Multiple Sclerosis Forum - Help
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WALLEYE

New User, Becoming EHEALTHy
Joined: 09 Feb 2007
Posts: 4
Location: WI
Help
Posted: 03-28-07 15:05pm

oligoclonal bands negative for ms
csf elevated protein levels suspicious of ms
immunglobin,inflamation of brain and igg positive fot ms
mylen normal
mri lesions and eye test very suspious for ms
very very close to 100% sure of ms but said relapsing/remitting and prescibed copaxone, what are the side effects? does this work and how? is ther a cheaper alternative insurance said DENIED what the %^^*? i guess ill figure something out at $2200.00 a month. yes in his medical opion yes it is ms.
second opion coming 25 of april.
(to me and the wife it seems like someone overlooked something.)
mri showed 2 big lesions with outher lesions that resembled dawsons fingers.
what kind of diagnoses is ms but not 100% sure?
why prescibe copaxone?

someone help me understand this
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exodus_152

New User, Becoming EHEALTHy
Joined: 02 May 2007
Posts: 40
Answers I Hope Help
Posted: 05-22-07 23:13pm

Your doctor is the best person to help you understand the test results and their significance. Don't be affraid to ask questions and insist he/she spend the time with you to get a handle on this. If that doc won't find a better one.

In the mean time read read read. Take charge of your health care, look into alternative medicine, ie Naturopathic (ND from a four year on site college).
Omaga-3 oils from fish and flax seed, folic acid, b-12 all have been reported to help. Try drinking Kombucha tea, I love the stuff. The best I've found is emperors best from spam link. There are a lot of books on the subject. Read on maintaining a healthy pH level as tested by saliva. Drink 8 to 10 glasses a day of water. Consider a chiropractor but let them know you might have ms and be extra carefull - maybe an activator trained DC.

Good luck and God bless!
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keep_it_real

New User, Becoming EHEALTHy
Joined: 26 May 2007
Posts: 6
Location: Tampa, Fl.

Posted: 05-26-07 06:17am

No offense Exodud, but a Chiropractor??

Walleye, normally for them to dx you with "definate MS", they wait until you have another "relapse". So don't worry about that, as it seems as though you DO have it Sad I am even surprised they rx'ed you Copaxone w/o a definate dx Surprised , but I soppose some do...

I am on Betaserone, so I can't help you with that, but I would see how much the other ones are since you have to pay for them yourself. Your Neurologist just may like "C" better than the rest, but that does not mean it is. Usually they will give the option of C or B at first, so it can't hurt to ask about the B. I would also ask your insurance company WHY they declined. Make them give you an answer. You will be your own best advocate when it comes to this disease, so ask allot of questions, and if your gut tells you your Neuro is not doing enough, get that 3rd or even 4th opinion if you need to!

Good luck and let us know how you make out!
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