Joined: 14 Nov 2006 Posts: 1912 Location: Boise, Idaho,
Thanks: 1
Thanked:0
Some Answers?? Posted: 02-23-07 21:36pm
I called my doctor's office today for
results of my testing. I have tested
positive for having cardiolipid
antibodies. I have symptoms related to
Lupus (i.e., rash, joint swelling, etc)
but that came back negative. The nurse
couldn't give me answers as she had no
idea what everything meant. She said the
doctor was going to "try" to call me today
but she didn't - probably couldn't. It was
a 1/2 day for them today and she was
swamped.
I did read that what I have is linked to
fetal death and it is a clotting problem.
If my levels are high, I will be mad that
they didn't call me up to tell me - I had
to call them. In order to stop clotting,
they may have to give me medication and
each day without treatment maybe damaging.
I would like to think that the doctor's
office would have called me if it was
imperative that I needed medication today.
I don't even know what everything means
right now. Perhaps I am not that severe
but to have a positive antibody like
cardiolipid and to have no phone call
makes me a little mad. Oh well. I will get
answers on Monday and probably find out
everything is alright.
Wouldn't you be a little upset if you had
blood clots next to your baby and found
out you tested positive for something that
could be a reason for your blood clots???
I did read that you can have a positive
test if you recently had an infection,
which I did. However, I do have blood
clots so the whole thing makes sense.
Nothing I can do but wait until Monday and
call them up again.
Anyone experience this??? It's seems kind
of rare, so I doubt it.
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Mommy35
Extremely EHEALTHy
Joined: 23 Sep 2006 Posts: 3165 Location: Vacationland, USA,
Posted: 02-23-07 21:45pm
I would be absolutely wild if my doc
didn't call me to let me know that and get
me started on my tx .S.T.A.T!!!
I know with the internet it's easy to
"read up" on stuff, but please do so with
caution. There are a lot of great sites
that give accurate information, but
remember there are a lot of sites that may
not give false info, but not 100% on the
money info either. It seems more times
than not they discuss the bad too much and
not the positives.
Maybe no news from your doc is good news.
I hope so. You and your baby are always
in my prayers!!!
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Magical Logic
Extremely EHEALTHy
Joined: 14 Mar 2006 Posts: 2248
This Might Help Some Posted: 02-23-07 21:46pm
When an IgG, IgM, and/or IgA cardiolipin
antibody is detected, then it may be
repeated several weeks later to determine
whether the antibody is temporary or
persistent.
A negative result means only that the
cardiolipin antibody class tested (IgG,
IgM, and/or IgA) is not present at this
time. Since cardiolipin antibodies are the
most common of the antiphospholipid
antibodies, it is not unusual to find them
emerging, temporarily due to an infection
or drug, or asymptomatically as a person
ages. The low to moderate concentrations
of antibody seen in these situations are
frequently not significant, but they must
be examined in conjunction with a
patient’s symptoms and other clinical
information.
Moderate to high levels of one or more of
the classes of cardiolipin antibodies that
persist when tested again 6 weeks later
indicate the likely continued presence of
that specific antibody.
If your body contains cardiolipin
antibodies, you may experience no symptoms
at all. In fact, up to 2% of the
population, both men and women, have
anti-cardiolipin in their blood stream. It
is only when these levels are quite high
that they pose a problem.
Normal Results: Normal results mean that
you have typical levels of cardiolipin
antibodies in your blood. Normal IgG is
below 23 ug/mL, while normal IgM and IgA
is below 11 ug/mL.
Abnormal Results: Abnormal results
indicate that you have higher-than-normal
levels of cardiolipin antibody in your
blood. Levels that are slightly above 23
ug/mL may not be a cause for concern.
Sometimes, cardiolipin antibodies are
elevated temporarily due to colds or the
flu. Levels that are between 25ug/mL and
70 ug/mL however, may interfere with your
ability to become pregnant or carry a
pregnancy to term.
After the Test
Once you have gotten your test results
back, it is important to discuss your
options with your health care provider. If
you have borderline results, it is
probably a good idea to perform the test
again in about 6 weeks. This will allow
for any fluctuations due to minor
illnesses. If your levels are high, you
may consider treatment to help control the
number of anti-cardiolipin antibodies in
your blood. This will reduce your risk of
blood clots and hopefully, allow you to
conceive and carry a baby to term.
Treatments generally involve medication,
such as:
You really need to get this checked out
right now make them give you answers.
because clotting problems is something
really serious.
I never heard of cariolipids but if your
having clotting problems you can die in a
heartbeat.
Im not trying to scare you but this is a
serious problem.
If your blood is clotting you need to
start taking some kind of anit-coagulants
to prevent this.
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JOEWiFEYxX31
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2006 Posts: 89 Location: Georgia
Posted: 02-23-07 23:07pm
I looked it up and anticardiolipidin keep
are antibodies that attack parts of the
cell membrane in normal human cells.
So if you have these antibodies then its
considered an auto immune disease (and
thats when the body attacks itself).
It says if your in your first semester of
pregnancy then it can lead to a
spontaneous abortion.
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ladylee70
Extremely EHEALTHy
Joined: 14 Nov 2006 Posts: 1912 Location: Boise, Idaho,
Thanks: 1
Thanked:0
Posted: 02-23-07 23:33pm
Thanks everyone for your help.
Autoimmune diseases run in my family. My
water did break at 13 weeks and apparently
passed a blood clot as well. My amniotic
fluid levels are normal and the baby is
doing great at almost 19 weeks. I was very
lucky that I didn't lose the baby at 13
weeks.
I wonder if my levels were positive but
not significantly high, which maybe a
reason why the doctor didn't call me
today. If they are significant, I will be
asking why they didn't call me sooner! I
will be a little ticked off.
