Joined: 12 Feb 2004 Posts: 2 Location: Richmond, Va
New to This Posted: 02-12-04 20:48pm
Hi I am a little new to this chat thing so
you may have to bear with my dumb
questions. I guess I should say a little
about myself. I am 21 years old and I
have temporal lobe epilepsy. I have had
it for about 4 years with no luck on any
medicine. I have been on, lamictal,
dilantin, tegretol, and there was 1 more
but I can not remember what it was. Well
I just recieved the results of an mri this
morning and I was told that one of my
temporal lobes is mush larger than the
other one. Now the doctor called me at
8am this morning after I had been up most
of the night studying so I was a little
out of it and did not ask him any
questions. I was wondering if any of you
are aware of this...Is it normal, should I
be worried???? Please help me
understand...I hate these damn seizures.
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katiedee
New User, Becoming EHEALTHy
Joined: 25 Mar 2004 Posts: 11
Tle Posted: 03-26-04 11:42am
Sorry to hear about the meds not working.
I would strongly encourage you to call
your doctor back and ask more questions
about the mri. A lot of times these
findings are just normal variations, but
your doctor really should shed a little
more light on it. Also, there are so
many other medications out there that I
think you should insist on trying
something new. My son had to go through
so many meds before he found the right
ones and the right doseage. It took me
convincing the doctor that he was
over-medicated and to let's try a lower
dose. He's on keppra and trileptal and
has had great seizure control for two
years. So many of the other meds
(tegretol, depakote and others) made his
seizures more frequent and gave him
terrible side effects. But you have to
be persistant with your doctor about
asking for something else to try. Don't
give up and you have a right to have your
questions answered about your mri. Good
luck.
