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luvmyboxer
New User, Becoming EHEALTHy
Joined: 22 Feb 2007 Posts: 6 Location: New York
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Dizziness Connected to Tmj?
Posted: 02-22-07 15:49pm
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Hi I am new here and wondering if the
symptoms I have been experiencing can be
TMJ related. My symptoms are as
followed.. I suffer from daily tension
headaches, pressure behind my eyes that
makes my eyes tear but yet they feel dry.
My head feels like it's in a fog like I
have been drinking all day (without the
drink) I get a floaty feeling in my head
along with some falling, tilting and
swaying sensations, motion like I am on a
boat or a sinking to the ground feeling
like you would get riding in an elevator.
My head feels whirly at times if that
makes sense.. I also have a
clicking/clunking sound in my jaw, mostly
in my lower jaw bone where your jaw would
curve in just below my ear lobe. When
placing my fingers on my TMJ joint I can
here crunching and a shift in my jaw when
opening and closing my mouth. I also get
random ear pains they are sharp and deep,
along with some crackling sounds in my
ear, especially when I hear loud sounds..
I also always feel so drained and tired
like I haven't slept in days. This is all
causing me such great amounts of anxiety.
I know I clench my teeth at times when I
sleep because I wake up feeling tightness
in my face and jaw and pressure in my head
around my temples. Like a tension
headache. My neck and shoulders down into
my shoulder blades are tight and sore, and
my trigger points are very painful.. My
biggest complaint is this falling, swaying
drunken, heavy head, brain fog feeling!!
it's so hard to function a normal life
feeling like this. I notice my symptoms
become less when I am laying down I don't
feel as dizzy and my headache's subside.
But when I am standing or sitting up I
feel like my neck is being pulled upward
and my head is so heavy and floaty
spacey.. CAN this all be TMJ related? Or
am I looking down the wrong road? And are
there others out there that feel as
miserable as me that have TMJ? I am
searching here for anyone who can give me
any advice or guidance in this.. Thank You
in Advance
Luvmyboxer 
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luvmyboxer
New User, Becoming EHEALTHy
Joined: 22 Feb 2007 Posts: 6 Location: New York
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Posted: 02-22-07 19:10pm
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10 view and no replies??  Anyone??
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
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Posted: 02-23-07 07:37am
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Hi luvmyboxer (cute name!) Don't worry.
I'm working on something. Just didn't
have time to finish. 
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luvmyboxer
New User, Becoming EHEALTHy
Joined: 22 Feb 2007 Posts: 6 Location: New York
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Posted: 02-23-07 13:43pm
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Thank You catswold I was starting to think
I was alone here! 
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
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Posted: 02-23-07 15:07pm
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Hi again,
Wow, I can't get over how well you
described most of my symptoms from the
last 27 years. One exception seems to be
that it was definitely my jaw that was the
problem because my mouth was locked and
the sharp stabbing pain was directly at
the jaw joint in front of my right ear.
The clicking and crackling that you feel
is the biggest indicator to me that you
might have TMJ. What do you do to help
yourself? Have you seen a doctor and/or
dentist about this problem? That should
be your first step.
Ear pains, fogginess, sinus problems, sore
throats, dizziness, headaches, neck and
shoulder pains are all unbelievably
symptoms of TMJ (or TMD -
temporomandibular joint dysfunction). I
can only use my experience to try and make
some suggestions that might help. Again,
I must advise that you see a doctor and/or
dentist. It might not be TMJ at all but
chronic sinusitis or something along those
lines. Before going to the appointment,
though, I highly urge you to educate
yourself as much as possible by going to
support groups, message boards and general
Internet surfing. There is a lot of
information on the Internet (I wish it had
existed when I really needed it), but be
careful when comparing your situation to
someone else's. Sad to say, TMJ is so very
different for each of us (but sometimes so
alike). What may work for me, might not
work for you.
I can tell you here and now the basic
instructions that most new tmj patients
are usually told to help themselves -
1. Use lots of moist heat and/or ice
2. Eat only soft or liquid foods for some
weeks. Stop all gum chewing.
3. Do not open your mouth wide for any
reason (yawning). Be gentle to your
muscles, etc.
4. See if the dentist or your doctor will
prescribe either valium or xanax to take
at night for a few weeks. Good sleep is
essential.
5. Ibuprofen tends to be the most
effective pain killer (600 to 800 mg)
6. Evaluate your posture. How you are
sitting at a computer or a desk can play a
very large role on the stress put on the
tmjoint. Go to nismat.Org (physical
therapy, tmj) for some pictures of posture
problems and some good exercises to do,
etc.
7. Reduce your stress anyway possible
(yoga, exercise, massage).
8. If above doesn't work - ask your doctor
to refer you to physical therapy with a
tmj-trained therapist. Good massage
therapy can be very helpful also.
9. Bite splints (but I must make this
comment that bite splints are only as good
as the bite splint maker. A good bite
splint maker is worth his/her weight in
gold).
10. No surgery. No surgery ever. Never.
I better close this as it has gotten long.
Please feel free to ask any questions you
might have here on ehealthforum.com or PM
me or email. Education and support is so
important. Please take care of yourself
and let us know how you are doing.
God bless…
Carol
(Catswold and catswolds)
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LisaV
New User, Becoming EHEALTHy
Joined: 15 Feb 2007 Posts: 17 Location: RI
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Posted: 02-23-07 15:54pm
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you may want to see an ENT to rule out
inner ear problems as they too can cause
some of the symptoms that you mention - I
am unfortunate to have both so I would
definitely check both out
wish you well
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4438 Location: post falls, id usa
Thanks: 101
Thanked:68
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Hey
Posted: 02-26-07 15:04pm
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all that catswold has said is true-----i
have had vertigo on account of tmd for
most of my life. try rubbing the back of
your ear down the jaw line. that has
helped me in the past. good luck.
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ddcozy
New User, Becoming EHEALTHy
Joined: 13 Mar 2007 Posts: 7 Location: new york
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Tmj
Posted: 03-15-07 21:59pm
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I have the exact same symptoms- for 4
months straight
Went to a TMJ dentist, had a night guard
made- helped the headaches but not the
dizzyness. Now the headaches are back even
worse- actually constant at the base of my
head on the right side. Someone said to
try gingko biloba- I've tried for two
days, so far, no difference- You are in
NY, me too- If you find a good Dr let me
know- the one's I'm seeing are starting to
tell me to see a psychiatrist- not the
answer I'm looking for
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4438 Location: post falls, id usa
Thanks: 101
Thanked:68
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Doctor
Posted: 03-16-07 12:41pm
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Last edited by Tmddyan on 03-22-07 12:28pm; edited 1 time in total
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mustangsally70
New User, Becoming EHEALTHy
Joined: 21 Mar 2007 Posts: 12 Location: USA
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Dizziness??? Surgery??? Thank God I've Found You All!!!
Posted: 03-21-07 20:33pm
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Hi everyone!!! I'm so excited to be here,
I can barely contain myself. I've been
searching high and low for something like
this. Thank you for being here.
Of course, I have TMJ problems. I seem to
have gone a little beyond the "normal"
treatment options. I now have "mandibular
condylar hyperplasia with resultant
malocclusion"...Yep, I'm a mess. To make
a long story short, I'm scheduled for a
total joint replacement in about a month.
I'm terrified. Of all of the other
symptoms I've been having, headaches,
neckaches, dibilitating ear pain,
sleepless nights, etc, etc, I can't
believe I didn't even relate my recent
severe bouts of vertigo to this!!!!!

Thank you Luvmyboxer!!
I've been doing all kinds of research to
see if there are other options. I
currently am working on getting a second
opinion, but dang it ain't easy. My most
recent research is showing that maybe I
don't have a choice. I thought that maybe
rebuilding would work. But that seems to
have its own set of problems. I am one of
the very lucky ones, in that, currently, I
have no pain! I have a great dentist who
made a beautiful splint for me which
literally saved my sanity! Problem is, my
condylar is extremely large and will
continue to grow. It doesn't even sit in
my tmj anymore...it doesn't fit.
Basically all that's holding it in are my
muscles.
I really just wanted to get in here and
introduce myself and again Thank You for
being here!!!!
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
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Posted: 03-22-07 07:34am
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Hi MustangSally,
I'm sorry to read about your problems. I
have never heard of this problem.
Interesting. I'm glad to hear that you
are getting more opinions. I understand
the need for a joint replacement for you
but if you are not in pain and can
function, I think I would have off the
surgery for as long as you can because I
don't think those replacements are
supposed to last your entire life-time.
Meaning you will have to have future
surgeries maybe. I don't want to scare
you. Your dentist sounds great and if the
bite splint can keep away the surgery
that's even greater.
I am glad that you found us. Since you
are so unique, I would love to follow your
story. What else do you do to keep the
joint functioning and pain-free? Love to
hear from you...
God bless...
Carol
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mustangsally70
New User, Becoming EHEALTHy
Joined: 21 Mar 2007 Posts: 12 Location: USA
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Posted: 03-22-07 20:18pm
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Carol,
Thank you so much for your well wishes.
I know what you mean about putting off the
surgery. I've been seriously mulling that
over. I am completely pain free. I still
have headaches, but they occur much less
than they used to. I really don't need to
do much else to stay pain free now. I
faithfully wear the splint. My bite has
changed so much that not having it in
feels very uncomfortable, not necessarily
painful, but uncomfortable. The teeth on
the right side of my mouth, from about my
canine tooth back do not touch at all.
The splint is configured to close my bite
up. If I leave it out overnight or for a
couple of days, I will get sore. I won't
leave it out any more than that because
the thought of feeling as I did before is
a horrid one!
The doctors say I should not put it off.
It is still growing. I also think they
are anxious to get it out of there and
figure out what is making it grow. They
are sending it away for biopsy after the
surgery. I feel in my gut that the growth
is simply due to the pounding its been
taken for years and years when I did
nothing about it. But I guess I'm too
nervous to completely trust my gut.
I'm hoping to get my second opinion by
next week.
Gosh I'm sorry I keep rambling....its just
that I've never been able to talk to
anyone who really understands. It feels
really really good 
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dauntless111
New User, Becoming EHEALTHy
Joined: 13 May 2007 Posts: 3 Location: Auckland, New Zealand
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Mouth Splint
Posted: 05-13-07 19:37pm
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Hi Folks,
i have been suffering from TMJ and all the
symptoms that "luvmyboxer" mentioned I
have also.
I am actually going to the dentist today
to get an NTI-TSS mouth/tooth thing which
the dentist assures me will sort me out
once and for all!
look it up on google. It actually looks
quite convincing. But it costs a small
fortune. 620.00NZD I'm paying for it.
I used to have a rubber tooth/splint but
it didnt take long for me to bite right
through it and it never worked anyway.
I hope this new things clears my Jaw, gets
rid of my "drunken fogginess" and lets me
sleep better.
I will post again in a few days to let you
know how I get on.
Cheers
Murray
www.murraydouglas.com
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
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Posted: 05-13-07 21:04pm
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Hi Dauntless111,
That does seem to be a bit expensive for
me also. The NTI is just a small little
thing too. Make sure that it is adjusted
and that you are allowed to go back as
much as needed for adjustments. I have an
NTI but don't wear it because it didn't
make my bite feel stable enough; like a
rocker. I have heard of people having
problems with it, but someone always has a
problem with something. You have to try
for yourself.
By the way, rubber bite splints are not
really very good for you. Biting through
it is one big problem, but it is also not
good on the jaw joint and teeth. I wear a
harder bite splint. It's hard for me to
describe the material as it is acrylic but
yet has some softness to it. How, I don't
know.
I hope you will come back and say how you
are getting along. I loved your photos.
New Zealand is beautiful.
God bless...
Carol
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unistu
New User, Becoming EHEALTHy
Joined: 13 May 2007 Posts: 7
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Re: Dizziness Connected to Tmj?
Posted: 05-13-07 21:55pm
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| luvmyboxer
wrote: | | Hi I am new here and
wondering if the symptoms I have been
experiencing can be TMJ related.
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pressure behind my eyes, I get a floaty
feeling in my head along with some
falling, tilting and swaying sensations,
head feels whirly at times, When placing
my fingers on my TMJ joint I can here
crunching and a shift in my jaw when
opening and closing my mouth. I also get
random ear pains not really sharp though,
along with some crackling sounds in my ear
when i put my ear on the pillow.
***
Above are the same symptoms I have with
you! It's not everyday but I get it
sometimes. Now that catswold mentioned, it
could be either TMJ or sinusitis right?

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metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 113 Location: most boring state, USA,
Thanks: 1
Thanked:0
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Re: Dizziness Connected to Tmj?
Posted: 05-14-07 09:40am
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Yes dizziness, that was my latest symptom
along with all the pain in my jaw and
neck. If I tilted my head back I got
really dizzy. I got my LVI othotic put in
and the dizziness is pretty much gone. My
pain is lessened to a degree also, I still
have pain flare-ups when the weather
changes but my docs think that is some
kind of arthritic problem. By changing my
bite my dentist has already decreased
symptoms and stopped the progression of
the symptoms, thankfully.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4438 Location: post falls, id usa
Thanks: 101
Thanked:68
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Hey
Posted: 05-14-07 12:17pm
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neuromuscular is a life saver with
dizziness. It releives the pressure on the
eustation tube and equalizes the pressure
between the inner and outer ear. go find a
neuromuscular dentist and it will all go
away
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dauntless111
New User, Becoming EHEALTHy
Joined: 13 May 2007 Posts: 3 Location: Auckland, New Zealand
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Myohealth
Posted: 05-15-07 23:20pm
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Hi everyone, I thought I was getting an
NTI but I got a Myohealth Clenching
Inhibitor.... MCI
Quite uncomfy but I have only been wearing
it for 2 nights so far. Its definetly
stops pressure on the jaw so much... Ill
keep you posted!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4438 Location: post falls, id usa
Thanks: 101
Thanked:68
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Hey
Posted: 05-16-07 12:50pm
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good luck with it and do keep us posted.
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dauntless111
New User, Becoming EHEALTHy
Joined: 13 May 2007 Posts: 3 Location: Auckland, New Zealand
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Clenching Inhibitor
Posted: 06-10-07 15:29pm
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Well the MCI things does stop the
clenching and I got used to it easily
enough but I still have my fogginess, cant
focus properly, eyes glaze over when I am
in a conversation for more than a few
minutes....
Someone out there must have the answer.
More sleep? more exercise? drugs? I just
want to open my head and give my mind a
good wipe with a cloth....
I need clarity!!!
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