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Pots Syndrome

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concernedboyfriend

New User, Becoming EHEALTHy
Joined: 18 Feb 2007
Posts: 2
Location: USA
Pots Syndrome
Posted: 02-18-07 02:21am

Hey I was needing some info on postural tachycardia syndrome. For the last 6 months my g/f has been experiencing dizziness, chest pain, and a very high heart rate. After all the prodding by me, she finally went to a local cardiologist here in wv. She was diagnosed with pots, I am trying to get a feel for what we may be instore for and possible treatments. Are there any tips to helping normalize symptoms or helping her feel more relaxed? Thanks in advance for the info!!!! Smile
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pamsproblem

New User, Becoming EHEALTHy
Joined: 21 Apr 2007
Posts: 1
Location: Colorado
Good Luck to Your Girlfriend.
Posted: 04-21-07 11:52am

I have had pots syndrome from age 9 to now age 38 and I cannot seem to get anyone to prescribe what works. Years ago I was put on a Calcium channel blocker and it worked great, I got pregnant and had to go off my meds and have had no luck getting back on them in the past 12 years. The definition of pots syndrome is clinically defined as a heart rate increase of 30 bpm or more from the supine(laying down) to the standing position within ten minutes or less. Patients with florid POTS develop tachycardia over 120 bpm within 5 minutes or less. Studies show that 75% of POTS patients are women and that a genetic tendency to develop POTS is usually transferred from mother to daughter. I can tell you my son had some problems with it when he was 14 now he is 16 and it is troubling him less and less,I think he is actually growing out of it. Me however I am stuck with it. I can tell you the more supportive of her you are the better it will make it on her. Tell her to get plenty of rest and the full range of vitamin B seems to help to a point. Good luck to your girlfriend. Look it up on the internet there is a lot more info. than I have the energy to type.
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concernedboyfriend

New User, Becoming EHEALTHy
Joined: 18 Feb 2007
Posts: 2
Location: USA

Posted: 04-22-07 00:23am

thank you for the info Very
Happy She's been to two doctors one says its not POTS and another does. We seem to think that she has many of the same symptoms of being anemic, because she has a large deficiency of iron ( almost non-existent in her body). So we're hoping for her anemic instead......they also originally thought that it was her thyroid too but they were wrong?? Confused so, we'll see what happens from here.
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R_johnson246

New User, Becoming EHEALTHy
Joined: 22 Apr 2007
Posts: 3
Hmm...
Posted: 04-22-07 13:51pm

has she tried B12 Vitamins yet. That may just help her out...
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