Joined: 18 Feb 2007 Posts: 3 Location: Des Moines, IA
Sle Genetic Studies Posted: 02-19-07 05:44am
There are two studies that are being
conducted right now that I have
participated in and I thought some of you
with sle may be interested in
participating also. You can participate
in both studies no matter where you live
in the us for sure, not sure about out of
the country. All you have to do is fill
out some paperwork and they send you a kit
to take to your local lab and have some
blood drawn. Both studies are totally
free to participate in, they pay for all
lab work and postage.
The second is the the lupus multiplex
registry and repository (lmrr). This is
a long term research project sponsored by
niams a branch of the national institues
of health (nih). The information
collected is used to:
identify the genes involved in the
development of lupus,
determine these genes' role(s) in disease
activity,
study various aspects of the disease (such
as autoantibodies),
develop better treatment for patients who
suffer from this serious illness &
one day, find a cure or method of disease
prevention.
This study pays a small fee for your time,
I think it was $30. To read more about
this research project visit: http://lupus.Omrf.Org/ to fill out
the online interview visit: https://lupus.Omrf.Org/lara/.
I hope some of you will consider
participation in these studies. The more
we learn about what causes lupus the
faster we can find a cure!
|
Cure4Lupus
New User, Becoming EHEALTHy
Joined: 18 Feb 2007 Posts: 3 Location: Des Moines, IA
Posted: 02-22-07 17:07pm
PS I spoke with one of the study
coordinators and she is interested in
talking w/ people in the UK about the
second study. Anyone in the UK interested
can email her at: Amanda Crosbie
[Amanda-Crosbie@omrf.ouhsc.edu]
