My 17 year old daughter has catamenial
epilepsy. Currently she is on
carbamazepine and zonesamide. Would the
introduction of progesterone hormone help
with her seizure control? Please suggest a
suitable medication. Her seizure
predominantly centres during the time of
the month apart from when she is suffering
from cold. Please advise.
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Epilepsy Mom
New User, Becoming EHEALTHy
Joined: 27 Sep 2007 Posts: 3 Location: Atlanta, GA
Catamenial Epilepsy Posted: 09-28-07 08:44am
At least in the US, this is a big area of
research at the present time. There are
clinical trials going on with the use of
natural progesterone. Perhaps they are
studying this in your area too or you
could watch for the published results of
the studies. Physiologically, Estrogen
lowers the seizure threshold and
progesterone raises it. Thus the reason
for the studies however I think the main
idea is to even out the hormone swings
because it is the sudden changes that are
the problem. My daughter has a serious
seizure disorder but the most troublesome
events for increased seizure activity are
when her hormones are swinging around and
when she is sick. We actually tried the
natural progesterone study and, for her,
it didn't make much if any difference.
Some people do respond according to the
study nurse.
I just joined this "community" and I
noticed your post. My reply is a little
late but I hope it is helpful.
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markncass
New User, Becoming EHEALTHy
Joined: 23 Jul 2008 Posts: 1
Catamenial epilepsy Posted: 07-23-08 12:44pm
When i was 13 i started my periods and
shortly after that was diagnosed with
epilepsy.
I always had a "abscence" a week before my
period and it isnt a fit i always want to
sleep and thats it. ive tried tegratol and
it didnt work.
I read a story today about catamenial
epilepsy and it sounds exactly like what
ive got.
the only thing is when i was pregnant with
my first child i didnt have any abscences
and then i went on microgynon (the pill)
after and didnt have any then either.
Then i came off the pill and we started
trying for our second child and i started
having abscences again and when i
eventually got pregnant with my 2nd child
i still had abscences but even more
frequent than ever.
Now ive just gone bk on the pill and im
praying it stops my abscences again.
Has anyone had anything similar to this?
