Huntington's Disease Information Posted: 02-09-04 13:16pm
I just wanted to see something posted here
in case anyone is looking for information
on hd and to make sure harvard knows there
is an interest in hd out there!
There is a ton of information on the
internet, plus a lot of excellent hd
discussion groups! I have a website,
called hd for families, url http://clix.To/huntingtonsdise
ase if you're looking for an hd
chapter, support group or hdsa center of
excellence in your state, go to the index
and click on "hd state info" then click on
your state. This site also links to
information on juvenile hd, genetic
testing, and lots more.
If you have a young adult living with hd
there is also a link to the hdsa national
youth alliance. I am one of the adult
advisors to this dynamic group and I would
encourage any young person living with hd
to join.
Don't forget, the hdsa [ www.Hdsa.Org ]
national convention will be held in st.
Louis, missouri june 11-14, 2004. A
national convention is not only the place
to learn about the latest research in hd,
and an opportunity to attend various
excellent sessions to get information you
need, but is the one time a year where you
can be surrounded by people who, just like
you, who understand whether you are
at-risk, have hd or are caring for someone
with hd. Check out the link to the
hunt-dis convention scholarship fund to
learn more about the convention and
pre-convention activities!
Welcome....And thank you harvard for
establishing this forum!
Love
jean
ps - the forum is removing capital letters
in this message, not me!
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Bunny
New User, Becoming EHEALTHy
Joined: 09 Feb 2004 Posts: 1 Location: Texas
Forum Posted: 02-09-04 14:12pm
Jean,
thanks for finding this site. As a
caregiver who is still learning about this
disease, I am constantly on the lookout
for information. Every little bit helps
:d .
Bunny
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jeanne
New User, Becoming EHEALTHy
Joined: 09 Feb 2004 Posts: 1
Re: Huntington's Disease Information Posted: 02-09-04 16:30pm
Thanks jean for finding this site and
letting us know about it. I too am glad
to see that harvard made a separate forum
for this disease instead of having it
listed with neurological diseases. It is
very easy to become a member, hope
everyone tries it!
