm

Georgie and rita, I tried to send you both a private message and it told me no such users exsist. I used both your user names,i don't understand why it didnt work! Sad sharon
Did you find this post useful?
|
MotherAngel

New User, Becoming EHEALTHy
Joined: 03 Sep 2003
Posts: 6
Location: Nebraska
Goodmorning Ladies
Posted: 09-09-03 08:27am

Well, sharon I don't even know how to send private messages but I do have an email address that I will give to you both.
My doctor called yesterday. They got my test results back and the only thing that came up on my test was that my white blood cell count was a little high. So because I am still have problems he wants me to go see the r.A. Dr. In omaha. He was going to call and get me an appointment for as soon as possible and then let me know. I can't understand these drs. They keep saying that I am having more problems because I probably picked up some type of virus that has made it flare up. But I get viruses alot, with three children you get what they bring home, and it has never affected me this bad before. I can't believe all the problems I am having and my boyfriend don't want to know anything about it. I guess it is because he is worried. But when I didn't have you two to talk to then I had no one and that does not help in the least bit. So thank you for that.


I hope that you are all rested up and recooped from this weekend. I guess I am as much as possible . Hope to hear from you both soon.


Rita
Did you find this post useful?
|
Georgie

Experienced User , Rather EHEALTHy
Joined: 22 Jul 2003
Posts: 58

Posted: 09-09-03 10:07am

Morning ladies, I think there is a glitch in this program momentarily because when either of you would post before I would be notified by email which I have not received this week at all.
My email is rnagy@canad a.Com usually i'm on most of the morning and in the evening.
You see I work at a tool and gauge business and right now the business is so slow and I spend most of my day playing on the computer. (i'm the bookkeeper) Rolling Eyes
it is not fun having any kind of headache is it? I have had a migraine type headache for almost 3 years, some days are worse than others. And working in a tool press business is no pleasure with one but I try and tune the noise out. Works most times.
Rita you and sharon are more than welcome to call on me for support, a sounding board or anything you need to get off your mind or chest. As my hubby said yesterday as he was loudly complaining about heartburn "good thing for him I am a good natured person that doesn't take to heart when somebody vents on me" I don't take to heart what is not purposely directed to me personally.
Talk at you ladies later. I will send a detailed account for private messages.
Georgie
Did you find this post useful?
|
kwillim01

New User, Becoming EHEALTHy
Joined: 27 Aug 2008
Posts: 1
I Understand
Posted: 08-27-08 13:13pm

9 years ago I was 24 years old and 2 months pregnant when I woke up one morning with a sore throat. I did not seek medical attention because I thought it would go away. A week later I woke up with a rash (hives) and joint pain throughout my body. I went to serval doctors and no one had a clue what was wrong. By my 6 month into the pregnancy the symptoms subsided. I thought I was healed. But a year later it reappeared (sore throat, rash and joint pain). I went doctor and he referred my to the rhemi. I went to the rhemi and he said it was my weight causing the joint pain. Now mind you I was over weight but I told the dr that doesen't make since because I was always a healthy kid and athletic. Well 9 years has passed and I have been told I had Lupus, Rhematoid Arthritis, Fibromyalgia and Arthritis. Over the nine years I was given steroids to for this so called auto immune disease. Sometimes I sit and cry wishing the doctors would have listened to me and maybe all this pain and suffering could have avoided. See, I did have Lupus, RA, or Fibromyaglia I had strep. Strep Throat can cause joint pain and rash if let untreated. Remember I thought I just had a sore throat I never thought it was strep. Now due to all the immune suppressant the strep has mutated in my system causing my body much pain. Sometimes I wished I just would have went to the doctor for the sore throat.
Did you find this post useful?
|
Jump to:  
Goto page Previous  1, 2
New Topic   Reply



Page 2 of 2
We comply with the HONcode standard for trustworthy health
information:
verify here.