musikmaker
Extremely EHEALTHy
Joined: 30 May 2006
Posts: 1754
Location: Chicago, US
Thanks: 10
Thanked:2
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Very Worried
Posted: 01-26-07 21:16pm
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Hey everyone. I have a very disturbing
thing happening to my 16 week old nephew.
Today he was admitted into the hospital
because has only gained 1 ounce since he
was born. He was 8lbs 6 oz when born and
is now 8 lbs 7 oz. My sister is flipping
out because she feels terrible because she
missed one appointment because they moved
3 hours away and couldn't find a
pediatrician that she liked. The dr's
aren't blaming her because he was eating
every two hours and he was eating around 6
oz every time. He also was eating cereal
and not even spitting up. They know that
it is not cf which is what she was scared
it it because she is a carrier and never
got her husband checked. Anyways, the drs
can't find anything wrong but I was
wondering if anyone has ever heard of
anything like this before.
Noah when he was 1 day old
noah a few weeks ago, you can see that he
has gotten very sick looking
i wanted to show you the pictures so that
maybe it would ring a bell if anyone has
ever heard about what he is going through.
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Magical Logic
Extremely EHEALTHy
Joined: 14 Mar 2006
Posts: 2248
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Posted: 01-26-07 21:42pm
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Oh my I am sorry I hope he gets better
soon. Wish I could help you out but I
dont have a clue
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Idony
Supporter
Joined: 23 Sep 2006
Posts: 1611
Location: virginia beach, va usa
Thanks: 11
Thanked:0
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Posted: 01-26-07 22:03pm
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Thats terrible, but I have no idea what it
could be, give him lots of hugs and your
sister and your nefew will be in my
thoughts, I really hope he gets better
soon, I hate to see little kids sick, its
heart breaking
just wondering what that cf thing you
mentioned is? Just curious, I dont think
ive ever heard of it
~alicia~
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Nataliachick7
Extremely EHEALTHy
Joined: 02 Apr 2006
Posts: 1535
Location: Wisconsin
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Posted: 01-26-07 22:43pm
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| idony
wrote: | thats terrible, but I have
no idea what it could be, give him lots of
hugs and your sister and your nefew will
be in my thoughts, I really hope he gets
better soon, I hate to see little kids
sick, its heart breaking
just wondering what that cf thing you
mentioned is? Just curious, I dont think
ive ever heard of it
~alicia~ |
cystic firbosis.
Are they positive thats not what it is?
To me it sounds like he has some sort of
disorder where you dont abosorb certian
nutrients. He should def. Get tests done
by a specialist. Good luck.
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musikmaker
Extremely EHEALTHy
Joined: 30 May 2006
Posts: 1754
Location: Chicago, US
Thanks: 10
Thanked:2
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Posted: 01-26-07 23:06pm
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They are running so many tests on the poor
little guy. They don't think that it is
cf because his lungs are perfect. Oh I
forgot to mention that he has this rash
all over his back. My sister thought that
it was a milk allergy but she was wrong.
It's her third son so she is beating
herself up that she didn't take him to the
doctors earlier.
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Nataliachick7
Extremely EHEALTHy
Joined: 02 Apr 2006
Posts: 1535
Location: Wisconsin
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Posted: 01-26-07 23:13pm
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| musikmaker
wrote: | | they are running so many
tests on the poor little guy. They don't
think that it is cf because his lungs are
perfect. Oh I forgot to mention that he
has this rash all over his back. My
sister thought that it was a milk allergy
but she was wrong. It's her third son so
she is beating herself up that she didn't
take him to the doctors
earlier. |
so what was the rash?
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musikmaker
Extremely EHEALTHy
Joined: 30 May 2006
Posts: 1754
Location: Chicago, US
Thanks: 10
Thanked:2
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Posted: 01-26-07 23:43pm
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They don't know. They have him in
isolation right now and only my sister can
hold him. I feel so bad for my sister
because so many things seem wrong with my
lil nephew.
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ladylee70
Extremely EHEALTHy
Joined: 14 Nov 2006
Posts: 1912
Location: Boise, Idaho,
Thanks: 1
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Posted: 01-27-07 00:22am
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I am by far no expert in cf but I have
read that a child may not have signs in
the lungs at first but in the digestive
tract or other areas. The lungs are
primarily affected but it may not show up.
A common symptom is thick, heavy, sticky
mucus, salty sweat, and there stool is
different. The first sign is lack of
weight gain in
infants. Here is an article I found.
Perhaps you have seen it.
Http://www.Babycenter.Com/refcap/
baby/babyills/babyconditions/10869.Html
did the baby a specialist or was it just a
general pediatrician??? It sound like
they are trying to get to the bottom of
what is happening. I am so sorry. I
can't imagine how hard it would be seeing
a 16 week old still be only 8 pounds.
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ANGELOS MAMA
Extremely EHEALTHy
Joined: 26 Jul 2006
Posts: 1128
Location: , San Diego,California
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Posted: 01-27-07 00:25am
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I hope your nephew gets better.
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alexa84
Active User, Really EHEALTHy
Joined: 21 May 2006
Posts: 654
Location: The Good Ole Alabama
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Posted: 01-27-07 00:27am
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Oh im so sorry! Yall are def in my
prayers tonight! I hope they find whats
wrong with him soon!
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musikmaker
Extremely EHEALTHy
Joined: 30 May 2006
Posts: 1754
Location: Chicago, US
Thanks: 10
Thanked:2
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Posted: 01-27-07 00:30am
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| ladylee70
wrote: | i am by far no expert in cf
but I have read that a child may not have
signs in the lungs at first but in the
digestive tract or other areas. The
lungs are primarily affected but it may
not show up. A common symptom is thick,
heavy, sticky mucus, salty sweat, and
there stool is different. The first sign
is lack of weight gain in
infants. Here is an article I found.
Perhaps you have seen it.
Http://www.Babycenter.Com/refcap/
baby/babyills/babyconditions/10869.Html
did the baby a specialist or was it just a
general pediatrician??? It sound like
they are trying to get to the bottom of
what is happening. I am so sorry. I
can't imagine how hard it would be seeing
a 16 week old still be only 8
pounds. |
thanks for the link! I don't know now,
but they so think that it is not cf. I do
believe that he is seeing a specialist
though. My sister really wants to know
what is going on. Thanks for all the
support. I was there when he was born so
I feel so close to him so this is about to
kill me.
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Jules
Supporter
Joined: 19 Aug 2006
Posts: 3762
Location: Merrie Englande, UK
Thanks: 80
Thanked:66
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Posted: 01-27-07 03:11am
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Just wanted to say that i'll be thinking
of the little guy and I really hope they
can sort the problem asap. Big hugs to
you and your sister.
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michelle1981
Supporter
Joined: 20 Jul 2005
Posts: 7236
Location: Toronto, Canada
Thanks: 7
Thanked:6
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Posted: 01-27-07 08:02am
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I may sound ignorant, but what about
dwarfism?
I'll be thinking about him.
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AyaMiyaki
Especially EHEALTHy
Joined: 01 Jun 2006
Posts: 8247
Location: Floating on a cloud, United States
Thanks: 168
Thanked:14
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Posted: 01-27-07 10:40am
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Oh my .God, poor little guy. I'm
surprised they didn't catch this at any of
his other appointments, not counting the
one she missed. Maybe he has a metabolic
disorder? Keep us updated, okay? 
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lil_blaze2004
Supporter
Joined: 29 Oct 2004
Posts: 6492
Location: ,
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Posted: 01-27-07 11:40am
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I have no idea what it could be. By this
age, he shold've put on a few pounds at
least. Gah, I relalyhope everything is
ok, please let us know.
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Bridget
Moderator
Joined: 27 Jan 2006
Posts: 10817
Location: ,
Thanks: 61
Thanked:42
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Posted: 01-27-07 11:49am
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I don't have any idea what this could be
but please keep us updated! I hope they
figure it out soon!
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musikmaker
Extremely EHEALTHy
Joined: 30 May 2006
Posts: 1754
Location: Chicago, US
Thanks: 10
Thanked:2
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Posted: 01-28-07 01:48am
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I just spent the day with my sister and
her baby. He seems to be doing better but
we still had to feed him every half hour.
The doctors think that he is just allergic
to dairy and so he wasn't absorbing any of
the nutrients in his formula and since my
sister was nursing too she was drinking
milk which wasn't helping. They tried to
give him soy but he is allergic to that
too so they are giving him a
hypoallergenic formula. Dang, it's
expensive too but it seems to be all that
he can take. He has gained 8 oz but they
think that might be because they did his
iv wrong and his leg got all swollen and
puffy.
Anyways, just wanted to let you all know
that he is doing better but they still
don't know how long he is going to be
there. They want to keep him until he
weighs 10 lbs. I hope that it is soon!
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OctoberBaby06
Extremely EHEALTHy
Joined: 02 Dec 2006
Posts: 4612
Location: , US
Thanks: 2
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Posted: 01-28-07 09:07am
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 .They did his .I.V
wrong
.Poor little guy, I hope he keeps getting
better! Keep us updated!
.Michelle
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Bratz72
Experienced User , Rather EHEALTHy
Joined: 24 Jun 2006
Posts: 433
Location: ,
Thanks: 3
Thanked:0
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Posted: 01-28-07 12:08pm
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My nephew has cf he wasn't diagnosed until
almost 2 ...The doctors thought he just
had asthma so never bothered testing for
anything else ....He wasnt gaining any
weight as well and his bowel movements
were horrible smelling as well as as his
tummy was desended out like a malnurished
child from a 3rd world country ....The
doctors thought he might have bowel cancer
and performed all kinds of tests on chase
including the salt test where they saddly
discovered that is what he has ....Once
getting onto his medication which he has
too take with everything he digests pretty
much he has put on alot of weight ...He is
now a very happy healthy and chubby 7 year
old.
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